Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Revista Brasileira de Enfermagem (Online) |
Texto Completo: | http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160 |
Resumo: | ABSTRACT Objectives: to analyze the characteristics of stigma in the interactions of people with pain and sickle cell disease and the coping strategies adopted. Methods: qualitative study, conducted in Bahia’s reference units between January and July 2018. In-depth interviews were applied to 25 adults, followed by content analysis and interpretation in light of the Sociological Theory of Stigma. Results: four categories emerged from the data: Stigma in interactions with family members; Stigma in interactions with people in the general public; Stigma in interactions with health workers; and Strategies for coping with stigma. Final Considerations: in the participants’ interactions, stigma produced discrediting pain reports, labeling and stereotyping, blaming patients for not improving their health, discrimination, racism, inadequate pain assessment, and delay in care. Coping included silencing, covering up, aggressive behavior, exposure to risk, reading religious texts and praises, and church attendance. |
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Why does your pain never get better? Stigma and coping mechanism in people with sickle cell diseaseSickle Cell DiseaseSocial StigmaPainNursingSickle Cell AnemiaABSTRACT Objectives: to analyze the characteristics of stigma in the interactions of people with pain and sickle cell disease and the coping strategies adopted. Methods: qualitative study, conducted in Bahia’s reference units between January and July 2018. In-depth interviews were applied to 25 adults, followed by content analysis and interpretation in light of the Sociological Theory of Stigma. Results: four categories emerged from the data: Stigma in interactions with family members; Stigma in interactions with people in the general public; Stigma in interactions with health workers; and Strategies for coping with stigma. Final Considerations: in the participants’ interactions, stigma produced discrediting pain reports, labeling and stereotyping, blaming patients for not improving their health, discrimination, racism, inadequate pain assessment, and delay in care. Coping included silencing, covering up, aggressive behavior, exposure to risk, reading religious texts and praises, and church attendance.Associação Brasileira de Enfermagem2021-01-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160Revista Brasileira de Enfermagem v.74 n.3 2021reponame:Revista Brasileira de Enfermagem (Online)instname:Associação Brasileira de Enfermagem (ABEN)instacron:ABEN10.1590/0034-7167-2020-0831info:eu-repo/semantics/openAccessCarvalho,Evanilda Souza de SantanaCarneiro,Jayanne MoreiraGomes,Aline SilvaFreitas,Katia SantanaJenerette,Coretta Melissaeng2021-06-14T00:00:00Zoai:scielo:S0034-71672021000300160Revistahttp://www.scielo.br/rebenhttps://old.scielo.br/oai/scielo-oai.phpreben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br1984-04460034-7167opendoar:2021-06-14T00:00Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN)false |
dc.title.none.fl_str_mv |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease |
title |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease |
spellingShingle |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease Carvalho,Evanilda Souza de Santana Sickle Cell Disease Social Stigma Pain Nursing Sickle Cell Anemia |
title_short |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease |
title_full |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease |
title_fullStr |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease |
title_full_unstemmed |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease |
title_sort |
Why does your pain never get better? Stigma and coping mechanism in people with sickle cell disease |
author |
Carvalho,Evanilda Souza de Santana |
author_facet |
Carvalho,Evanilda Souza de Santana Carneiro,Jayanne Moreira Gomes,Aline Silva Freitas,Katia Santana Jenerette,Coretta Melissa |
author_role |
author |
author2 |
Carneiro,Jayanne Moreira Gomes,Aline Silva Freitas,Katia Santana Jenerette,Coretta Melissa |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Carvalho,Evanilda Souza de Santana Carneiro,Jayanne Moreira Gomes,Aline Silva Freitas,Katia Santana Jenerette,Coretta Melissa |
dc.subject.por.fl_str_mv |
Sickle Cell Disease Social Stigma Pain Nursing Sickle Cell Anemia |
topic |
Sickle Cell Disease Social Stigma Pain Nursing Sickle Cell Anemia |
description |
ABSTRACT Objectives: to analyze the characteristics of stigma in the interactions of people with pain and sickle cell disease and the coping strategies adopted. Methods: qualitative study, conducted in Bahia’s reference units between January and July 2018. In-depth interviews were applied to 25 adults, followed by content analysis and interpretation in light of the Sociological Theory of Stigma. Results: four categories emerged from the data: Stigma in interactions with family members; Stigma in interactions with people in the general public; Stigma in interactions with health workers; and Strategies for coping with stigma. Final Considerations: in the participants’ interactions, stigma produced discrediting pain reports, labeling and stereotyping, blaming patients for not improving their health, discrimination, racism, inadequate pain assessment, and delay in care. Coping included silencing, covering up, aggressive behavior, exposure to risk, reading religious texts and praises, and church attendance. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-01-01 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160 |
url |
http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672021000300160 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.1590/0034-7167-2020-0831 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
publisher.none.fl_str_mv |
Associação Brasileira de Enfermagem |
dc.source.none.fl_str_mv |
Revista Brasileira de Enfermagem v.74 n.3 2021 reponame:Revista Brasileira de Enfermagem (Online) instname:Associação Brasileira de Enfermagem (ABEN) instacron:ABEN |
instname_str |
Associação Brasileira de Enfermagem (ABEN) |
instacron_str |
ABEN |
institution |
ABEN |
reponame_str |
Revista Brasileira de Enfermagem (Online) |
collection |
Revista Brasileira de Enfermagem (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Enfermagem (Online) - Associação Brasileira de Enfermagem (ABEN) |
repository.mail.fl_str_mv |
reben@abennacional.org.br||telma.garcia@abennacional.org.br|| editorreben@abennacional.org.br |
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1754303039756304384 |