Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents

Detalhes bibliográficos
Autor(a) principal: MONIZ, Adrianne
Data de Publicação: 2023
Outros Autores: SANTOS, Manoel Antônio dos, NASCIMENTO, Lucila Castanheira, OLIVEIRA-CARDOSO, Érika Arantes de
Tipo de documento: Artigo
Idioma: por
Título da fonte: Estudos de Psicologia (Campinas)
Texto Completo: https://periodicos.puc-campinas.edu.br/estpsi/article/view/7267
Resumo:  The diagnosis and treatment of a life-threatening disease have adverse consequences on child development and impact the family. This study aimed to investigate bereavement due to the impact of bodily and psychosocial changes resulting from Bone Marrow Transplantation from the perspective of adolescent patients and their parents. This is a qualitative, descriptive, exploratory, cross-sectional study. Nine dyads (patients and mothers / fathers) were included. Data collection took place through semi-structured audio-recorded interviews. The thematic analysis made it possible to elaborate three categories: losses due to illness; new losses experienced with treatment; learning to appreciate the gains of adverse experience. The results show that transplantation has repercussions that transcend the physical dimension and include social harm, changes in body image, and loss of friends. However, once the radical journey of transplantation is over, the participants positively connoted their experience, identifying benefits that go beyond health recovery, such as emotional maturation, improvement of self-esteem, and the ability to socialize.
id PUC_CAMP-3_9c75e6544437b6aa7a240cb3eb679c3b
oai_identifier_str oai:ojs.periodicos.puc-campinas.edu.br:article/7267
network_acronym_str PUC_CAMP-3
network_name_str Estudos de Psicologia (Campinas)
repository_id_str
spelling Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parentsTransplante de medula óssea: luto decorrente do impacto das modificações corporais e psicossociais na perspectiva de pacientes adolescentes e seus paisAdolescentsBone marrow transplantationCaregiversGriefParentsAdolescentesTransplante de medula ósseaCuidadoresLutoPais The diagnosis and treatment of a life-threatening disease have adverse consequences on child development and impact the family. This study aimed to investigate bereavement due to the impact of bodily and psychosocial changes resulting from Bone Marrow Transplantation from the perspective of adolescent patients and their parents. This is a qualitative, descriptive, exploratory, cross-sectional study. Nine dyads (patients and mothers / fathers) were included. Data collection took place through semi-structured audio-recorded interviews. The thematic analysis made it possible to elaborate three categories: losses due to illness; new losses experienced with treatment; learning to appreciate the gains of adverse experience. The results show that transplantation has repercussions that transcend the physical dimension and include social harm, changes in body image, and loss of friends. However, once the radical journey of transplantation is over, the participants positively connoted their experience, identifying benefits that go beyond health recovery, such as emotional maturation, improvement of self-esteem, and the ability to socialize.O diagnóstico e tratamento de uma doença ameaçadora à continuidade da vida repercutem no desenvolvimento infantil e impactam a família. Este estudo teve por objetivo investigar o luto relacionado ao impacto das modificações corporais e psicossociais decorrentes do transplante de medula óssea na perspectiva de pacientes adolescentes e seus pais. Trata-se de um estudo qualitativo, descritivo e exploratório, de corte transversal. Participaram do estudo nove díades (pacientes e mães/pais). A coleta de dados se deu por meio de entrevistas semiestruturadas audiogravadas. A análise temática possibilitou elaborar três categorias: perdas decorrentes do adoecimento; novas perdas vivenciadas com o tratamento e aprendendo a apreciar os ganhos da experiência adversa. Os resultados mostram que o transplante repercute em agravos que transcendem a dimensão física e incluem prejuízos sociais, alterações da imagem corporal e perda de amigos. No entanto, uma vez ultrapassada a jornada radical do transplante, os participantes conotam positivamente a experiência vivida, identificando benefícios que ultrapassam a recuperação da saúde física, como amadurecimento emocional, melhora na autoestima e na capacidade de socialização.Núcleo de Editoração - PUC-Campinas2023-01-19info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/7267Psychological Studies; Vol. 39 (2022): Estudos de Psicologia (Campinas)Estudos de Psicologia; Vol. 39 (2022): Estudos de Psicologia (Campinas)Estudos de Psicologia; v. 39 (2022): Estudos de Psicologia (Campinas)1982-0275reponame:Estudos de Psicologia (Campinas)instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)instacron:PUC_CAMPporhttps://periodicos.puc-campinas.edu.br/estpsi/article/view/7267/4832Copyright (c) 2023 Adrianne MONIZ, Manoel Antônio dos SANTOS, Lucila Castanheira NASCIMENTO, Érika Arantes de OLIVEIRA-CARDOSOhttps://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessMONIZ, AdrianneSANTOS, Manoel Antônio dosNASCIMENTO, Lucila CastanheiraOLIVEIRA-CARDOSO, Érika Arantes de2023-10-05T17:39:48Zoai:ojs.periodicos.puc-campinas.edu.br:article/7267Revistahttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudosPRIhttps://seer.sis.puc-campinas.edu.br/seer/index.php/estudos/oaisbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br1982-02750103-166Xopendoar:2023-10-05T17:39:48Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)false
