Microcephaly and family dynamics: fathers’ perceptions of their children’s disability

Detalhes bibliográficos
Autor(a) principal: Vanessa Pereira da Silva Rodrigues Félix
Data de Publicação: 2019
Outros Autores: Aponira Maria de Farias
Tipo de documento: Artigo
Idioma: eng
por
Título da fonte: Cadernos de Saúde Pública
Texto Completo: https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641
Resumo: The family is a key pillar in an individual’s psychological life, influencing behavior patterns, feelings of social belonging, and emotional health. The family structure can be shaken by the arrival of an infant with microcephaly associated with the Zika virus, defined in newborn boys as head circumference less than or equal to 31.9cm and in newborn girls as less than or equal to 31.5cm. The study analyzes the impact of an infant’s diagnosis of microcephaly on the paternal function. Interviews were held with five fathers of children with microcephaly from three communities in rural Paraíba State, Brazil. The instruments were a questionnaire and semi-structured interview that was taped and submitted to thematic and categorial analysis. All five fathers were participating in the routine care of their children, with this involvement “conditioned” by their work as well as by the disability’s severity. Some aspects were common to all five fathers, such as their reaction to the diagnosis and their concerns.
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spelling Microcephaly and family dynamics: fathers’ perceptions of their children’s disabilityMicrocefalia e dinâmica familiar: a percepção do pai frente à deficiência do filhoFamily RelationsFathersZika VirusMicrocephalyRelações FamiliaresPaiZika VírusMicrocefaliaThe family is a key pillar in an individual’s psychological life, influencing behavior patterns, feelings of social belonging, and emotional health. The family structure can be shaken by the arrival of an infant with microcephaly associated with the Zika virus, defined in newborn boys as head circumference less than or equal to 31.9cm and in newborn girls as less than or equal to 31.5cm. The study analyzes the impact of an infant’s diagnosis of microcephaly on the paternal function. Interviews were held with five fathers of children with microcephaly from three communities in rural Paraíba State, Brazil. The instruments were a questionnaire and semi-structured interview that was taped and submitted to thematic and categorial analysis. All five fathers were participating in the routine care of their children, with this involvement “conditioned” by their work as well as by the disability’s severity. Some aspects were common to all five fathers, such as their reaction to the diagnosis and their concerns.La familia es uno de los pilares de la vida psicológica de los individuos, influenciando patrones de comportamiento, sentimiento de pertenencia social y salud psíquica. Esta estructura puede desmoronarse cuando existe un miembro con microcefalia, asociada al virus Zika, que se produce cuando el niño presenta un perímetro cefálico igual o inferior a 31,9cm, y la niña, igual o inferior a 31,5cm. El objetivo de esta investigación es analizar el impacto del diagnóstico de microcefalia del bebé en el desempeño paterno. Para tal fin, se realizaron entrevistas a cinco padres de niños con microcefalia en tres municipios del interior de Paraíba, Brasil. Los instrumentos fueron: cuestionario y entrevista semiestructurada grabada, sometida a un análisis categorial temático. Todos los padres entrevistados participaron en la rutina de los hijos, encontrándose su implicación “condicionada” por el trabajo, así como por el grado de severidad de la discapacidad. Algunos aspectos son comunes como la reacción al diagnóstico y las preocupaciones.A família é um dos pilares da vida psicológica dos indivíduos, influenciando os padrões de comportamento, o sentimento de pertencimento social e a saúde psíquica. Tal estrutura pode ser abalada quando há um membro com microcefalia associada ao Zika vírus, que ocorre quando o menino apresenta perímetro cefálico igual ou inferior a 31,9cm, e a menina, igual ou inferior a 31,5cm. Esta pesquisa visa analisar o impacto do diagnóstico de microcefalia do bebê na função paterna. Para tanto, foram realizadas entrevistas com cinco pais de crianças com microcefalia em três municípios do interior da Paraíba, Brasil. Os instrumentos foram questionário e entrevista semiestruturada gravada, submetida à análise temático-categorial. Todos os pais entrevistados participam da rotina dos filhos, sendo esse envolvimento “condicionado” pelo trabalho, bem como pela severidade da deficiência. Alguns aspectos são comuns, como reação ao diagnóstico e preocupações.Reports in Public HealthCadernos de Saúde