Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada

Detalhes bibliográficos
Autor(a) principal: Santos Zanchetta, Margareth
Data de Publicação: 2013
Outros Autores: Maheu, Christine, Galhego-Garcia, Wilson, Baku, Lorena, Guruge, Sepali, Secord, Scott
Tipo de documento: Artigo
Idioma: por
Título da fonte: Revista Brasileira de Cancerologia (Online)
Texto Completo: https://rbc.inca.gov.br/index.php/revista/article/view/514
Resumo: Introduction: Health indicators tend to be altered due to the participation of people in social networks. Objective: To find out ideas of individuals belonging to Portuguese speaking communities in Toronto, Canada, about the possibility of creating a social support network for women experiencing breast cancer. Method: Nineteen participants of the present ethnographic and critical study answered to questions, providing their opinions regarding to the social support network and its positive and negative aspects. Also, the participants suggested other possible individuals who could participate and help in the creation of such network. Discussions were transcribed, analysed and coded using qualitative software called Atlas ti 6.0. Results: The main components for the creation of the social support network were: the demystification of breast cancer and its prevention, emphasis in health education, dissemination of the need of volunteers and a direct social support to those women. The positive aspects were the participation of oldest women as social leaders and the utilization of schools and religious institutions for publicity. Negative aspects that were perceived as barriers are: the belief that breast cancer is a disease lived by women, the lack of knowledge about its cure and rehabilitation, as well as a collective sensitiveness to it. Also, about the participation of community leaders, the suggestions were: diplomats, priests and pastors, schools directors and communication entrepreneurs. Conclusion: The creation of the social support network should consider the cultural sensitiveness and the inner diversity of the consulted Portuguese speaking communities. Due to the insufficient number of Angolan participants to sustain a major analysis, a special recommendation was that Angolan social leaders and professionals should be invited to design the structure of such network according to their specific cultural traits.  
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spelling Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, CanadaExplorando Potencialidades para la creación de una Red de Apoyo Social a Mujeres de habla portuguesa que viven con cáncer de mama en Toronto, CanadáExplorando Potencialidades para a Criação de Rede de Apoio Social a Mulheres Lusófonas com Câncer de Mama e que Vivem em Toronto, CanadáNeoplasias da Mama-etnologiaRede SocialApoio SocialMigração InternacionalPesquisa QualitativaBreast Neoplasms-ethnologyNetworking SocialSocial SupportEmigration and ImmigrationQualitative ResourceNeoplasias de la Mama-etnologíaRed SocialApoyo SocialMigración InternacionalInvestigación CualitativoIntroduction: Health indicators tend to be altered due to the participation of people in social networks. Objective: To find out ideas of individuals belonging to Portuguese speaking communities in Toronto, Canada, about the possibility of creating a social support network for women experiencing breast cancer. Method: Nineteen participants of the present ethnographic and critical study answered to questions, providing their opinions regarding to the social support network and its positive and negative aspects. Also, the participants suggested other possible individuals who could participate and help in the creation of such network. Discussions were transcribed, analysed and coded using qualitative software called Atlas ti 6.0. Results: The main components for the creation of the social support network were: the demystification of breast cancer and its prevention, emphasis in health education, dissemination of the need of volunteers and a direct social support to those women. The positive aspects were the participation of oldest women as social leaders and the utilization of schools and religious institutions for publicity. Negative aspects that were perceived as barriers are: the belief that breast cancer is a disease lived by women, the lack of knowledge about its cure and rehabilitation, as well as a collective sensitiveness to it. Also, about the participation of community leaders, the suggestions were: diplomats, priests and pastors, schools directors and communication entrepreneurs. Conclusion: The creation of the social support network should consider the cultural sensitiveness and the inner diversity of the consulted Portuguese speaking communities. Due to the insufficient number of Angolan participants to sustain a major analysis, a special recommendation was that Angolan social leaders and professionals should be invited to design the structure of such network according to their specific cultural traits.  