Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation

Detalhes bibliográficos
Autor(a) principal: Juliana Maria de Sousa Pinto
Data de Publicação: 2014
Outros Autores: Ana Martín-Nogueras, Marilyn Nations
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Cadernos de Saúde Pública
Texto Completo: https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568
Resumo: This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation as perceived by patients with chronic obstructive pulmonary disease (COPD) and their rationale for improvements in health. 23 patients participated in a daily, three-month home-based pulmonary rehabilitation. A pre-post self-perceived assessment of efficacy was conducted. Semi-structured interviews, illness narratives and participant-observation provided a “dense description” of patients' lived-experience before and after the program. Interviews and narratives were tape-recorded, transcribed and coded. Qualitative data was subjected to “thematic content analysis” and “contextualized semantic interpretation”. Patients compare functional status before and after falling ill, experience loss, stigma and depression, describe health improvements and judge the pulmonary rehabilitation’s efficacy. Giving voice to chronically-ill patients, as individuals, is needed. To reduce clinical conflicts, health professionals should encourage illness narratives and value their patients’ lived-experience.
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spelling Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitationChronic Obstructive Pulmonary DiseaseRehabilitationHome NursingQualitative ResearchThis qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation as perceived by patients with chronic obstructive pulmonary disease (COPD) and their rationale for improvements in health. 23 patients participated in a daily, three-month home-based pulmonary rehabilitation. A pre-post self-perceived assessment of efficacy was conducted. Semi-structured interviews, illness narratives and participant-observation provided a “dense description” of patients' lived-experience before and after the program. Interviews and narratives were tape-recorded, transcribed and coded. Qualitative data was subjected to “thematic content analysis” and “contextualized semantic interpretation”. Patients compare functional status before and after falling ill, experience loss, stigma and depression, describe health improvements and judge the pulmonary rehabilitation’s efficacy. Giving voice to chronically-ill patients, as individuals, is needed. To reduce clinical conflicts, health professionals should encourage illness narratives and value their patients’ lived-experience.Este estudio explora las experiencias con la enfermedad, la eficacia de la rehabilitación respiratoria percibida por los pacientes con enfermedad pulmonar obstructiva crónica (EPOC) y su racionalidad para la mejoría en salud. Veintitrés pacientes participaron en un programa de rehabilitación respiratoria domiciliaria durante tres meses. Fue realizada una pre- y pos- evaluación auto-percibida de la eficacia del programa. Entrevistas semiestructuradas, relatos sobre la enfermedad y una observación participativa proporcionaron una “descripción densa” de la experiencia vivida por los pacientes antes y después del programa. Las entrevistas y relatos fueron grabados, trascritos y codificados. Los datos cualitativos fueron sometidos a un “análisis temático de contenido” e “interpretación semántica contextual”. Los pacientes compararon su estado funcional antes y después de la enfermedad, la experiencia perdida, el estigma y la depresión, describen mejorías en la salud y juzgan la eficacia del programa. Es necesario dar voz a los pacientes crónicos en este sentido.Este estudo qualitativo explora as experiências com a enfermidade, a eficácia da reabilitação pulmonar percebida por pacientes com doença pulmonar obstrutiva crônica (DPOC) e sua racionalidade sobre a melhora da saúde. Vinte e três pacientes participaram de um programa de reabilitação pulmonar de três meses, diário, em domicilio. Foi realizada uma pré e pós-avaliação de sua eficácia. Entrevistas semiestruturadas, narrativas de enfermidade e observação participante forneceram uma “descrição densa” da experiência vivida pelos pacientes antes e depois do programa. As entrevistas e narrativas foram gravadas, transcritas e codificadas. Os dados qualitativos foram submetidos à “análise temática de conteúdo” e “interpretação semântica contextualizada”. Os pacientes comparam o seu estado funcional antes e depois da doença, a experiência perdida, o estigma e a depressão, descrevem a melhora da saúde e