Pública2019-01-07info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmltext/htmlapplication/pdfapplication/pdfhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641Reports in Public Health; Vol. 34 No. 12 (2018): DecemberCadernos de Saúde Pública; v. 34 n. 12 (2018): Dezembro1678-44640102-311Xreponame:Cadernos de Saúde Públicainstname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZengporhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14294https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14295https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14296https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14297Vanessa Pereira da Silva Rodrigues FélixAponira Maria de Fariasinfo:eu-repo/semantics/openAccess2024-03-06T15:29:27Zoai:ojs.teste-cadernos.ensp.fiocruz.br:article/6641Revistahttps://cadernos.ensp.fiocruz.br/ojs/index.php/csphttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/oaicadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br1678-44640102-311Xopendoar:2024-03-06T13:07:36.254572Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)true
dc.title.none.fl_str_mv Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
Microcefalia e dinâmica familiar: a percepção do pai frente à deficiência do filho
title Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
spellingShingle Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
Vanessa Pereira da Silva Rodrigues Félix
Family Relations
Fathers
Zika Virus
Microcephaly
Relações Familiares
Pai
Zika Vírus
Microcefalia
title_short Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
title_full Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
title_fullStr Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
title_full_unstemmed Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
title_sort Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
author Vanessa Pereira da Silva Rodrigues Félix
author_facet Vanessa Pereira da Silva Rodrigues Félix
Aponira Maria de Farias
author_role author
author2 Aponira Maria de Farias
author2_role author
dc.contributor.author.fl_str_mv Vanessa Pereira da Silva Rodrigues Félix
Aponira Maria de Farias
dc.subject.por.fl_str_mv Family Relations
Fathers
Zika Virus
Microcephaly
Relações Familiares
Pai
Zika Vírus
Microcefalia
topic Family Relations
Fathers
Zika Virus
Microcephaly
Relações Familiares
Pai
Zika Vírus
Microcefalia
description The family is a key pillar in an individual’s psychological life, influencing behavior patterns, feelings of social belonging, and emotional health. The family structure can be shaken by the arrival of an infant with microcephaly associated with the Zika virus, defined in newborn boys as head circumference less than or equal to 31.9cm and in newborn girls as less than or equal to 31.5cm. The study analyzes the impact of an infant’s diagnosis of microcephaly on the paternal function. Interviews were held with five fathers of children with microcephaly from three communities in rural Paraíba State, Brazil. The instruments were a questionnaire and semi-structured interview that was taped and submitted to thematic and categorial analysis. All five fathers were participating in the routine care of their children, with this involvement “conditioned” by their work as well as by the disability’s severity. Some aspects were common to all five fathers, such as their reaction to the diagnosis and their concerns.
publishDate 2019
dc.date.none.fl_str_mv 2019-01-07
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
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dc.identifier.uri.fl_str_mv https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641
url https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641
dc.language.iso.fl_str_mv eng
por
language eng
por
dc.relation.none.fl_str_mv https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14294
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14295
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14296
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14297
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dc.format.none.fl_str_mv text/html
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application/pdf
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dc.publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
dc.source.none.fl_str_mv Reports in Public Health; Vol. 34 No. 12 (2018): December
Cadernos de Saúde Pública; v. 34 n. 12 (2018): Dezembro
1678-4464
0102-311X
reponame:Cadernos de Saúde Pública
instname:Fundação Oswaldo Cruz (FIOCRUZ)
instacron:FIOCRUZ
instname_str Fundação Oswaldo Cruz (FIOCRUZ)
instacron_str FIOCRUZ
institution FIOCRUZ
reponame_str Cadernos de Saúde Pública
collection Cadernos de Saúde Pública
repository.name.fl_str_mv Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)
repository.mail.fl_str_mv cadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br
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