Introducción: Indicadores generales de la salud propensos a cambios debido a la participación de individuos em redes sociales. Objetivo: Conocer las ideas de los miembros de la comunidad de habla portuguesa en Toronto, Canadá; sobre la posibilidad de creación de una red de apoyo social para las mujeres que viven con cáncer de mama. Método: Estudio etnográfico critico con 19 participantes que opinaron sobre la construcción de una red de apoyo social, puntos negativos y positivos, así como personas que pueden ser invitadas a ayudar. Las discusiones han sido transcriptas, analizadas y codificadas con la ayuda del programa de análisis cualitativa Atlas ti 6.0. Resultados: Los componentes fundamentales para la construcción de una red de apoyo han sido la desmitificación del cáncer de mama y de su prevencion, énfasis en la educación en salud, divulgación de la necesidad de voluntarios y apoyo social directo a las mujeres con cáncer. Los puntos positivos serian la participación de mujeres más mayores como lideres, uso del entorno escolar y de las instituciones religiosas para la divulgación. Los impedimentos encontrados fueron que el cáncer de mama es una enfermedad vivida por las mujeres, el desconocimiento relativo a la curación y la falta de sensibilización. En relacion a la participación de lideres de cada comunidad, hubo sugerencias de diplomáticos, curas y pastores, directores de escuelas y empresarios del área de la comunicación. Conclusión: La creación de la red de apoyo social debe considerar la sensibilidad cultural y la diversidad interna de las comunidades de habla portuguesa. La recomendación es que líderes sociales y profesionales angoleños sean invitados para crear la estructura de la red de apoyo según sus rasgos culturales específicos.Introdução: Indicadores gerais de saúde tendem a alterarem-se devido à participação de indivíduos em redes sociais. Objetivo: Conhecer as ideias dos membros de comunidades lusófonas em Toronto, Canadá, sobre a possibilidade da criação de uma rede de apoio social a mulheres com câncer de mama. Método: Estudo etnográfico critico com 19 participantes que opinaram sobre a construção de uma rede de apoio social, pontos positivos e negativos, bem como pessoas a serem convidadas a ajudar. As discussões foram transcritas, analisadas e codificadas com o auxílio do programa de análise qualitativa Atlas ti 6.0. Resultados: Os componentes fundamentais para a construção da rede de apoio social foram a desmistificação do câncer de mama e de sua prevenção, ênfase na educação em saúde, divulgação da necessidade de voluntários e apoio social direto às mulheres com câncer. Os pontos positivos seriam a participação de mulheres mais idosas como líderes, uso do ambiente escolar e das instituições religiosas para a divulgação. Os empecilhos encontrados foram o câncer de mama ser uma doença vivida pelas mulheres, o desconhecimento relativo à cura e à falta de sensibilização. Em relação à participação de lideranças comunitárias, houve sugestão de diplomatas, padres e pastores, diretores de escolas e empresários da área da comunicação. Conclusão: A criação da rede de apoio social deve considerar a sensibilidade cultural e a diversidade interna das comunidades lusófonas. A recomendação é de que líderes sociais e profissionais angolanos sejam convidados para delinear a estrutura da rede de apoio conforme seus traços culturais específicos.  INCA2013-09-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/51410.32635/2176-9745.RBC.2013v59n3.514Revista Brasileira de Cancerologia; Vol. 59 No. 3 (2013): July/Aug./Sept.; 391-400Revista Brasileira de Cancerologia; Vol. 59 Núm. 3 (2013): jul./agosto/sept.; 391-400Revista Brasileira de Cancerologia; v. 59 n. 3 (2013): jul./ago./set. ; 391-4002176-9745reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporhttps://rbc.inca.gov.br/index.php/revista/article/view/514/309Santos Zanchetta, Margareth Maheu, Christine Galhego-Garcia, Wilson Baku, Lorena Guruge, SepaliSecord, Scott info:eu-repo/semantics/openAccess2021-11-29T20:11:08Zoai:rbc.inca.gov.br:article/514Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2021-11-29T20:11:08Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false
dc.title.none.fl_str_mv Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
Explorando Potencialidades para la creación de una Red de Apoyo Social a Mujeres de habla portuguesa que viven con cáncer de mama en Toronto, Canadá
Explorando Potencialidades para a Criação de Rede de Apoio Social a Mulheres Lusófonas com Câncer de Mama e que Vivem em Toronto, Canadá
title Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
spellingShingle Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
Santos Zanchetta, Margareth
Neoplasias da Mama-etnologia
Rede Social
Apoio Social
Migração Internacional
Pesquisa Qualitativa
Breast Neoplasms-ethnology
Networking Social
Social Support
Emigration and Immigration
