Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Revista Brasileira de Cancerologia (Online) |
Texto Completo: | https://rbc.inca.gov.br/index.php/revista/article/view/76 |
Resumo: | Introduction: Cancer is one of the leading causes of death in the world and is considered one of the fastest growing diseases in Brazil, it is estimated that about 600 thousand new cases of cancer are diagnosed between the years 2018 and 2019. Objective: To develop an validate the instrument “Questionnaire of knowledge of the disease for cancer patients” and asses the level of knowledge of cancer patients. Method: The instrument was developed by analyzing the specific literature for presentation to a multidisciplinary team of health care, who answered the validation of clarity and content of the instrument. Then, its generated the pilot version. After the pilot study analysis, the instrument was tested in 71 cancer patients of Center of Oncology Research (Cepon). The reproducibility was obtained through the intraclass correlation coefficient of test-retest method. Results: The final version had 14 questions and presented an clarity index of 8,63±0,75. The intraclass correlation coefficient was 0,858 and Cronbach’s alpha, 0,611. Factor analysis indicated five factor related to areas of knowledge. The final scores were compared with the characteristics of patients and concluded that low education and low income are associated with lower scores of knowledge. Conclusion: The instrument has satisfactory clarity and validity indices and can be used to asses the cancer patient´s knowledge. |
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Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their DiseaseConstrucción y Validación Psicométrica del Cáncer-Q: Cuestionario de Conocimientos de la Enfermedad para Pacientes con CáncerConstrução e Validação Psicométrica do Câncer-Q: Questionário de Conhecimentos da Doença para Pacientes com CâncerNeoplasiasQuestionário de Saúde do PacienteConhecimentoPacientesNeoplasmsPatient Health QuestionnaireKnowledgePatientsNeoplasiasCuestionario de Salud del PacienteConocimientoPacientesIntroduction: Cancer is one of the leading causes of death in the world and is considered one of the fastest growing diseases in Brazil, it is estimated that about 600 thousand new cases of cancer are diagnosed between the years 2018 and 2019. Objective: To develop an validate the instrument “Questionnaire of knowledge of the disease for cancer patients” and asses the level of knowledge of cancer patients. Method: The instrument was developed by analyzing the specific literature for presentation to a multidisciplinary team of health care, who answered the validation of clarity and content of the instrument. Then, its generated the pilot version. After the pilot study analysis, the instrument was tested in 71 cancer patients of Center of Oncology Research (Cepon). The reproducibility was obtained through the intraclass correlation coefficient of test-retest method. Results: The final version had 14 questions and presented an clarity index of 8,63±0,75. The intraclass correlation coefficient was 0,858 and Cronbach’s alpha, 0,611. Factor analysis indicated five factor related to areas of knowledge. The final scores were compared with the characteristics of patients and concluded that low education and low income are associated with lower scores of knowledge. Conclusion: The instrument has satisfactory clarity and validity indices and can be used to asses the cancer patient´s knowledge.Introducción: El cáncer es una de las principales causas de muerte en el mundo y es considerada una de las enfermedades que más crece en Brasil, se estima que cerca de 600 mil nuevos casos de cáncer se diagnostican entre los años 2018 y 2019. Objetivo: Construir y validar el instrumento "Cuestionario de conocimientos de la enfermedad para pacientes con cáncer" y evaluar el nivel de conocimiento de pacientes con cáncer sobre su propia enfermedad y relacionar el nivel de conocimiento con la edad, el sexo, la renta familiar y la escolaridad. Método: El instrumento fue construido con base en el estudio de la literatura específica del cáncer para la presentación de los ítems a un equipo multidisciplinario del área de la salud, que juzgaron los ítems de acuerdo con la claridad y contenido del instrumento. A continuación se