Psychosocial aspects of celiac disease in Spain: A life free of gluten

Detalhes bibliográficos
Autor(a) principal: Rodríguez ALMAGRO, Julián
Data de Publicação: 2023
Outros Autores: BACIGALUPE, Gonzalo, Solano RUIZ, María Carmen, Siles GONZÁLEZ, José, Hernández MARTÍNEZ, Antonio
Tipo de documento: Artigo
Idioma: spa
Título da fonte: Revista de Nutrição
Texto Completo: https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128
Resumo: ObjectiveCeliac disease is a chronic disease which has a high prevalence in our society. The aim of this paper is to explore the process of adapting the celiac in different social environments, assessing the impact of the implementation of a strict gluten-free diet. MethodsA qualitative study was carried out in the months of January 2013 to April 2013 through which the grounded theory and content analysis have deepened the analysis of semi-structured interviews with people with celiac disease in Spain. Appeals via social networks and celiac groups were conducted in order to reach theoretical saturation, which determined the final sample size of 24 people. ResultsSocial isolation, loneliness and social ignorance are some of the categories that have emerged when we talk about celiac disease and the gluten-free diet. ConclusionProfessionals should promote and support social support strategies based on an integrated understanding of the experiences of displacement and marginalization that celiac patients experience in their social relationships through food. There should be increased health education to understand and integrate the psychosocial impact of the diagnosis of celiac disease and the gluten-free diet.
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spelling Psychosocial aspects of celiac disease in Spain: A life free of glutenAspectos psicosociales de la enfermedad celíaca en España: una vida libre de glutenDiet, gluten-freeCeliac diseaseQualitative researchSocial perceptionDieta sin glutenEnfermedad celíacaInvestigación cualitativaPercepción socialObjectiveCeliac disease is a chronic disease which has a high prevalence in our society. The aim of this paper is to explore the process of adapting the celiac in different social environments, assessing the impact of the implementation of a strict gluten-free diet. MethodsA qualitative study was carried out in the months of January 2013 to April 2013 through which the grounded theory and content analysis have deepened the analysis of semi-structured interviews with people with celiac disease in Spain. Appeals via social networks and celiac groups were conducted in order to reach theoretical saturation, which determined the final sample size of 24 people. ResultsSocial isolation, loneliness and social ignorance are some of the categories that have emerged when we talk about celiac disease and the gluten-free diet. ConclusionProfessionals should promote and support social support strategies based on an integrated understanding of the experiences of displacement and marginalization that celiac patients experience in their social relationships through food. There should be increased health education to understand and integrate the psychosocial impact of the diagnosis of celiac disease and the gluten-free diet.ObjetivoLa celiaquía como enfermedad crónica tiene una alta prevalencia en nuestra sociedad. El artículo analiza los aspectos psicosociales de la enfermedad celíaca en los diferentes entornos, valorando el impacto de la implantación de una dieta estricta libre de gluten. MétodosEstudio cualitativo entre los meses de Enero del 2013 a Abril del 2013 en el cual, a través de la teoría fundamentada y el análisis de contenido, se ha profundizado en el análisis de las entrevistas semiestructuradas a personas con enfermedad celíaca en España. Se realizaron llamamientos a traves de las redes sociales y grupos de celíacos hasta llegar a la saturación teórica, que determinó el tamaño final de la muestra de 24 personas. ResultadosEducación Sanitaria, Aislamiento social, soledad y desconocimiento social emergieron como categorías centrales en la experiencia de adopción de la dieta libre de gluten a partir del diagnóstico de celiaquía. ConclusiónLos profesionales deben promover y apoyar estrategias de apoyo social basadas en una comprensión íntegra de las experiencias de desarraigo y marginación que los pacientes celíacos experimentan en sus relaciones socialesa través de la comida. Se requiere un aumento de la educación sanitaria para entender e integrar el impacto psicosocial del diagnóstico de celiaquía y la dieta libre de gluten.Núcleo de Editoração – PUC-Campinas2023-03-30info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/nutricao/article/view/8128Brazilian Journal of Nutrition; Vol. 29 No. 6 (2016): Revista de NutriçãoRevista de Nutrição; Vol. 29 Núm. 6 (2016): Revista de NutriçãoRevista de Nutrição; v. 29 n. 6 (2016): Revista de Nutrição1678-9865reponame:Revista