Psychosocial aspects of celiac disease in Spain: A life free of gluten
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Data de Publicação: | 2023 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | spa |
Título da fonte: | Revista de Nutrição |
Texto Completo: | https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128 |
Resumo: | ObjectiveCeliac disease is a chronic disease which has a high prevalence in our society. The aim of this paper is to explore the process of adapting the celiac in different social environments, assessing the impact of the implementation of a strict gluten-free diet. MethodsA qualitative study was carried out in the months of January 2013 to April 2013 through which the grounded theory and content analysis have deepened the analysis of semi-structured interviews with people with celiac disease in Spain. Appeals via social networks and celiac groups were conducted in order to reach theoretical saturation, which determined the final sample size of 24 people. ResultsSocial isolation, loneliness and social ignorance are some of the categories that have emerged when we talk about celiac disease and the gluten-free diet. ConclusionProfessionals should promote and support social support strategies based on an integrated understanding of the experiences of displacement and marginalization that celiac patients experience in their social relationships through food. There should be increased health education to understand and integrate the psychosocial impact of the diagnosis of celiac disease and the gluten-free diet. |
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Psychosocial aspects of celiac disease in Spain: A life free of glutenAspectos psicosociales de la enfermedad celíaca en España: una vida libre de glutenDiet, gluten-freeCeliac diseaseQualitative researchSocial perceptionDieta sin glutenEnfermedad celíacaInvestigación cualitativaPercepción socialObjectiveCeliac disease is a chronic disease which has a high prevalence in our society. The aim of this paper is to explore the process of adapting the celiac in different social environments, assessing the impact of the implementation of a strict gluten-free diet. MethodsA qualitative study was carried out in the months of January 2013 to April 2013 through which the grounded theory and content analysis have deepened the analysis of semi-structured interviews with people with celiac disease in Spain. Appeals via social networks and celiac groups were conducted in order to reach theoretical saturation, which determined the final sample size of 24 people. ResultsSocial isolation, loneliness and social ignorance are some of the categories that have emerged when we talk about celiac disease and the gluten-free diet. ConclusionProfessionals should promote and support social support strategies based on an integrated understanding of the experiences of displacement and marginalization that celiac patients experience in their social relationships through food. There should be increased health education to understand and integrate the psychosocial impact of the diagnosis of celiac disease and the gluten-free diet.ObjetivoLa celiaquía como enfermedad crónica tiene una alta prevalencia en nuestra sociedad. El artículo analiza los aspectos psicosociales de la enfermedad celíaca en los diferentes entornos, valorando el impacto de la implantación de una dieta estricta libre de gluten. MétodosEstudio cualitativo entre los meses de Enero del 2013 a Abril del 2013 en el cual, a través de la teoría fundamentada y el análisis de contenido, se ha profundizado en el análisis de las entrevistas semiestructuradas a personas con enfermedad celíaca en España. Se realizaron llamamientos a traves de las redes sociales y grupos de celíacos hasta llegar a la saturación teórica, que determinó el tamaño final de la muestra de 24 personas. ResultadosEducación Sanitaria, Aislamiento social, soledad y desconocimiento social emergieron como categorías centrales en la experiencia de adopción de la dieta libre de gluten a partir del diagnóstico de celiaquía. ConclusiónLos profesionales deben promover y apoyar estrategias de apoyo social basadas en una comprensión íntegra de las experiencias de desarraigo y marginación que los pacientes celíacos experimentan en sus relaciones socialesa través de la comida. Se requiere un aumento de la educación sanitaria para entender e integrar el impacto psicosocial del diagnóstico de celiaquía y la dieta libre de gluten.Núcleo de Editoração – PUC-Campinas2023-03-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/nutricao/article/view/8128Brazilian Journal of Nutrition; Vol. 29 No. 6 (2016): Revista de NutriçãoRevista de Nutrição; Vol. 29 Núm. 6 (2016): Revista de NutriçãoRevista de Nutrição; v. 29 n. 6 (2016): Revista de Nutrição1678-9865reponame:Revista de Nutriçãoinstname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPspahttps://periodicos.puc-campinas.edu.br/nutricao/article/view/8128/5638Copyright (c) 2023 Julián Rodríguez ALMAGRO, Gonzalo BACIGALUPE, María Carmen Solano RUIZ, José Siles GONZÁLEZ, Antonio Hernández MARTÍNEZhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRodríguez ALMAGRO, Julián BACIGALUPE, Gonzalo Solano RUIZ, María Carmen Siles GONZÁLEZ, José Hernández MARTÍNEZ, Antonio 2023-03-30T17:57:35Zoai:ojs.periodicos.puc-campinas.edu.br:article/8128Revistahttp://www.scielo.br/rnPRIhttps://periodicos.puc-campinas.edu.br/nutricao/oai||sbi.submissionrn@puc-campinas.edu.br1678-98651415-5273opendoar:2023-03-30T17:57:35Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false |