generó la versión piloto y después de los análisis del estudio piloto, el instrumento fue aplicado en 71 pacientes con cáncer del Centro de Investigaciones Oncológicas (Cepón). La reproducibilidad fue obtenida por medio del coeficiente de correlación intraclase del método de prueba y reteste. Resultados: La versión final del instrumento obtuvo 14 preguntas y presentó un índice de claridad de 8,63 ± 0,75. El valor del coeficiente de correlación intraclase fue de 0,858 y del alfa de Cronbach, 0,611. El análisis factorial reveló cinco y los escores finales se compararon con las características de los pacientes y se concluyó que baja escolaridad y bajos ingresos están asociados a bajos escores de conocimiento. Conclusión: El instrumento posee índice de claridad satisfactorio y de validez adecuado, pudiendo ser utilizado para evaluar el conocimiento de pacientes con cáncer sobre su propia enfermedad. Introdução: O câncer é uma das principais causas de morte e é considerado uma das doenças que mais cresce no Brasil. Estima-se que cerca de 600 mil novos casos de câncer sejam diagnosticados entre 2018 e 2019. Objetivo: Construir e validar o instrumento "Questionário de conhecimentos da doença para pacientes com câncer", avaliar o nível de conhecimento de pacientes com câncer sobre sua doença e relacionar o nível de conhecimento com a idade, sexo, renda familiar e escolaridade. Método: O instrumento foi construído com base na literatura específica do câncer. Os itens foram apresentados a uma equipe multidisciplinar da área da saúde para julgamento quanto à clareza e ao conteúdo do instrumento. Em seguida, gerou-se a versão-piloto e, após as análises, o instrumento foi aplicado em 71 pacientes com câncer do Centro de Pesquisas Oncológicas (Cepon). A reprodutibilidade foi obtida por meio do coeficiente de correlação intraclasse do método de teste e reteste. Resultados: A versão final do instrumento obteve 14 questões e apresentou um índice de clareza de 8,63±0,75. O valor do coeficiente de correlação intraclasse foi de 0,858 e do alfa de Cronbach, 0,611. A análise fatorial revelou cinco fatores, e os escores finais foram comparados com as características dos pacientes, sendo a baixa escolaridade e a baixa renda relacionadas a baixos escores de conhecimento. Conclusão: O instrumento possui índice de clareza satisfatório e de validade adequado, podendo ser utilizado para avaliar o conhecimento de pacientes com câncer sobre sua própria doença.INCA2018-06-29info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionArtigos, Avaliado pelos paresapplication/pdfapplication/pdfhttps://rbc.inca.gov.br/index.php/revista/article/view/7610.32635/2176-9745.RBC.2018v64n2.76Revista Brasileira de Cancerologia; Vol. 64 No. 2 (2018): Apr./May/June; 177-188Revista Brasileira de Cancerologia; Vol. 64 Núm. 2 (2018): abr./mayo/jun.; 177-188Revista Brasileira de Cancerologia; v. 64 n. 2 (2018): abr./maio/jun.; 177-1882176-974510.32635/2176-9745.RBC.2018v64n2reponame:Revista Brasileira de Cancerologia (Online)instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)instacron:INCAporenghttps://rbc.inca.gov.br/index.php/revista/article/view/76/36https://rbc.inca.gov.br/index.php/revista/article/view/76/152Pereira Junior, MoacirSantos, Rafaella Zulianello dosRamos, Ana PaulaAndrade, AlexandroSantos, Luiz Roberto Medina dosBenetti, Magnusinfo:eu-repo/semantics/openAccess2021-11-29T20:06:44Zoai:rbc.inca.gov.br:article/76Revistahttps://rbc.inca.gov.br/index.php/revistaPUBhttps://rbc.inca.gov.br/index.php/revista/oairbc@inca.gov.br0034-71162176-9745opendoar:2021-11-29T20:06:44Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA)false |
dc.title.none.fl_str_mv |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease Construcción y Validación Psicométrica del Cáncer-Q: Cuestionario de Conocimientos de la Enfermedad para Pacientes con Cáncer Construção e Validação Psicométrica do Câncer-Q: Questionário de Conhecimentos da Doença para Pacientes com Câncer |
title |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease |
spellingShingle |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease Pereira Junior, Moacir Neoplasias Questionário de Saúde do Paciente Conhecimento Pacientes Neoplasms Patient Health Questionnaire Knowledge Patients Neoplasias Cuestionario de Salud del Paciente Conocimiento Pacientes |
