Microcephaly and family dynamics: fathers’ perceptions of their children’s disability
Autor(a) principal: | |
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Data de Publicação: | 2019 |
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Tipo de documento: | Artigo |
Idioma: | eng por |
Título da fonte: | Cadernos de Saúde Pública |
Texto Completo: | https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641 |
Resumo: | The family is a key pillar in an individual’s psychological life, influencing behavior patterns, feelings of social belonging, and emotional health. The family structure can be shaken by the arrival of an infant with microcephaly associated with the Zika virus, defined in newborn boys as head circumference less than or equal to 31.9cm and in newborn girls as less than or equal to 31.5cm. The study analyzes the impact of an infant’s diagnosis of microcephaly on the paternal function. Interviews were held with five fathers of children with microcephaly from three communities in rural Paraíba State, Brazil. The instruments were a questionnaire and semi-structured interview that was taped and submitted to thematic and categorial analysis. All five fathers were participating in the routine care of their children, with this involvement “conditioned” by their work as well as by the disability’s severity. Some aspects were common to all five fathers, such as their reaction to the diagnosis and their concerns. |
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Microcephaly and family dynamics: fathers’ perceptions of their children’s disabilityMicrocefalia e dinâmica familiar: a percepção do pai frente à deficiência do filhoFamily RelationsFathersZika VirusMicrocephalyRelações FamiliaresPaiZika VírusMicrocefaliaThe family is a key pillar in an individual’s psychological life, influencing behavior patterns, feelings of social belonging, and emotional health. The family structure can be shaken by the arrival of an infant with microcephaly associated with the Zika virus, defined in newborn boys as head circumference less than or equal to 31.9cm and in newborn girls as less than or equal to 31.5cm. The study analyzes the impact of an infant’s diagnosis of microcephaly on the paternal function. Interviews were held with five fathers of children with microcephaly from three communities in rural Paraíba State, Brazil. The instruments were a questionnaire and semi-structured interview that was taped and submitted to thematic and categorial analysis. All five fathers were participating in the routine care of their children, with this involvement “conditioned” by their work as well as by the disability’s severity. Some aspects were common to all five fathers, such as their reaction to the diagnosis and their concerns.La familia es uno de los pilares de la vida psicológica de los individuos, influenciando patrones de comportamiento, sentimiento de pertenencia social y salud psíquica. Esta estructura puede desmoronarse cuando existe un miembro con microcefalia, asociada al virus Zika, que se produce cuando el niño presenta un perímetro cefálico igual o inferior a 31,9cm, y la niña, igual o inferior a 31,5cm. El objetivo de esta investigación es analizar el impacto del diagnóstico de microcefalia del bebé en el desempeño paterno. Para tal fin, se realizaron entrevistas a cinco padres de niños con microcefalia en tres municipios del interior de Paraíba, Brasil. Los instrumentos fueron: cuestionario y entrevista semiestructurada grabada, sometida a un análisis categorial temático. Todos los padres entrevistados participaron en la rutina de los hijos, encontrándose su implicación “condicionada” por el trabajo, así como por el grado de severidad de la discapacidad. Algunos aspectos son comunes como la reacción al diagnóstico y las preocupaciones.A família é um dos pilares da vida psicológica dos indivíduos, influenciando os padrões de comportamento, o sentimento de pertencimento social e a saúde psíquica. Tal estrutura pode ser abalada quando há um membro com microcefalia associada ao Zika vírus, que ocorre quando o menino apresenta perímetro cefálico igual ou inferior a 31,9cm, e a menina, igual ou inferior a 31,5cm. Esta pesquisa visa analisar o impacto do diagnóstico de microcefalia do bebê na função paterna. Para tanto, foram realizadas entrevistas com cinco pais de crianças com microcefalia em três municípios do interior da Paraíba, Brasil. Os instrumentos foram questionário e entrevista semiestruturada gravada, submetida à análise temático-categorial. Todos os pais entrevistados participam da rotina dos filhos, sendo esse envolvimento “condicionado” pelo trabalho, bem como pela severidade da deficiência. Alguns aspectos são comuns, como reação ao diagnóstico e preocupações.Reports in Public HealthCadernos de Saúde Pública2019-01-07info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmltext/htmlapplication/pdfapplication/pdfhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641Reports