Family knowledge about the legal rights of children and adolescents with cancer

Detalhes bibliográficos
Autor(a) principal: Santos,Bruna Domingos dos
Data de Publicação: 2021
Outros Autores: Marques-Camargo,Amanda Rossi, Pan,Raquel, Reis,Susana Maria Garcia dos, Andrade,Rosyan Carvalho, Neris,Rhyquelle Rhibna, Nascimento,Lucila Castanheira
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Revista Brasileira de Enfermagem (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000600153
Resumo: ABSTRACT Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Method: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family’s knowledge about legal rights. Descriptive statistics were used to analyze data. Results: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. Conclusion: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.
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spelling Family knowledge about the legal rights of children and adolescents with cancerPatient RightsDefense of Children and AdolescentsNeoplasmsFamilyPediatric NursingABSTRACT Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Method: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family’s knowledge about legal rights. Descriptive statistics were used to analyze data. Results: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. Conclusion: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.Associação Brasileira de Enfermagem2021-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000600153Revista Brasileira de Enfermagem v.74 n.6 2021reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2020-0725info:eu-repo/semantics/openAccessSantos,Bruna Domingos dosMarques-Camargo,Amanda RossiPan,RaquelReis,Susana Maria Garcia dosAndrade,Rosyan CarvalhoNeris,Rhyquelle RhibnaNascimento,Lucila Castanheiraeng2021-06-10T00:00:00Zoai:scielo:S0034-71672021000600153Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2021-06-10T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false
dc.title.none.fl_str_mv Family knowledge about the legal rights of children and adolescents with cancer
title Family knowledge about the legal rights of children and adolescents with cancer
spellingShingle Family knowledge about the legal rights of children and adolescents with cancer
Santos,Bruna Domingos dos
Patient Rights
Defense of Children and Adolescents
Neoplasms
Family
Pediatric Nursing
title_short Family knowledge about the legal rights of children and adolescents with cancer
title_full Family knowledge about the legal rights of children and adolescents with cancer
title_fullStr Family knowledge about the legal rights of children and adolescents with cancer
title_full_unstemmed Family knowledge about the legal rights of children and adolescents with cancer
title_sort Family knowledge about the legal rights of children and adolescents with cancer
author Santos,Bruna Domingos dos
author_facet Santos,Bruna Domingos dos
Marques-Camargo,Amanda Rossi
Pan,Raquel
Reis,Susana Maria Garcia dos
Andrade,Rosyan Carvalho
Neris,Rhyquelle Rhibna
Nascimento,Lucila Castanheira
author_role author
author2 Marques-Camargo,Amanda Rossi
Pan,Raquel
Reis,Susana Maria Garcia dos
Andrade,Rosyan Carvalho
Neris,Rhyquelle Rhibna
Nascimento,Lucila Castanheira
author2_role author
author
author
author
author
author
dc.contributor.author.fl_str_mv Santos,Bruna Domingos dos
Marques-Camargo,Amanda Rossi
Pan,Raquel
Reis,Susana Maria Garcia dos
Andrade,Rosyan Carvalho
Neris,Rhyquelle Rhibna
Nascimento,Lucila Castanheira
dc.subject.por.fl_str_mv Patient Rights
Defense of Children and Adolescents
Neoplasms
Family
Pediatric Nursing
topic Patient Rights
Defense of Children and Adolescents
Neoplasms
Family
Pediatric Nursing
description ABSTRACT Objective: Identify the knowledge of family members of children and adolescents with cancer about their legal rights, difficulties, and concessions to ensure them. Method: Quantitative study, survey type, of intersectional design. A questionnaire drawn up by the researchers was applied in order to characterize the minor and their family and also to identify the family’s knowledge about legal rights. Descriptive statistics were used to analyze data. Results: 61 family members who participated know some more rights to the detriment of others and are especially motivated to search for information when negative impacts on the financial life increase, with repercussions beyond family health. Conclusion: the studied population requires more information and demands knowledge about some rights guaranteed by law. Guidance on rights empowers the family and guarantees the necessary care, searching to have an intersectoral action qualify care and assist in restructuring family dynamics to deal with chronic conditions.
publishDate 2021
dc.date.none.fl_str_mv 2021-01-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000600153
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000600153
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/0034-7167-2020-0725
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Associação Brasileira de Enfermagem
publisher.none.fl_str_mv Associação Brasileira de Enfermagem
dc.source.none.fl_str_mv Revista Brasileira de Enfermagem v.74 n.6 2021
reponame:Revista Brasileira de Enfermagem (Online)
instname:Associação Brasileira de Enfermagem (ABEN)
instacron:ABEN
instname_str Associação Brasileira de Enfermagem (ABEN)
instacron_str ABEN
institution ABEN
reponame_str Revista Brasileira de Enfermagem (Online)
collection Revista Brasileira de Enfermagem (Online)
repository.name.fl_str_mv Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)
repository.mail.fl_str_mv reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br
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