title_short |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease |
title_full |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease |
title_fullStr |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease |
title_full_unstemmed |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease |
title_sort |
Development and Psycometric Validation of Cancer-Q: Questionnaire about Cancer Patient’s Knowledge of their Disease |
author |
Pereira Junior, Moacir |
author_facet |
Pereira Junior, Moacir Santos, Rafaella Zulianello dos Ramos, Ana Paula Andrade, Alexandro Santos, Luiz Roberto Medina dos Benetti, Magnus |
author_role |
author |
author2 |
Santos, Rafaella Zulianello dos Ramos, Ana Paula Andrade, Alexandro Santos, Luiz Roberto Medina dos Benetti, Magnus |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Pereira Junior, Moacir Santos, Rafaella Zulianello dos Ramos, Ana Paula Andrade, Alexandro Santos, Luiz Roberto Medina dos Benetti, Magnus |
dc.subject.por.fl_str_mv |
Neoplasias Questionário de Saúde do Paciente Conhecimento Pacientes Neoplasms Patient Health Questionnaire Knowledge Patients Neoplasias Cuestionario de Salud del Paciente Conocimiento Pacientes |
topic |
Neoplasias Questionário de Saúde do Paciente Conhecimento Pacientes Neoplasms Patient Health Questionnaire Knowledge Patients Neoplasias Cuestionario de Salud del Paciente Conocimiento Pacientes |
description |
Introduction: Cancer is one of the leading causes of death in the world and is considered one of the fastest growing diseases in Brazil, it is estimated that about 600 thousand new cases of cancer are diagnosed between the years 2018 and 2019. Objective: To develop an validate the instrument “Questionnaire of knowledge of the disease for cancer patients” and asses the level of knowledge of cancer patients. Method: The instrument was developed by analyzing the specific literature for presentation to a multidisciplinary team of health care, who answered the validation of clarity and content of the instrument. Then, its generated the pilot version. After the pilot study analysis, the instrument was tested in 71 cancer patients of Center of Oncology Research (Cepon). The reproducibility was obtained through the intraclass correlation coefficient of test-retest method. Results: The final version had 14 questions and presented an clarity index of 8,63±0,75. The intraclass correlation coefficient was 0,858 and Cronbach’s alpha, 0,611. Factor analysis indicated five factor related to areas of knowledge. The final scores were compared with the characteristics of patients and concluded that low education and low income are associated with lower scores of knowledge. Conclusion: The instrument has satisfactory clarity and validity indices and can be used to asses the cancer patient´s knowledge. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-06-29 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Artigos, Avaliado pelos pares |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/76 10.32635/2176-9745.RBC.2018v64n2.76 |
url |
https://rbc.inca.gov.br/index.php/revista/article/view/76 |
identifier_str_mv |
10.32635/2176-9745.RBC.2018v64n2.76 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://rbc.inca.gov.br/index.php/revista/article/view/76/36 https://rbc.inca.gov.br/index.php/revista/article/view/76/152 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
INCA |
publisher.none.fl_str_mv |
INCA |
dc.source.none.fl_str_mv |
Revista Brasileira de Cancerologia; Vol. 64 No. 2 (2018): Apr./May/June; 177-188 Revista Brasileira de Cancerologia; Vol. 64 Núm. 2 (2018): abr./mayo/jun.; 177-188 Revista Brasileira de Cancerologia; v. 64 n. 2 (2018): abr./maio/jun.; 177-188 2176-9745 10.32635/2176-9745.RBC.2018v64n2 reponame:Revista Brasileira de Cancerologia (Online) instname:Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) instacron:INCA |
instname_str |
Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
instacron_str |
INCA |
institution |
INCA |
reponame_str |
Revista Brasileira de Cancerologia (Online) |
collection |
Revista Brasileira de Cancerologia (Online) |
repository.name.fl_str_mv |
Revista Brasileira de Cancerologia (Online) - Instituto Nacional de Câncer José Alencar Gomes da Silva (INCA) |
repository.mail.fl_str_mv |
rbc@inca.gov.br |
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1797042242169339904 |