dc.title.none.fl_str_mv Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
Transplante de medula óssea: luto decorrente do impacto das modificações corporais e psicossociais na perspectiva de pacientes adolescentes e seus pais
title Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
spellingShingle Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
MONIZ, Adrianne
Adolescents
Bone marrow transplantation
Caregivers
Grief
Parents
Adolescentes
Transplante de medula óssea
Cuidadores
Luto
Pais
title_short Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
title_full Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
title_fullStr Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
title_full_unstemmed Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
title_sort Bone Marrow Transplantation: bereavement due to the impact of bodily and psychosocial changes from the perspective of adolescent recipients and their parents
author MONIZ, Adrianne
author_facet MONIZ, Adrianne
SANTOS, Manoel Antônio dos
NASCIMENTO, Lucila Castanheira
OLIVEIRA-CARDOSO, Érika Arantes de
author_role author
author2 SANTOS, Manoel Antônio dos
NASCIMENTO, Lucila Castanheira
OLIVEIRA-CARDOSO, Érika Arantes de
author2_role author
author
author
dc.contributor.author.fl_str_mv MONIZ, Adrianne
SANTOS, Manoel Antônio dos
NASCIMENTO, Lucila Castanheira
OLIVEIRA-CARDOSO, Érika Arantes de
dc.subject.por.fl_str_mv Adolescents
Bone marrow transplantation
Caregivers
Grief
Parents
Adolescentes
Transplante de medula óssea
Cuidadores
Luto
Pais
topic Adolescents
Bone marrow transplantation
Caregivers
Grief
Parents
Adolescentes
Transplante de medula óssea
Cuidadores
Luto
Pais
description  The diagnosis and treatment of a life-threatening disease have adverse consequences on child development and impact the family. This study aimed to investigate bereavement due to the impact of bodily and psychosocial changes resulting from Bone Marrow Transplantation from the perspective of adolescent patients and their parents. This is a qualitative, descriptive, exploratory, cross-sectional study. Nine dyads (patients and mothers / fathers) were included. Data collection took place through semi-structured audio-recorded interviews. The thematic analysis made it possible to elaborate three categories: losses due to illness; new losses experienced with treatment; learning to appreciate the gains of adverse experience. The results show that transplantation has repercussions that transcend the physical dimension and include social harm, changes in body image, and loss of friends. However, once the radical journey of transplantation is over, the participants positively connoted their experience, identifying benefits that go beyond health recovery, such as emotional maturation, improvement of self-esteem, and the ability to socialize.
publishDate 2023
dc.date.none.fl_str_mv 2023-01-19
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
info:eu-repo/semantics/publishedVersion
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/7267
url https://periodicos.puc-campinas.edu.br/estpsi/article/view/7267
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://periodicos.puc-campinas.edu.br/estpsi/article/view/7267/4832
dc.rights.driver.fl_str_mv https://creativecommons.org/licenses/by/4.0
info:eu-repo/semantics/openAccess
rights_invalid_str_mv https://creativecommons.org/licenses/by/4.0
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
publisher.none.fl_str_mv Núcleo de Editoração - PUC-Campinas
dc.source.none.fl_str_mv Psychological Studies; Vol. 39 (2022): Estudos de Psicologia (Campinas)
Estudos de Psicologia; Vol. 39 (2022): Estudos de Psicologia (Campinas)
Estudos de Psicologia; v. 39 (2022): Estudos de Psicologia (Campinas)
1982-0275
reponame:Estudos de Psicologia (Campinas)
instname:Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron:PUC_CAMP
instname_str Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
instacron_str PUC_CAMP
institution PUC_CAMP
reponame_str Estudos de Psicologia (Campinas)
collection Estudos de Psicologia (Campinas)
repository.name.fl_str_mv Estudos de Psicologia (Campinas) - Pontifícia Universidade Católica de Campinas (PUC-CAMPINAS)
repository.mail.fl_str_mv sbi.ne_estpsi@puc-campinas.edu.br||estudosdepsicologia@puc-campinas.edu.br||psychologicalstudies@puc-campinas.edu.br
_version_ 1799126017796734976

Registros relacionados