Health data and global power inequalities: challenging the world data order
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | RECIIS (Online) |
Texto Completo: | https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/2243 |
Resumo: | Today’s global media infrastructures involve not just media, but the continual extraction and circulation of data across digital platforms, with health data being an important data domain. The extraction and use of health data raises particular human rights issues. This paper reviews, fist, the basic risks to individuals from unconstrained collection, use and transfer of their personal health data; second, the implications of the fast-growing health data sector for social power generally; and third, the wider implications if current trends related to commercial exploitation of personal health data are not interrupted. A new global debate is needed to address these trends and their basis in a highly unequal political economy which benefis the same countries that profied from historical colonialism. We articulate here — in new ways — the challenges addressed by the 1980 MacBride Report, but for a very differently confiured world. |
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Health data and global power inequalities: challenging the world data orderDatos de salud y desigualdades de poder global: desafiando el orden mundial de datosHealth data and global power inequalities: challenging the world data orderHealth dataHealth-related dataSocial externalitiesPowerHuman rights.Datos de saludDatos relacionados con la saludExternalidades socialesPoderDerechos humanosHealth dataHealth-related dataSocial externalitiesPowerHuman rights.Today’s global media infrastructures involve not just media, but the continual extraction and circulation of data across digital platforms, with health data being an important data domain. The extraction and use of health data raises particular human rights issues. This paper reviews, fist, the basic risks to individuals from unconstrained collection, use and transfer of their personal health data; second, the implications of the fast-growing health data sector for social power generally; and third, the wider implications if current trends related to commercial exploitation of personal health data are not interrupted. A new global debate is needed to address these trends and their basis in a highly unequal political economy which benefis the same countries that profied from historical colonialism. We articulate here — in new ways — the challenges addressed by the 1980 MacBride Report, but for a very differently confiured world.Las infraestructuras de medios globales de hoy en día involucran no solo a los medios sino también a la extracción y circulación continua de datos a través de plataformas digitales y los datos de salud son un dominio de datos importante. La extracción y el uso de datos de salud coloca problemas particulares de derechos humanos. Este artículo revisa, en primer lugar, los riesgos básicos de las personas con la recopilación, el uso y la transferencia sin restricciones de sus datos personales de salud; en segundo lugar, las implicaciones del sector de datos de salud en rápido crecimiento para el poder social en general; y tercero, las implicaciones más amplias si no se interrumpen las tendencias actuales relacionadas con la explotación comercial de datos personales de salud. Es necesario un nuevo debate global para abordar estas tendencias y sus bases en una economía política altamente desigual que benefiia a los mismos países que se beneficiaron del colonialismo histórico. Aquí, articulamos – de nuevas maneras - los desafíos abordados por el Informe MacBride de 1980, pero para un mundo confiurado de manera muy diferente.Today’s global media infrastructures involve not just media, but the continual extraction and circulation of data across digital platforms, with health data being an important data domain. The extraction and use of health data raises particular human rights issues. This paper reviews, fist, the basic risks to individuals from unconstrained collection, use and transfer of their personal health data; second, the implications of the fast-growing health data sector for social power generally; and third, the wider implications if current trends related to commercial exploitation of personal health data are not interrupted. A new global debate is needed to address these trends and their basis in a highly unequal political economy which benefis the same countries that profied from historical colonialism. We articulate here — in new ways — the challenges addressed by the 1980 MacBride Report, but for a very differently confiured world.Instituto de Comunicação e Informação Científica e Tecnológica em Saúde (Icict/Fiocruz)2020-12-17info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigo de convidadoapplication/pdfhttps://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/224310.29397/reciis.v14i4.2243Revista Eletrônica de Comunicação, Informação & Inovação em Saúde; Vol. 14 No. 4 (2020): Dossiê Comunicação, Saúde e Crises GlobaisRevista Eletrônica de Comunicação, Informação e Inovação em Saúde; Vol. 14 Núm. 4 (2020): Dossiê Comunicação, Saúde e Crises GlobaisRevue de la Communication, de l'Information et de l'Innovation en santé; Vol. 14 No 4 (2020): Dossiê Comunicação, Saúde e Crises GlobaisRevista Eletrônica de Comunicação, Informação & Inovação em Saúde; v. 14 n. 4 (2020): Dossiê Comunicação, Saúde e Crises Globais1981-6278reponame:RECIIS (Online)instname:Fundação Oswaldo Cruz (FIOCRUZ)instacron:FIOCRUZenghttps://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/2243/2395Couldry, NickMejías, Ulises Aliinfo:eu-repo/semantics/openAccess2020-12-17T15:01:57Zoai:www.reciis.icict.fiocruz.br:article/2243Revistahttps://www.reciis.icict.fiocruz.br/index.php/reciishttps://www.reciis.icict.fiocruz.br/index.php/reciis/oaireciis@icict.fiocruz.br1981-62781981-6278opendoar:2020-12-17T15:01:57RECIIS (Online) - Fundação Oswaldo Cruz (FIOCRUZ)false |
