A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional

Detalhes bibliográficos
Autor(a) principal: São Bento, Paulo Alexandre de Souza
Data de Publicação: 2017
Outros Autores: Moreira, Martha Cristina Nunes
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Institucional da FIOCRUZ (ARCA)
Texto Completo: https://www.arca.fiocruz.br/handle/icict/41133
Resumo: P.A.S. São Bento worked on the design, research, methodology and final writing of the manuscript. M.C.N. Moreira worked as counselor and on the final writing.
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spelling São Bento, Paulo Alexandre de SouzaMoreira, Martha Cristina Nunes2020-05-06T13:55:48Z2020-05-06T13:55:48Z2017SAO BENTO, Paulo Alexandre de Souza; MOREIRA, Martha Cristina Nunes. The experience of illness of women with endometriosis: narratives about institutional violence. Ciência & Saúde Coletiva, Rio de Janeiro, v. 22, n. 9, p. 3023-3032, Sept. 2017.1413-8123https://www.arca.fiocruz.br/handle/icict/4113310.1590/1413-81232017229.03472017P.A.S. São Bento worked on the design, research, methodology and final writing of the manuscript. M.C.N. Moreira worked as counselor and on the final writing.Este artigo evoca a centralidade da categoria relacional de gênero para lançar uma luz sobre as narrativas de vida das mulheres com uma doença crônica chamada endometriose. O objetivo é discutir o significado da experiência de adoecimento de mulheres com endometriose na interface com a violência institucional. Com base na referência de Bertaux, no método Narrativas de Vida, vinte mulheres participaram desta pesquisa. Eles foram convidados a partir de dois espaços virtuais de discussão e encontros sobre como viver com endometriose. As entrevistas foram realizadas pessoalmente no circuito dos Estados do Rio de Janeiro, São Paulo e Minas Gerais. Os autores sustentaram a abordagem teórica e abordaram a experiência da doença crônica como um fenômeno sociocultural, leituras metafóricas do problema e críticas à violência institucional. Os resultados identificam situações de violência de gênero / institucional perpetradas em vários ambientes de atenção à mulher. Eles são expressos através da banalização dos discursos das mulheres; tensões usuário-médico, onde o suposto conhecimento leigo aparece como um insulto ao conhecimento biomédico oficial e, principalmente, o difícil acesso a serviços, levando as mulheres a uma peregrinação assistencial e submetendo-se a tipos de assistência não necessariamente baseados nas melhores práticas.This paper conjures up the centrality of the relational category of gender to shed a light on women's life narratives with a chronic disease named endometriosis. It aims to discuss the meaning of the illness experience of women with endometriosis in the interface with institutional violence. Based on Bertaux reference, in the Narratives of Life method, twenty women participated in this research. They were invited from two virtual spaces of discussion and gatherings about living with endometriosis. Interviews were conducted in person in the States of Rio de Janeiro, São Paulo and Minas Gerais circuit. Authors sustained the theoretical approach and addressed the experience of chronic illness as a sociocultural phenomenon, metaphorical readings of the problem and criticism of institutional violence. The results identify situations of gender/institutional violence perpetrated in various women care settings. They are expressed through the trivialization of women's discourses; user-physician tensions, where the supposed lay knowledge appears as an insult to official biomedical knowledge and, mainly, the difficult access to services, leading women to a care pilgrimage and to submit themselves to care types not necessarily based on best practices.Fundação Oswaldo Cruz. Instituto Nacional de Saúde da Mulher, da Criança e do Adolescente Fernandes Figueira. Rio de Janeiro, RJ. Brasil.Fundação Oswaldo Cruz. Instituto Nacional de Saúde da Mulher, da Criança e do Adolescente Fernandes Figueira. Rio de Janeiro, RJ. 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dc.title.pt_BR.fl_str_mv A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
