When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System

Detalhes bibliográficos
Autor(a) principal: Martha Cristina Nunes Moreira
Data de Publicação: 2018
Outros Autores: Marcos Antonio Ferreira do Nascimento, Dafne Dain Gandelman Horovitz, Antilia Januaria Martins, Marcia Pinto
Tipo de documento: Artigo
Idioma: eng
por
Título da fonte: Cadernos de Saúde Pública
Texto Completo: https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703
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spelling When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health SystemQuando ser raro se torna um valor: o ativismo político por direitos das pessoas com doenças raras no Sistema Único de SaúdeReports in Public HealthCadernos de Saúde Pública2018-02-05info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmltext/htmlapplication/pdfapplication/pdfhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703Reports in Public Health; Vol. 34 No. 1 (2018): JanuaryCadernos de Saúde Pública; v. 34 n. 1 (2018): Janeiro1678-44640102-311Xreponame:Cadernos de Saúde Públicainstname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZengporhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14446https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14447https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14448https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14449Martha Cristina Nunes MoreiraMarcos Antonio Ferreira do NascimentoDafne Dain Gandelman HorovitzAntilia Januaria MartinsMarcia Pintoinfo:eu-repo/semantics/openAccess2024-03-06T15:29:30Zoai:ojs.teste-cadernos.ensp.fiocruz.br:article/6703Revistahttps://cadernos.ensp.fiocruz.br/ojs/index.php/csphttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/oaicadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br1678-44640102-311Xopendoar:2024-03-06T13:07:40.195141Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)true
dc.title.none.fl_str_mv When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
Quando ser raro se torna um valor: o ativismo político por direitos das pessoas com doenças raras no Sistema Único de Saúde
title When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
spellingShingle When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
Martha Cristina Nunes Moreira
title_short When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
title_full When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
title_fullStr When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
title_full_unstemmed When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
title_sort When rarity is an asset: political activism for the rights of persons with rare diseases in the Brazilian Unified National Health System
author Martha Cristina Nunes Moreira
author_facet Martha Cristina Nunes Moreira
Marcos Antonio Ferreira do Nascimento
Dafne Dain Gandelman Horovitz
Antilia Januaria Martins
Marcia Pinto
author_role author
author2 Marcos Antonio Ferreira do Nascimento
Dafne Dain Gandelman Horovitz
Antilia Januaria Martins
Marcia Pinto
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Martha Cristina Nunes Moreira
Marcos Antonio Ferreira do Nascimento
Dafne Dain Gandelman Horovitz
Antilia Januaria Martins
Marcia Pinto
publishDate 2018
dc.date.none.fl_str_mv 2018-02-05
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703
url https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703
dc.language.iso.fl_str_mv eng
por
language eng
por
dc.relation.none.fl_str_mv https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14446
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14447
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14448
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/6703/14449
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
text/html
application/pdf
application/pdf
dc.publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
dc.source.none.fl_str_mv Reports in Public Health; Vol. 34 No. 1 (2018): January
Cadernos de Saúde Pública; v. 34 n. 1 (2018): Janeiro
1678-4464
0102-311X
reponame:Cadernos de Saúde Pública
instname:Fundação Oswaldo Cruz (FIOCRUZ)
instacron:FIOCRUZ
instname_str Fundação Oswaldo Cruz (FIOCRUZ)
instacron_str FIOCRUZ
institution FIOCRUZ
reponame_str Cadernos de Saúde Pública
collection Cadernos de Saúde Pública
repository.name.fl_str_mv Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)
repository.mail.fl_str_mv cadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br
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