SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Health and Society |
Texto Completo: | https://www.periodicojs.com.br/index.php/hs/article/view/1010 |
Resumo: | Aiming at the importance of the nurse in the different directions and health care, studies point out the daily challenge of nursing professionals in relation to the importance of considering genetic aspects and in the care of patients with rare genetic diseases, such as Progressive Ossificans Fibrodysplasia (FOP) which is a rare genetic disease that stimulates the formation of bones inside the muscles, tendons, ligaments and other connective tissues progressively restricting movements, causing too much nursing care. This study aims to broaden the nurses’ knowledge about Fibrodysplasia Ossificante Progressiva (FOP), in addition to reporting the main difficulties in the care of patients with FOP; and discussing the importance of appropriate care for the carrier of this rare genetic disease by drawing up a qualified care plan. It is a research of the type bibliographic research of explanatory-descriptive character with qualitative approach, based on bibliographical reviews. According to the material analyzed, it is observed the importance of nurses’ knowledge regarding the disease and its respective treatments and types of care, and for this it is necessary that they have an adequate basis from a knowledge directed through courses, qualifications, lectures and qualified theoretical background. Consequently, in order to perform good care, nurses should guide their team about the best way to assist the patient, making it clear that there is a great challenge when it comes to the unusual, in order to show that it is possible to guarantee correct assistance for these patients. |
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SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANSFibrodysplasia Ossificans. Rare genetic disease. Nursing. Assistance.Aiming at the importance of the nurse in the different directions and health care, studies point out the daily challenge of nursing professionals in relation to the importance of considering genetic aspects and in the care of patients with rare genetic diseases, such as Progressive Ossificans Fibrodysplasia (FOP) which is a rare genetic disease that stimulates the formation of bones inside the muscles, tendons, ligaments and other connective tissues progressively restricting movements, causing too much nursing care. This study aims to broaden the nurses’ knowledge about Fibrodysplasia Ossificante Progressiva (FOP), in addition to reporting the main difficulties in the care of patients with FOP; and discussing the importance of appropriate care for the carrier of this rare genetic disease by drawing up a qualified care plan. It is a research of the type bibliographic research of explanatory-descriptive character with qualitative approach, based on bibliographical reviews. According to the material analyzed, it is observed the importance of nurses’ knowledge regarding the disease and its respective treatments and types of care, and for this it is necessary that they have an adequate basis from a knowledge directed through courses, qualifications, lectures and qualified theoretical background. Consequently, in order to perform good care, nurses should guide their team about the best way to assist the patient, making it clear that there is a great challenge when it comes to the unusual, in order to show that it is possible to guarantee correct assistance for these patients.Editora Acadêmica Periodicojs2022-11-29info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://www.periodicojs.com.br/index.php/hs/article/view/101010.51249/hs.v2i02.1010Health and Society; Vol. 2 No. 02 (2022): Supplementary Edition; 135 - 165Health and Society; v. 2 n. 02 (2022): Edição Suplementar; 135 - 1652763-572410.51249/hs.v2i02reponame:Health and Societyinstname:Instituto de Ensino e Pesquisa Periodicojsinstacron:IEPPporhttps://www.periodicojs.com.br/index.php/hs/article/view/1010/833Copyright (c) 2022 Izabelle Salviano de Vasconcelos, Maria Carolina Salustino dos Santos, Karelline Izaltemberg Rosenstock, Eclésia de Oliveira Souza, Rosany Casado de Freitas Silva, Talita Costa Soares Silva, Walissioneide da Silva Caldas, Wanessa de Araújo Evangelista, Arunna Thallyta Alexandre de Ponteshttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessSalviano de Vasconcelos, Izabelle Carolina Salustino dos Santos, Maria Izaltemberg Rosenstock, Karelline de Oliveira Souza, Eclésia Casado de Freitas Silva, Rosany Costa Soares Silva, Talita da Silva Caldas, Walissioneidede Araújo Evangelista, Wanessa Thallyta Alexandre de Pontes, Arunna 2022-11-30T10:56:23Zoai:ojs.pkp.sfu.ca:article/1010Revistahttps://www.periodicojs.com.br/index.php/hs/PRIhttps://www.periodicojs.com.br/index.php/hs/oaijournalofhealthandsociety@gmail.com || periodicojs@gmail.com2763-57242763-5724opendoar:2022-11-30T10:56:23Health and Society - Instituto de Ensino e Pesquisa Periodicojsfalse |