dc.title.alternative.pt_BR.fl_str_mv The experience of illness of women with endometriosis: narratives about institutional violence
title A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
spellingShingle A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
São Bento, Paulo Alexandre de Souza
Adult
Brazil
Chronic Disease
Delivery of Health Care/standards
Endometriosis/psychology
Endometriosis/therapy
Female
Gender-Based Violence/statistics & numerical data
Health Facilities/standards
Health Facilities/statistics & numerical data
Humans
Interviews as Topic Middle Aged Narration
Interviews as Topic
Middle Aged
Narration
Professional-Patient Relations
Violence/statistics & numerical data
Young Adult
Endometriose
Violência
Identidade de gênero
Saúde da mulher
Saúde pública
Endometriosis
Violence
Gender identity
Women health
Public health
title_short A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
title_full A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
title_fullStr A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
title_full_unstemmed A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
title_sort A experiência de adoecimento de mulheres com endometriose: narrativas sobre violência institucional
author São Bento, Paulo Alexandre de Souza
author_facet São Bento, Paulo Alexandre de Souza
Moreira, Martha Cristina Nunes
author_role author
author2 Moreira, Martha Cristina Nunes
author2_role author
dc.contributor.author.fl_str_mv São Bento, Paulo Alexandre de Souza
Moreira, Martha Cristina Nunes
dc.subject.mesh.pt_BR.fl_str_mv Adult
Brazil
Chronic Disease
Delivery of Health Care/standards
Endometriosis/psychology
Endometriosis/therapy
Female
Gender-Based Violence/statistics & numerical data
Health Facilities/standards
Health Facilities/statistics & numerical data
Humans
Interviews as Topic Middle Aged Narration
Interviews as Topic
Middle Aged
Narration
Professional-Patient Relations
Violence/statistics & numerical data
Young Adult
topic Adult
Brazil
Chronic Disease
Delivery of Health Care/standards
Endometriosis/psychology
Endometriosis/therapy
Female
Gender-Based Violence/statistics & numerical data
Health Facilities/standards
Health Facilities/statistics & numerical data
Humans
Interviews as Topic Middle Aged Narration
Interviews as Topic
Middle Aged
Narration
Professional-Patient Relations
Violence/statistics & numerical data
Young Adult
Endometriose
Violência
Identidade de gênero
Saúde da mulher
Saúde pública
Endometriosis
Violence
Gender identity
Women health
Public health
dc.subject.other.pt_BR.fl_str_mv Endometriose
Violência
Identidade de gênero
Saúde da mulher
Saúde pública
dc.subject.en.pt_BR.fl_str_mv Endometriosis
Violence
Gender identity
Women health
Public health
description P.A.S. São Bento worked on the design, research, methodology and final writing of the manuscript. M.C.N. Moreira worked as counselor and on the final writing.
publishDate 2017
dc.date.issued.fl_str_mv 2017
dc.date.accessioned.fl_str_mv 2020-05-06T13:55:48Z
dc.date.available.fl_str_mv 2020-05-06T13:55:48Z
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dc.identifier.citation.fl_str_mv SAO BENTO, Paulo Alexandre de Souza; MOREIRA, Martha Cristina Nunes. The experience of illness of women with endometriosis: narratives about institutional violence. Ciência & Saúde Coletiva, Rio de Janeiro, v. 22, n. 9, p. 3023-3032, Sept. 2017.
dc.identifier.uri.fl_str_mv https://www.arca.fiocruz.br/handle/icict/41133
dc.identifier.issn.pt_BR.fl_str_mv 1413-8123
dc.identifier.doi.none.fl_str_mv 10.1590/1413-81232017229.03472017
identifier_str_mv SAO BENTO, Paulo Alexandre de Souza; MOREIRA, Martha Cristina Nunes. The experience of illness of women with endometriosis: narratives about institutional violence. Ciência & Saúde Coletiva, Rio de Janeiro, v. 22, n. 9, p. 3023-3032, Sept. 2017.
1413-8123
10.1590/1413-81232017229.03472017
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