Protagonism of the child in palliative care and the impact on its safety

• Autor(a) principal: Valete, Cristina Ortiz Sobrinho
• Data de Publicação: 2022
• Outros Autores: Ferreira, Esther Angélica Luiz, Bruno, Cristina Helena
• Tipo de documento: Artigo
• Idioma: por
• Título da fonte: Cadernos Ibero-Americanos de Direito Sanitário (Online)
• Texto Completo: https://www.cadernos.prodisa.fiocruz.br/index.php/cadernos/article/view/927
• topic: Seguridad del Paciente; Niño; Cuidados Paliativos; Atención Dirigida al Paciente; Patient Safety; Child; Palliative Care; Patient-centered Care; Segurança do Paciente; Criança; Cuidados Paliativos; Assistência Centrada no Paciente

Objective: to contribute to the debate on the role of the child in his or her own health process and to highlight the important role of this involvement in pediatric palliative care (PPC) and, thus, in his or her own safety. Methods: this was a narrative review based on a literature search in MEDLINE and SciELO over the past 10 years, with additional input from the authors' experiences and secondary literature. Results: Fourteen articles were included in the narrative synthesis. Analysis of the articles on patient safety in PPC revealed difficulty in practicing PPC, there are gaps in professional education, importance of putting the patient first, shared decision-making, appropriate communication, and safe opioid use. Regarding the child's participation as a protagonist in PPC, concerns were raised about the child's wishes, effective participation in decision making, and objective assessment of the child's competence in this area. Conclusion: many aspects of PPC are consistent with patient safety, such as appropriate communication and the child's participation in his or her own care process. There was greater recognition of the child's autonomy as a patient. Although this topic is normative, many articles are about family-centered care. To reshape this approach, it is important that health care education and research be strengthened.