dc.title.none.fl_str_mv |
Health data and global power inequalities: challenging the world data order Datos de salud y desigualdades de poder global: desafiando el orden mundial de datos Health data and global power inequalities: challenging the world data order |
title |
Health data and global power inequalities: challenging the world data order |
spellingShingle |
Health data and global power inequalities: challenging the world data order Couldry, Nick Health data Health-related data Social externalities Power Human rights. Datos de salud Datos relacionados con la salud Externalidades sociales Poder Derechos humanos Health data Health-related data Social externalities Power Human rights. |
title_short |
Health data and global power inequalities: challenging the world data order |
title_full |
Health data and global power inequalities: challenging the world data order |
title_fullStr |
Health data and global power inequalities: challenging the world data order |
title_full_unstemmed |
Health data and global power inequalities: challenging the world data order |
title_sort |
Health data and global power inequalities: challenging the world data order |
author |
Couldry, Nick |
author_facet |
Couldry, Nick Mejías, Ulises Ali |
author_role |
author |
author2 |
Mejías, Ulises Ali |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Couldry, Nick Mejías, Ulises Ali |
dc.subject.por.fl_str_mv |
Health data Health-related data Social externalities Power Human rights. Datos de salud Datos relacionados con la salud Externalidades sociales Poder Derechos humanos Health data Health-related data Social externalities Power Human rights. |
topic |
Health data Health-related data Social externalities Power Human rights. Datos de salud Datos relacionados con la salud Externalidades sociales Poder Derechos humanos Health data Health-related data Social externalities Power Human rights. |
description |
Today’s global media infrastructures involve not just media, but the continual extraction and circulation of data across digital platforms, with health data being an important data domain. The extraction and use of health data raises particular human rights issues. This paper reviews, fist, the basic risks to individuals from unconstrained collection, use and transfer of their personal health data; second, the implications of the fast-growing health data sector for social power generally; and third, the wider implications if current trends related to commercial exploitation of personal health data are not interrupted. A new global debate is needed to address these trends and their basis in a highly unequal political economy which benefis the same countries that profied from historical colonialism. We articulate here — in new ways — the challenges addressed by the 1980 MacBride Report, but for a very differently confiured world. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-12-17 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigo de convidado |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/2243 10.29397/reciis.v14i4.2243 |
url |
https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/2243 |
identifier_str_mv |
10.29397/reciis.v14i4.2243 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
https://www.reciis.icict.fiocruz.br/index.php/reciis/article/view/2243/2395 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Instituto de Comunicação e Informação Científica e Tecnológica em Saúde (Icict/Fiocruz) |
publisher.none.fl_str_mv |
Instituto de Comunicação e Informação Científica e Tecnológica em Saúde (Icict/Fiocruz) |
dc.source.none.fl_str_mv |
Revista Eletrônica de Comunicação, Informação & Inovação em Saúde; Vol. 14 No. 4 (2020): Dossiê Comunicação, Saúde e Crises Globais Revista Eletrônica de Comunicação, Informação e Inovação em Saúde; Vol. 14 Núm. 4 (2020): Dossiê Comunicação, Saúde e Crises Globais Revue de la Communication, de l'Information et de l'Innovation en santé; Vol. 14 No 4 (2020): Dossiê Comunicação, Saúde e Crises Globais Revista Eletrônica de Comunicação, Informação & Inovação em Saúde; v. 14 n. 4 (2020): Dossiê Comunicação, Saúde e Crises Globais 1981-6278 reponame:RECIIS (Online) instname:Fundação Oswaldo Cruz (FIOCRUZ) instacron:FIOCRUZ |
instname_str |
Fundação Oswaldo Cruz (FIOCRUZ) |
instacron_str |
FIOCRUZ |
institution |
FIOCRUZ |
reponame_str |
RECIIS (Online) |
collection |
RECIIS (Online) |
repository.name.fl_str_mv |
RECIIS (Online) - Fundação Oswaldo Cruz (FIOCRUZ) |
repository.mail.fl_str_mv |
reciis@icict.fiocruz.br |
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1798942467464101888 |