Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care

Detalhes bibliográficos
Autor(a) principal: Araujo,Alexandra P. Q. C.
Data de Publicação: 2018
Outros Autores: Nardes,Flavia, Fortes,Clarisse P. D. D., Pereira,Jaqueline A., Rebel,Marcos F., Dias,Cristina M., Barbosa,Rita de Cassia G. A., Lopes,Mauro V. R., Langer,Ana Lucia, Neves,Flavio R., Reis,Edna Fátima
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Arquivos de neuro-psiquiatria (Online)
Texto Completo: http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2018000700481
Resumo: ABSTRACT Significant advances in the understanding and management of Duchenne muscular dystrophy (DMD) have occurred since the publication of international guidelines for DMD care in 2010. Our objective was to provide an evidence-based national consensus statement for multidisciplinary care of DMD in Brazil. A combination of the Delphi technique with a systematic review of studies from 2010 to 2016 was employed to classify evidence levels and grade of recommendations for the guideline. Our recommendations were divided in two parts. Guideline methodology and overall disease concept descriptions are found in Part 1. Here we present Part 2, where we provide the results and recommendations on rehabilitation and systemic care for DMD.
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spelling Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic caremuscular dystrophy, Duchenneconsensusphysical therapy modalitiesexerciserehabilitationnoninvasive ventilationcognitionquality of lifeorthotic devicesmuscle stretching exercisestracheostomyvital capacityrespiratory function testscardiomyopathiesheart failurenutrition disordersnutritional supportintellectual disabilityABSTRACT Significant advances in the understanding and management of Duchenne muscular dystrophy (DMD) have occurred since the publication of international guidelines for DMD care in 2010. Our objective was to provide an evidence-based national consensus statement for multidisciplinary care of DMD in Brazil. A combination of the Delphi technique with a systematic review of studies from 2010 to 2016 was employed to classify evidence levels and grade of recommendations for the guideline. Our recommendations were divided in two parts. Guideline methodology and overall disease concept descriptions are found in Part 1. Here we present Part 2, where we provide the results and recommendations on rehabilitation and systemic care for DMD.Academia Brasileira de Neurologia - ABNEURO2018-07-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlhttp://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2018000700481Arquivos de Neuro-Psiquiatria v.76 n.7 2018reponame:Arquivos de neuro-psiquiatria (Online)instname:Academia Brasileira de Neurologiainstacron:ABNEURO10.1590/0004-282x20180062info:eu-repo/semantics/openAccessAraujo,Alexandra P. Q. C.Nardes,FlaviaFortes,Clarisse P. D. D.Pereira,Jaqueline A.Rebel,Marcos F.Dias,Cristina M.Barbosa,Rita de Cassia G. A.Lopes,Mauro V. R.Langer,Ana LuciaNeves,Flavio R.Reis,Edna Fátimaeng2018-07-23T00:00:00Zoai:scielo:S0004-282X2018000700481Revistahttp://www.scielo.br/anphttps://old.scielo.br/oai/scielo-oai.php||revista.arquivos@abneuro.org1678-42270004-282Xopendoar:2018-07-23T00:00Arquivos de neuro-psiquiatria (Online) - Academia Brasileira de Neurologiafalse
dc.title.none.fl_str_mv Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
title Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
spellingShingle Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
Araujo,Alexandra P. Q. C.
muscular dystrophy, Duchenne
consensus
physical therapy modalities
exercise
rehabilitation
noninvasive ventilation
cognition
quality of life
orthotic devices
muscle stretching exercises
tracheostomy
vital capacity
respiratory function tests
cardiomyopathies
heart failure
nutrition disorders
nutritional support
intellectual disability
title_short Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
title_full Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
title_fullStr Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
title_full_unstemmed Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
title_sort Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care
author Araujo,Alexandra P. Q. C.
author_facet Araujo,Alexandra P. Q. C.
Nardes,Flavia
Fortes,Clarisse P. D. D.
Pereira,Jaqueline A.
Rebel,Marcos F.
Dias,Cristina M.
Barbosa,Rita de Cassia G. A.
Lopes,Mauro V. R.
Langer,Ana Lucia
Neves,Flavio R.
Reis,Edna Fátima
author_role author
author2 Nardes,Flavia
Fortes,Clarisse P. D. D.
Pereira,Jaqueline A.
Rebel,Marcos F.
Dias,Cristina M.
Barbosa,Rita de Cassia G. A.
Lopes,Mauro V. R.
Langer,Ana Lucia
Neves,Flavio R.
Reis,Edna Fátima
author2_role author
author
author
author
author
author
author
author
author
author
dc.contributor.author.fl_str_mv Araujo,Alexandra P. Q. C.
Nardes,Flavia
Fortes,Clarisse P. D. D.
Pereira,Jaqueline A.
Rebel,Marcos F.
Dias,Cristina M.
Barbosa,Rita de Cassia G. A.
Lopes,Mauro V. R.
Langer,Ana Lucia
Neves,Flavio R.
Reis,Edna Fátima
dc.subject.por.fl_str_mv muscular dystrophy, Duchenne
consensus
physical therapy modalities
exercise
rehabilitation
noninvasive ventilation
cognition
quality of life
orthotic devices
muscle stretching exercises
tracheostomy
vital capacity
respiratory function tests
cardiomyopathies
heart failure
nutrition disorders
nutritional support
intellectual disability
topic muscular dystrophy, Duchenne
consensus
physical therapy modalities
exercise
rehabilitation
noninvasive ventilation
cognition
quality of life
orthotic devices
muscle stretching exercises
tracheostomy
vital capacity
respiratory function tests
cardiomyopathies
heart failure
nutrition disorders
nutritional support
intellectual disability
description ABSTRACT Significant advances in the understanding and management of Duchenne muscular dystrophy (DMD) have occurred since the publication of international guidelines for DMD care in 2010. Our objective was to provide an evidence-based national consensus statement for multidisciplinary care of DMD in Brazil. A combination of the Delphi technique with a systematic review of studies from 2010 to 2016 was employed to classify evidence levels and grade of recommendations for the guideline. Our recommendations were divided in two parts. Guideline methodology and overall disease concept descriptions are found in Part 1. Here we present Part 2, where we provide the results and recommendations on rehabilitation and systemic care for DMD.
publishDate 2018
dc.date.none.fl_str_mv 2018-07-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2018000700481
url http://old.scielo.br/scielo.php?script=sci_arttext&pid=S0004-282X2018000700481
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 10.1590/0004-282x20180062
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
dc.publisher.none.fl_str_mv Academia Brasileira de Neurologia - ABNEURO
publisher.none.fl_str_mv Academia Brasileira de Neurologia - ABNEURO
dc.source.none.fl_str_mv Arquivos de Neuro-Psiquiatria v.76 n.7 2018
reponame:Arquivos de neuro-psiquiatria (Online)
instname:Academia Brasileira de Neurologia
instacron:ABNEURO
instname_str Academia Brasileira de Neurologia
instacron_str ABNEURO
institution ABNEURO
reponame_str Arquivos de neuro-psiquiatria (Online)
collection Arquivos de neuro-psiquiatria (Online)
repository.name.fl_str_mv Arquivos de neuro-psiquiatria (Online) - Academia Brasileira de Neurologia
repository.mail.fl_str_mv ||revista.arquivos@abneuro.org
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