dc.title.none.fl_str_mv |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS |
title |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS |
spellingShingle |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS Salviano de Vasconcelos, Izabelle Fibrodysplasia Ossificans. Rare genetic disease. Nursing. Assistance. |
title_short |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS |
title_full |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS |
title_fullStr |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS |
title_full_unstemmed |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS |
title_sort |
SYSTEMATIZATION OF NURSING ASSISTANCE TO FIBRODYSPLASIA CARRIER PROGRESSIVE OSSIFICANS |
author |
Salviano de Vasconcelos, Izabelle |
author_facet |
Salviano de Vasconcelos, Izabelle Carolina Salustino dos Santos, Maria Izaltemberg Rosenstock, Karelline de Oliveira Souza, Eclésia Casado de Freitas Silva, Rosany Costa Soares Silva, Talita da Silva Caldas, Walissioneide de Araújo Evangelista, Wanessa Thallyta Alexandre de Pontes, Arunna |
author_role |
author |
author2 |
Carolina Salustino dos Santos, Maria Izaltemberg Rosenstock, Karelline de Oliveira Souza, Eclésia Casado de Freitas Silva, Rosany Costa Soares Silva, Talita da Silva Caldas, Walissioneide de Araújo Evangelista, Wanessa Thallyta Alexandre de Pontes, Arunna |
author2_role |
author author author author author author author author |
dc.contributor.author.fl_str_mv |
Salviano de Vasconcelos, Izabelle Carolina Salustino dos Santos, Maria Izaltemberg Rosenstock, Karelline de Oliveira Souza, Eclésia Casado de Freitas Silva, Rosany Costa Soares Silva, Talita da Silva Caldas, Walissioneide de Araújo Evangelista, Wanessa Thallyta Alexandre de Pontes, Arunna |
dc.subject.por.fl_str_mv |
Fibrodysplasia Ossificans. Rare genetic disease. Nursing. Assistance. |
topic |
Fibrodysplasia Ossificans. Rare genetic disease. Nursing. Assistance. |
description |
Aiming at the importance of the nurse in the different directions and health care, studies point out the daily challenge of nursing professionals in relation to the importance of considering genetic aspects and in the care of patients with rare genetic diseases, such as Progressive Ossificans Fibrodysplasia (FOP) which is a rare genetic disease that stimulates the formation of bones inside the muscles, tendons, ligaments and other connective tissues progressively restricting movements, causing too much nursing care. This study aims to broaden the nurses’ knowledge about Fibrodysplasia Ossificante Progressiva (FOP), in addition to reporting the main difficulties in the care of patients with FOP; and discussing the importance of appropriate care for the carrier of this rare genetic disease by drawing up a qualified care plan. It is a research of the type bibliographic research of explanatory-descriptive character with qualitative approach, based on bibliographical reviews. According to the material analyzed, it is observed the importance of nurses’ knowledge regarding the disease and its respective treatments and types of care, and for this it is necessary that they have an adequate basis from a knowledge directed through courses, qualifications, lectures and qualified theoretical background. Consequently, in order to perform good care, nurses should guide their team about the best way to assist the patient, making it clear that there is a great challenge when it comes to the unusual, in order to show that it is possible to guarantee correct assistance for these patients. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-11-29 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.periodicojs.com.br/index.php/hs/article/view/1010 10.51249/hs.v2i02.1010 |
url |
https://www.periodicojs.com.br/index.php/hs/article/view/1010 |
identifier_str_mv |
10.51249/hs.v2i02.1010 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://www.periodicojs.com.br/index.php/hs/article/view/1010/833 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Editora Acadêmica Periodicojs |
publisher.none.fl_str_mv |
Editora Acadêmica Periodicojs |
dc.source.none.fl_str_mv |
Health and Society; Vol. 2 No. 02 (2022): Supplementary Edition; 135 - 165 Health and Society; v. 2 n. 02 (2022): Edição Suplementar; 135 - 165 2763-5724 10.51249/hs.v2i02 reponame:Health and Society instname:Instituto de Ensino e Pesquisa Periodicojs instacron:IEPP |
instname_str |
Instituto de Ensino e Pesquisa Periodicojs |
instacron_str |
IEPP |
institution |
IEPP |
reponame_str |
Health and Society |
collection |
Health and Society |
repository.name.fl_str_mv |
Health and Society - Instituto de Ensino e Pesquisa Periodicojs |
repository.mail.fl_str_mv |
journalofhealthandsociety@gmail.com || periodicojs@gmail.com |
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1797047896566136832 |