in Public Health; Vol. 34 No. 12 (2018): DecemberCadernos de Saúde Pública; v. 34 n. 12 (2018): Dezembro1678-44640102-311Xreponame:Cadernos de Saúde Públicainstname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZengporhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14294https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14295https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14296https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14297Vanessa Pereira da Silva Rodrigues FélixAponira Maria de Fariasinfo:eu-repo/semantics/openAccess2024-03-06T15:29:27Zoai:ojs.teste-cadernos.ensp.fiocruz.br:article/6641Revistahttps://cadernos.ensp.fiocruz.br/ojs/index.php/csphttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/oaicadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br1678-44640102-311Xopendoar:2024-03-06T13:07:36.254572Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)true |
dc.title.none.fl_str_mv |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability Microcefalia e dinâmica familiar: a percepção do pai frente à deficiência do filho |
title |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability |
spellingShingle |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability Vanessa Pereira da Silva Rodrigues Félix Family Relations Fathers Zika Virus Microcephaly Relações Familiares Pai Zika Vírus Microcefalia |
title_short |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability |
title_full |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability |
title_fullStr |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability |
title_full_unstemmed |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability |
title_sort |
Microcephaly and family dynamics: fathers’ perceptions of their children’s disability |
author |
Vanessa Pereira da Silva Rodrigues Félix |
author_facet |
Vanessa Pereira da Silva Rodrigues Félix Aponira Maria de Farias |
author_role |
author |
author2 |
Aponira Maria de Farias |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Vanessa Pereira da Silva Rodrigues Félix Aponira Maria de Farias |
dc.subject.por.fl_str_mv |
Family Relations Fathers Zika Virus Microcephaly Relações Familiares Pai Zika Vírus Microcefalia |
topic |
Family Relations Fathers Zika Virus Microcephaly Relações Familiares Pai Zika Vírus Microcefalia |
description |
The family is a key pillar in an individual’s psychological life, influencing behavior patterns, feelings of social belonging, and emotional health. The family structure can be shaken by the arrival of an infant with microcephaly associated with the Zika virus, defined in newborn boys as head circumference less than or equal to 31.9cm and in newborn girls as less than or equal to 31.5cm. The study analyzes the impact of an infant’s diagnosis of microcephaly on the paternal function. Interviews were held with five fathers of children with microcephaly from three communities in rural Paraíba State, Brazil. The instruments were a questionnaire and semi-structured interview that was taped and submitted to thematic and categorial analysis. All five fathers were participating in the routine care of their children, with this involvement “conditioned” by their work as well as by the disability’s severity. Some aspects were common to all five fathers, such as their reaction to the diagnosis and their concerns. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-01-07 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641 |
url |
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641 |
dc.language.iso.fl_str_mv |
eng por |
language |
eng por |
dc.relation.none.fl_str_mv |
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14294 https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14295 https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14296 https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6641/14297 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html text/html application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Reports in Public Health Cadernos de Saúde Pública |
publisher.none.fl_str_mv |
Reports in Public Health Cadernos de Saúde Pública |
dc.source.none.fl_str_mv |
Reports in Public Health; Vol. 34 No. 12 (2018): December Cadernos de Saúde Pública; v. 34 n. 12 (2018): Dezembro 1678-4464 0102-311X reponame:Cadernos de Saúde Pública instname:Fundação Oswaldo Cruz (FIOCRUZ) instacron:FIOCRUZ |
instname_str |
Fundação Oswaldo Cruz (FIOCRUZ) |
instacron_str |
FIOCRUZ |
institution |
FIOCRUZ |
reponame_str |
Cadernos de Saúde Pública |
collection |
Cadernos de Saúde Pública |
repository.name.fl_str_mv |
Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ) |
repository.mail.fl_str_mv |
cadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br |
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1821325562781630464 |