Babies with Down syndrome and their parents: new proposals for intervention

Detalhes bibliográficos
Autor(a) principal: TRAVASSOS-RODRIGUEZ, Fernanda
Data de Publicação: 2012
Outros Autores: FÉRES-CARNEIRO, Terezinha
Tipo de documento: Artigo
Idioma: por
Título da fonte: Estudos de Psicologia (Campinas)
Texto Completo: https://periodicos.puc-campinas.edu.br/estpsi/article/view/8843
Resumo:   The goal of this investigation was to study the concepts of both parents and professionals regarding the communication of Down syndrome diagnosis in maternities, and to evaluate the early stimulation device. Six mothers, one father, and eight professionals were interviewed. From the five categories emerged in the content analysis of interviews, we emphasize two of them to present in this work: the communication moment and early stimulation. We noticed that parents feel poorly assisted in maternities, as well as poorly included in early stimulation procedures with their babies. In addition, we found out that professionals in birth centers - who communicate the diagnosis to parents - and therapists who conduct the baby’s early stimulation do not generally consider the relational aspects among the members of the group parents-baby-professionals as part of their work. We present an innovative proposal of alternative forms of assistance that include the bonding aspects in clinical devices.  
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spelling Babies with Down syndrome and their parents: new proposals for interventionOs bebês com síndrome de Down e seus pais: novas propostas para intervençãoEarly interventionParent child relationDown syndromeIntervenção precoceRelação pais-criançaSíndrome de Down  The goal of this investigation was to study the concepts of both parents and professionals regarding the communication of Down syndrome diagnosis in maternities, and to evaluate the early stimulation device. Six mothers, one father, and eight professionals were interviewed. From the five categories emerged in the content analysis of interviews, we emphasize two of them to present in this work: the communication moment and early stimulation. We noticed that parents feel poorly assisted in maternities, as well as poorly included in early stimulation procedures with their babies. In addition, we found out that professionals in birth centers - who communicate the diagnosis to parents - and therapists who conduct the baby’s early stimulation do not generally consider the relational aspects among the members of the group parents-baby-professionals as part of their work. We present an innovative proposal of alternative forms of assistance that include the bonding aspects in clinical devices.  Esta investigação teve por objetivo estudar as concepções de pais e de profissionais sobre a comunicação do diagnóstico da síndrome de Down nas maternidades, bem como avaliar o dispositivo de estimulação precoce. Foram entrevistados seis mães e um pai, e oito profissionais. Das cinco categorias que emergiram da análise do conteúdo das entrevistas, duas foram destacadas neste trabalho: o momento da notícia e a estimulação precoce. Verificou-se que os pais sentem-se pouco acolhidos nas maternidades e pouco incluídos nos procedimentos de estimulação dos filhos. Constatou-se ainda que os profissionais dos centros obstétricos, que comunicam aos pais o diagnóstico do filho, e os terapeutas que realizam a estimulação precoce do bebê, em geral, não consideram os aspectos relacionais entre os membros do conjunto pais-bebê-profissionais como parte do próprio trabalho. Este trabalho apresenta uma proposta inovadora, com formas alternativas de atendimento que incluam os aspectos vinculares nesses dispositivos clínicos.Núcleo de Editoração - PUC-Campinas2012-12-31info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/8843Psychological Studies; Vol. 29 No. Suplemento 1 (2012): Estudos de Psicologia (Campinas)Estudos de Psicologia; Vol. 29 Núm. Suplemento 1 (2012): Estudos de Psicologia (Campinas)Estudos de Psicologia; v. 29 n. Suplemento 1 (2012): Estudos de Psicologia (Campinas)1982-0275reponame:Estudos de Psicologia (Campinas)instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPporhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/8843/6253Copyright (c) 2023 Fernanda TRAVASSOS-RODRIGUEZ, Terezinha FÉRES-CARNEIROhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessTRAVASSOS-RODRIGUEZ, FernandaFÉRES-CARNEIRO, Terezinha2024-04-26T14:39:31Zoai:ojs.periodicos.puc-campinas.edu.br:article/8843Revistahttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudosPRIhttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudos/oaisbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br1982-02750103-166Xopendoar:2024-04-26T14:39:31Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false