Qualitative Resource
Neoplasias de la Mama-etnología
Red Social
Apoyo Social
Migración Internacional
Investigación Cualitativo
title_short Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
title_full Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
title_fullStr Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
title_full_unstemmed Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
title_sort Exploring potentialities for the creation of a social support network for Portuguese- Speaking women with breast cancer and who live in Toronto, Canada
author Santos Zanchetta, Margareth
author_facet Santos Zanchetta, Margareth
Maheu, Christine
Galhego-Garcia, Wilson
Baku, Lorena
Guruge, Sepali
Secord, Scott
author_role author
author2 Maheu, Christine
Galhego-Garcia, Wilson
Baku, Lorena
Guruge, Sepali
Secord, Scott
author2_role author
author
author
author
author
dc.contributor.author.fl_str_mv Santos Zanchetta, Margareth
Maheu, Christine
Galhego-Garcia, Wilson
Baku, Lorena
Guruge, Sepali
Secord, Scott
dc.subject.por.fl_str_mv Neoplasias da Mama-etnologia
Rede Social
Apoio Social
Migração Internacional
Pesquisa Qualitativa
Breast Neoplasms-ethnology
Networking Social
Social Support
Emigration and Immigration
Qualitative Resource
Neoplasias de la Mama-etnología
Red Social
Apoyo Social
Migración Internacional
Investigación Cualitativo
topic Neoplasias da Mama-etnologia
Rede Social
Apoio Social
Migração Internacional
Pesquisa Qualitativa
Breast Neoplasms-ethnology
Networking Social
Social Support
Emigration and Immigration
Qualitative Resource
Neoplasias de la Mama-etnología
Red Social
Apoyo Social
Migración Internacional
Investigación Cualitativo
description Introduction: Health indicators tend to be altered due to the participation of people in social networks. Objective: To find out ideas of individuals belonging to Portuguese speaking communities in Toronto, Canada, about the possibility of creating a social support network for women experiencing breast cancer. Method: Nineteen participants of the present ethnographic and critical study answered to questions, providing their opinions regarding to the social support network and its positive and negative aspects. Also, the participants suggested other possible individuals who could participate and help in the creation of such network. Discussions were transcribed, analysed and coded using qualitative software called Atlas ti 6.0. Results: The main components for the creation of the social support network were: the demystification of breast cancer and its prevention, emphasis in health education, dissemination of the need of volunteers and a direct social support to those women. The positive aspects were the participation of oldest women as social leaders and the utilization of schools and religious institutions for publicity. Negative aspects that were perceived as barriers are: the belief that breast cancer is a disease lived by women, the lack of knowledge about its cure and rehabilitation, as well as a collective sensitiveness to it. Also, about the participation of community leaders, the suggestions were: diplomats, priests and pastors, schools directors and communication entrepreneurs. Conclusion: The creation of the social support network should consider the cultural sensitiveness and the inner diversity of the consulted Portuguese speaking communities. Due to the insufficient number of Angolan participants to sustain a major analysis, a special recommendation was that Angolan social leaders and professionals should be invited to design the structure of such network according to their specific cultural traits.  
publishDate 2013
dc.date.none.fl_str_mv 2013-09-30
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url https://rbc.inca.gov.br/index.php/revista/article/view/514
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dc.language.iso.fl_str_mv por
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dc.relation.none.fl_str_mv https://rbc.inca.gov.br/index.php/revista/article/view/514/309
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dc.publisher.none.fl_str_mv INCA
publisher.none.fl_str_mv INCA
dc.source.none.fl_str_mv Revista Brasileira de Cancerologia; Vol. 59 No. 3 (2013): July/Aug./Sept.; 391-400
Revista Brasileira de Cancerologia; Vol. 59 Núm. 3 (2013): jul./agosto/sept.; 391-400
Revista Brasileira de Cancerologia; v. 59 n. 3 (2013): jul./ago./set. ; 391-400
2176-9745
reponame:Revista Brasileira de Cancerologia (Online)
instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
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instname_str Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
instacron_str INCA
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reponame_str Revista Brasileira de Cancerologia (Online)
collection Revista Brasileira de Cancerologia (Online)
repository.name.fl_str_mv Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)
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