Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease

Detalhes bibliográficos
Autor(a) principal: Carvalho,Evanilda Souza de Santana
Data de Publicação: 2021
Outros Autores: Carneiro,Jayanne Moreira, Gomes,Aline Silva, Freitas,Katia Santana, Jenerette,Coretta Melissa
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Revista Brasileira de Enfermagem (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160
Resumo: ABSTRACT Objectives: to analyze the characteristics of stigma in the interactions of people with pain and sickle cell disease and the coping strategies adopted. Methods: qualitative study, conducted in Bahia’s reference units between January and July 2018. In-depth interviews were applied to 25 adults, followed by content analysis and interpretation in light of the Sociological Theory of Stigma. Results: four categories emerged from the data: Stigma in interactions with family members; Stigma in interactions with people in the general public; Stigma in interactions with health workers; and Strategies for coping with stigma. Final Considerations: in the participants’ interactions, stigma produced discrediting pain reports, labeling and stereotyping, blaming patients for not improving their health, discrimination, racism, inadequate pain assessment, and delay in care. Coping included silencing, covering up, aggressive behavior, exposure to risk, reading religious texts and praises, and church attendance.
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spelling Why does your pain never get better? Stigma and coping mechanism in people with sickle cell diseaseSickle Cell DiseaseSocial StigmaPainNursingSickle Cell AnemiaABSTRACT Objectives: to analyze the characteristics of stigma in the interactions of people with pain and sickle cell disease and the coping strategies adopted. Methods: qualitative study, conducted in Bahia’s reference units between January and July 2018. In-depth interviews were applied to 25 adults, followed by content analysis and interpretation in light of the Sociological Theory of Stigma. Results: four categories emerged from the data: Stigma in interactions with family members; Stigma in interactions with people in the general public; Stigma in interactions with health workers; and Strategies for coping with stigma. Final Considerations: in the participants’ interactions, stigma produced discrediting pain reports, labeling and stereotyping, blaming patients for not improving their health, discrimination, racism, inadequate pain assessment, and delay in care. Coping included silencing, covering up, aggressive behavior, exposure to risk, reading religious texts and praises, and church attendance.Associação Brasileira de Enfermagem2021-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160Revista Brasileira de Enfermagem v.74 n.3 2021reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2020-0831info:eu-repo/semantics/openAccessCarvalho,Evanilda Souza de SantanaCarneiro,Jayanne MoreiraGomes,Aline SilvaFreitas,Katia SantanaJenerette,Coretta Melissaeng2021-06-14T00:00:00Zoai:scielo:S0034-71672021000300160Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2021-06-14T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false
dc.title.none.fl_str_mv Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
title Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
spellingShingle Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
Carvalho,Evanilda Souza de Santana
Sickle Cell Disease
Social Stigma
Pain
Nursing
Sickle Cell Anemia
title_short Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
title_full Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
title_fullStr Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
title_full_unstemmed Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
title_sort Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
author Carvalho,Evanilda Souza de Santana
author_facet Carvalho,Evanilda Souza de Santana
Carneiro,Jayanne Moreira
Gomes,Aline Silva
Freitas,Katia Santana
Jenerette,Coretta Melissa
author_role author
author2 Carneiro,Jayanne Moreira
Gomes,Aline Silva
Freitas,Katia Santana
Jenerette,Coretta Melissa
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Carvalho,Evanilda Souza de Santana
Carneiro,Jayanne Moreira
Gomes,Aline Silva
Freitas,Katia Santana
Jenerette,Coretta Melissa
dc.subject.por.fl_str_mv Sickle Cell Disease
Social Stigma
Pain
Nursing
Sickle Cell Anemia
topic Sickle Cell Disease
Social Stigma
Pain
Nursing
Sickle Cell Anemia
description ABSTRACT Objectives: to analyze the characteristics of stigma in the interactions of people with pain and sickle cell disease and the coping strategies adopted. Methods: qualitative study, conducted in Bahia’s reference units between January and July 2018. In-depth interviews were applied to 25 adults, followed by content analysis and interpretation in light of the Sociological Theory of Stigma. Results: four categories emerged from the data: Stigma in interactions with family members; Stigma in interactions with people in the general public; Stigma in interactions with health workers; and Strategies for coping with stigma. Final Considerations: in the participants’ interactions, stigma produced discrediting pain reports, labeling and stereotyping, blaming patients for not improving their health, discrimination, racism, inadequate pain assessment, and delay in care. Coping included silencing, covering up, aggressive behavior, exposure to risk, reading religious texts and praises, and church attendance.
publishDate 2021
dc.date.none.fl_str_mv 2021-01-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/0034-7167-2020-0831
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Associação Brasileira de Enfermagem
publisher.none.fl_str_mv Associação Brasileira de Enfermagem
dc.source.none.fl_str_mv Revista Brasileira de Enfermagem v.74 n.3 2021
reponame:Revista Brasileira de Enfermagem (Online)
instname:Associação Brasileira de Enfermagem (ABEN)
instacron:ABEN
instname_str Associação Brasileira de Enfermagem (ABEN)
instacron_str ABEN
institution ABEN
reponame_str Revista Brasileira de Enfermagem (Online)
collection Revista Brasileira de Enfermagem (Online)
repository.name.fl_str_mv Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)
repository.mail.fl_str_mv reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br
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