dc.title.none.fl_str_mv Babies with Down syndrome and their parents: new proposals for intervention
Os bebês com síndrome de Down e seus pais: novas propostas para intervenção
title Babies with Down syndrome and their parents: new proposals for intervention
spellingShingle Babies with Down syndrome and their parents: new proposals for intervention
TRAVASSOS-RODRIGUEZ, Fernanda
Early intervention
Parent child relation
Down syndrome
Intervenção precoce
Relação pais-criança
Síndrome de Down
title_short Babies with Down syndrome and their parents: new proposals for intervention
title_full Babies with Down syndrome and their parents: new proposals for intervention
title_fullStr Babies with Down syndrome and their parents: new proposals for intervention
title_full_unstemmed Babies with Down syndrome and their parents: new proposals for intervention
title_sort Babies with Down syndrome and their parents: new proposals for intervention
author TRAVASSOS-RODRIGUEZ, Fernanda
author_facet TRAVASSOS-RODRIGUEZ, Fernanda
FÉRES-CARNEIRO, Terezinha
author_role author
author2 FÉRES-CARNEIRO, Terezinha
author2_role author
dc.contributor.author.fl_str_mv TRAVASSOS-RODRIGUEZ, Fernanda
FÉRES-CARNEIRO, Terezinha
dc.subject.por.fl_str_mv Early intervention
Parent child relation
Down syndrome
Intervenção precoce
Relação pais-criança
Síndrome de Down
topic Early intervention
Parent child relation
Down syndrome
Intervenção precoce
Relação pais-criança
Síndrome de Down
description   The goal of this investigation was to study the concepts of both parents and professionals regarding the communication of Down syndrome diagnosis in maternities, and to evaluate the early stimulation device. Six mothers, one father, and eight professionals were interviewed. From the five categories emerged in the content analysis of interviews, we emphasize two of them to present in this work: the communication moment and early stimulation. We noticed that parents feel poorly assisted in maternities, as well as poorly included in early stimulation procedures with their babies. In addition, we found out that professionals in birth centers - who communicate the diagnosis to parents - and therapists who conduct the baby’s early stimulation do not generally consider the relational aspects among the members of the group parents-baby-professionals as part of their work. We present an innovative proposal of alternative forms of assistance that include the bonding aspects in clinical devices.  
publishDate 2012
dc.date.none.fl_str_mv 2012-12-31
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/8843
url https://periodicos.puc-campinas.edu.br/estpsi/article/view/8843
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/8843/6253
dc.rights.driver.fl_str_mv Copyright (c) 2023 Fernanda TRAVASSOS-RODRIGUEZ, Terezinha FÉRES-CARNEIRO
https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv Copyright (c) 2023 Fernanda TRAVASSOS-RODRIGUEZ, Terezinha FÉRES-CARNEIRO
https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
dc.source.none.fl_str_mv Psychological Studies; Vol. 29 No. Suplemento 1 (2012): Estudos de Psicologia (Campinas)
Estudos de Psicologia; Vol. 29 Núm. Suplemento 1 (2012): Estudos de Psicologia (Campinas)
Estudos de Psicologia; v. 29 n. Suplemento 1 (2012): Estudos de Psicologia (Campinas)
1982-0275
reponame:Estudos de Psicologia (Campinas)
instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron:PUC_CAMP
instname_str Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron_str PUC_CAMP
institution PUC_CAMP
reponame_str Estudos de Psicologia (Campinas)
collection Estudos de Psicologia (Campinas)
repository.name.fl_str_mv Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
repository.mail.fl_str_mv sbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br
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