dc.title.none.fl_str_mv |
Psychosocial aspects of celiac disease in Spain: A life free of gluten Aspectos psicosociales de la enfermedad celíaca en España: una vida libre de gluten |
title |
Psychosocial aspects of celiac disease in Spain: A life free of gluten |
spellingShingle |
Psychosocial aspects of celiac disease in Spain: A life free of gluten Rodríguez ALMAGRO, Julián Diet, gluten-free Celiac disease Qualitative research Social perception Dieta sin gluten Enfermedad celíaca Investigación cualitativa Percepción social |
title_short |
Psychosocial aspects of celiac disease in Spain: A life free of gluten |
title_full |
Psychosocial aspects of celiac disease in Spain: A life free of gluten |
title_fullStr |
Psychosocial aspects of celiac disease in Spain: A life free of gluten |
title_full_unstemmed |
Psychosocial aspects of celiac disease in Spain: A life free of gluten |
title_sort |
Psychosocial aspects of celiac disease in Spain: A life free of gluten |
author |
Rodríguez ALMAGRO, Julián |
author_facet |
Rodríguez ALMAGRO, Julián BACIGALUPE, Gonzalo Solano RUIZ, María Carmen Siles GONZÁLEZ, José Hernández MARTÍNEZ, Antonio |
author_role |
author |
author2 |
BACIGALUPE, Gonzalo Solano RUIZ, María Carmen Siles GONZÁLEZ, José Hernández MARTÍNEZ, Antonio |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Rodríguez ALMAGRO, Julián BACIGALUPE, Gonzalo Solano RUIZ, María Carmen Siles GONZÁLEZ, José Hernández MARTÍNEZ, Antonio |
dc.subject.por.fl_str_mv |
Diet, gluten-free Celiac disease Qualitative research Social perception Dieta sin gluten Enfermedad celíaca Investigación cualitativa Percepción social |
topic |
Diet, gluten-free Celiac disease Qualitative research Social perception Dieta sin gluten Enfermedad celíaca Investigación cualitativa Percepción social |
description |
ObjectiveCeliac disease is a chronic disease which has a high prevalence in our society. The aim of this paper is to explore the process of adapting the celiac in different social environments, assessing the impact of the implementation of a strict gluten-free diet. MethodsA qualitative study was carried out in the months of January 2013 to April 2013 through which the grounded theory and content analysis have deepened the analysis of semi-structured interviews with people with celiac disease in Spain. Appeals via social networks and celiac groups were conducted in order to reach theoretical saturation, which determined the final sample size of 24 people. ResultsSocial isolation, loneliness and social ignorance are some of the categories that have emerged when we talk about celiac disease and the gluten-free diet. ConclusionProfessionals should promote and support social support strategies based on an integrated understanding of the experiences of displacement and marginalization that celiac patients experience in their social relationships through food. There should be increased health education to understand and integrate the psychosocial impact of the diagnosis of celiac disease and the gluten-free diet. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-03-30 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128 |
url |
https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128 |
dc.language.iso.fl_str_mv |
spa |
language |
spa |
dc.relation.none.fl_str_mv |
https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128/5638 |
dc.rights.driver.fl_str_mv |
https://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
https://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Núcleo de Editoração – PUC-Campinas |
publisher.none.fl_str_mv |
Núcleo de Editoração – PUC-Campinas |
dc.source.none.fl_str_mv |
Brazilian Journal of Nutrition; Vol. 29 No. 6 (2016): Revista de Nutrição Revista de Nutrição; Vol. 29 Núm. 6 (2016): Revista de Nutrição Revista de Nutrição; v. 29 n. 6 (2016): Revista de Nutrição 1678-9865 reponame:Revista de Nutrição instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) instacron:PUC_CAMP |
instname_str |
Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) |
instacron_str |
PUC_CAMP |
institution |
PUC_CAMP |
reponame_str |
Revista de Nutrição |
collection |
Revista de Nutrição |
repository.name.fl_str_mv |
Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS) |
repository.mail.fl_str_mv |
||sbi.submissionrn@puc-campinas.edu.br |
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1799126069029109760 |