de Nutriçãoinstname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPspahttps://periodicos.puc-campinas.edu.br/nutricao/article/view/8128/5638Copyright (c) 2023 Julián Rodríguez ALMAGRO, Gonzalo BACIGALUPE, María Carmen Solano RUIZ, José Siles GONZÁLEZ, Antonio Hernández MARTÍNEZhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRodríguez ALMAGRO, Julián BACIGALUPE, Gonzalo Solano RUIZ, María Carmen Siles GONZÁLEZ, José Hernández MARTÍNEZ, Antonio 2023-03-30T17:57:35Zoai:ojs.periodicos.puc-campinas.edu.br:article/8128Revistahttp://www.scielo.br/rnPRIhttps://periodicos.puc-campinas.edu.br/nutricao/oai||sbi.submissionrn@puc-campinas.edu.br1678-98651415-5273opendoar:2023-03-30T17:57:35Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false
dc.title.none.fl_str_mv Psychosocial aspects of celiac disease in Spain: A life free of gluten
Aspectos psicosociales de la enfermedad celíaca en España: una vida libre de gluten
title Psychosocial aspects of celiac disease in Spain: A life free of gluten
spellingShingle Psychosocial aspects of celiac disease in Spain: A life free of gluten
Rodríguez ALMAGRO, Julián
Diet, gluten-free
Celiac disease
Qualitative research
Social perception
Dieta sin gluten
Enfermedad celíaca
Investigación cualitativa
Percepción social
title_short Psychosocial aspects of celiac disease in Spain: A life free of gluten
title_full Psychosocial aspects of celiac disease in Spain: A life free of gluten
title_fullStr Psychosocial aspects of celiac disease in Spain: A life free of gluten
title_full_unstemmed Psychosocial aspects of celiac disease in Spain: A life free of gluten
title_sort Psychosocial aspects of celiac disease in Spain: A life free of gluten
author Rodríguez ALMAGRO, Julián
author_facet Rodríguez ALMAGRO, Julián
BACIGALUPE, Gonzalo
Solano RUIZ, María Carmen
Siles GONZÁLEZ, José
Hernández MARTÍNEZ, Antonio
author_role author
author2 BACIGALUPE, Gonzalo
Solano RUIZ, María Carmen
Siles GONZÁLEZ, José
Hernández MARTÍNEZ, Antonio
author2_role author
author
author
author
dc.contributor.author.fl_str_mv Rodríguez ALMAGRO, Julián
BACIGALUPE, Gonzalo
Solano RUIZ, María Carmen
Siles GONZÁLEZ, José
Hernández MARTÍNEZ, Antonio
dc.subject.por.fl_str_mv Diet, gluten-free
Celiac disease
Qualitative research
Social perception
Dieta sin gluten
Enfermedad celíaca
Investigación cualitativa
Percepción social
topic Diet, gluten-free
Celiac disease
Qualitative research
Social perception
Dieta sin gluten
Enfermedad celíaca
Investigación cualitativa
Percepción social
description ObjectiveCeliac disease is a chronic disease which has a high prevalence in our society. The aim of this paper is to explore the process of adapting the celiac in different social environments, assessing the impact of the implementation of a strict gluten-free diet. MethodsA qualitative study was carried out in the months of January 2013 to April 2013 through which the grounded theory and content analysis have deepened the analysis of semi-structured interviews with people with celiac disease in Spain. Appeals via social networks and celiac groups were conducted in order to reach theoretical saturation, which determined the final sample size of 24 people. ResultsSocial isolation, loneliness and social ignorance are some of the categories that have emerged when we talk about celiac disease and the gluten-free diet. ConclusionProfessionals should promote and support social support strategies based on an integrated understanding of the experiences of displacement and marginalization that celiac patients experience in their social relationships through food. There should be increased health education to understand and integrate the psychosocial impact of the diagnosis of celiac disease and the gluten-free diet.
publishDate 2023
dc.date.none.fl_str_mv 2023-03-30
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128
url https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128
dc.language.iso.fl_str_mv spa
language spa
dc.relation.none.fl_str_mv https://periodicos.puc-campinas.edu.br/nutricao/article/view/8128/5638
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Núcleo de Editoração – PUC-Campinas
publisher.none.fl_str_mv Núcleo de Editoração – PUC-Campinas
dc.source.none.fl_str_mv Brazilian Journal of Nutrition; Vol. 29 No. 6 (2016): Revista de Nutrição
Revista de Nutrição; Vol. 29 Núm. 6 (2016): Revista de Nutrição
Revista de Nutrição; v. 29 n. 6 (2016): Revista de Nutrição
1678-9865
reponame:Revista de Nutrição
instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron:PUC_CAMP
instname_str Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron_str PUC_CAMP
institution PUC_CAMP
reponame_str Revista de Nutrição
collection Revista de Nutrição
repository.name.fl_str_mv Revista de Nutrição - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
repository.mail.fl_str_mv ||sbi.submissionrn@puc-campinas.edu.br
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