julgam a eficácia da reabilitação pulmonar. É necessário dar voz aos pacientes crônicos como pessoas. Os profissionais de saúde devem obter narrativas da enfermidade e valorizar suas experiências de vida.Reports in Public HealthCadernos de Saúde Pública2014-06-01info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersiontext/htmlapplication/pdfhttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568Reports in Public Health; Vol. 30 No. 6 (2014): JuneCadernos de Saúde Pública; v. 30 n. 6 (2014): Junho1678-44640102-311Xreponame:Cadernos de Saúde Públicainstname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZenghttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568/11538https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568/11539Juliana Maria de Sousa PintoAna Martín-NoguerasMarilyn Nationsinfo:eu-repo/semantics/openAccess2024-03-06T15:28:47Zoai:ojs.teste-cadernos.ensp.fiocruz.br:article/5568Revistahttps://cadernos.ensp.fiocruz.br/ojs/index.php/csphttps://cadernos.ensp.fiocruz.br/ojs/index.php/csp/oaicadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br1678-44640102-311Xopendoar:2024-03-06T13:06:23.241715Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)true
dc.title.none.fl_str_mv Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
title Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
spellingShingle Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
Juliana Maria de Sousa Pinto
Chronic Obstructive Pulmonary Disease
Rehabilitation
Home Nursing
Qualitative Research
title_short Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
title_full Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
title_fullStr Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
title_full_unstemmed Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
title_sort Illness experiences of persons with chronic obstructive pulmonary disease: self-perceived efficacy of home-based pulmonary rehabilitation
author Juliana Maria de Sousa Pinto
author_facet Juliana Maria de Sousa Pinto
Ana Martín-Nogueras
Marilyn Nations
author_role author
author2 Ana Martín-Nogueras
Marilyn Nations
author2_role author
author
dc.contributor.author.fl_str_mv Juliana Maria de Sousa Pinto
Ana Martín-Nogueras
Marilyn Nations
dc.subject.por.fl_str_mv Chronic Obstructive Pulmonary Disease
Rehabilitation
Home Nursing
Qualitative Research
topic Chronic Obstructive Pulmonary Disease
Rehabilitation
Home Nursing
Qualitative Research
description This qualitative study explores the illness experiences, the efficacy of pulmonary rehabilitation as perceived by patients with chronic obstructive pulmonary disease (COPD) and their rationale for improvements in health. 23 patients participated in a daily, three-month home-based pulmonary rehabilitation. A pre-post self-perceived assessment of efficacy was conducted. Semi-structured interviews, illness narratives and participant-observation provided a “dense description” of patients' lived-experience before and after the program. Interviews and narratives were tape-recorded, transcribed and coded. Qualitative data was subjected to “thematic content analysis” and “contextualized semantic interpretation”. Patients compare functional status before and after falling ill, experience loss, stigma and depression, describe health improvements and judge the pulmonary rehabilitation’s efficacy. Giving voice to chronically-ill patients, as individuals, is needed. To reduce clinical conflicts, health professionals should encourage illness narratives and value their patients’ lived-experience.
publishDate 2014
dc.date.none.fl_str_mv 2014-06-01
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568
url https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568/11538
https://cadernos.ensp.fiocruz.br/ojs/index.php/csp/article/view/5568/11539
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv text/html
application/pdf
dc.publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
publisher.none.fl_str_mv Reports in Public Health
Cadernos de Saúde Pública
dc.source.none.fl_str_mv Reports in Public Health; Vol. 30 No. 6 (2014): June
Cadernos de Saúde Pública; v. 30 n. 6 (2014): Junho
1678-4464
0102-311X
reponame:Cadernos de Saúde Pública
instname:Fundação Oswaldo Cruz (FIOCRUZ)
instacron:FIOCRUZ
instname_str Fundação Oswaldo Cruz (FIOCRUZ)
instacron_str FIOCRUZ
institution FIOCRUZ
reponame_str Cadernos de Saúde Pública
collection Cadernos de Saúde Pública
repository.name.fl_str_mv Cadernos de Saúde Pública - Fundação Oswaldo Cruz (FIOCRUZ)
repository.mail.fl_str_mv cadernos@ensp.fiocruz.br||cadernos@ensp.fiocruz.br
_version_ 1798943376969564160

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