Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng por |
Título da fonte: | Fisioterapia em Movimento |
Texto Completo: | https://periodicos.pucpr.br/fisio/article/view/29680 |
Resumo: | Introduction: Since social isolation during the COVID-19 pandemic can influence a patient’s and informal caregiver’s health, the present study was carried out to understand and improve the latter’s quality of life. Objective: To analyze the physical, mental and quality of life effects on caregivers of patients with neurological sequelae and developmental delay during the COVID-19 pandemic. Methods: Thirty informal caregivers divided into two groups (G1: Psychomotor disorders and syndromes; G2: Neurological sequelae) were evaluated using questionnaires on general data, burden and quality of life. Chi-square tests with Bonferroni post-hoc correction were performed to compare the response rate between the dependent variables and the level of burden. The student’s t-test was applied to determine the correlation between groups and quality of life, obtaining significant findings (p ≤ 0.05). Results: No or minimal burden was found in 33.3% of the caregivers, and mild to moderate in 66.7% of each group, with no significant effect between them. In terms of quality of life, a decline was found in all domains, with a significant intergroup difference in social aspects and G1 exhibiting the highest declines (G1: 70.00 ± 23.99%; G2: 86.66 ± 20.84%). Conclusion: There was a mild-to-moderate impact on physical burden, with a change in the quality of life of caregivers evaluated during the COVID-19 pandemic. Caregivers of children with psychomotor disorders and syndromes were the most affected in the social aspect domain. |
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Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders Efeitos da pandemia em cuidadores de indivíduos com alterações neuropsicomotorasIntroduction: Since social isolation during the COVID-19 pandemic can influence a patient’s and informal caregiver’s health, the present study was carried out to understand and improve the latter’s quality of life. Objective: To analyze the physical, mental and quality of life effects on caregivers of patients with neurological sequelae and developmental delay during the COVID-19 pandemic. Methods: Thirty informal caregivers divided into two groups (G1: Psychomotor disorders and syndromes; G2: Neurological sequelae) were evaluated using questionnaires on general data, burden and quality of life. Chi-square tests with Bonferroni post-hoc correction were performed to compare the response rate between the dependent variables and the level of burden. The student’s t-test was applied to determine the correlation between groups and quality of life, obtaining significant findings (p ≤ 0.05). Results: No or minimal burden was found in 33.3% of the caregivers, and mild to moderate in 66.7% of each group, with no significant effect between them. In terms of quality of life, a decline was found in all domains, with a significant intergroup difference in social aspects and G1 exhibiting the highest declines (G1: 70.00 ± 23.99%; G2: 86.66 ± 20.84%). Conclusion: There was a mild-to-moderate impact on physical burden, with a change in the quality of life of caregivers evaluated during the COVID-19 pandemic. Caregivers of children with psychomotor disorders and syndromes were the most affected in the social aspect domain.Introducão: O isolamento social durante a pandemia de COVID-19 pode influenciar a saúde do paciente e do cuidador informal. No intuito de compreender e orientar a melhora da qualidade de vida destes cuidadores, este estudo foi realizado. Objetivo: Analisar os efeitos físicos, mentais e a qualidade de vida de cuidadores de pacientes com sequelas neurológicas e atraso do desenvolvimento durante a pandemia de COVID-19. Métodos: Trinta cuidadores informais divididos em dois grupos (G1: distúrbios psicomotores e síndromes; G2: sequelas neurológicas) foram avaliados com questionários sobre dados gerais, sobrecarga e qualidade de vida. Foram realizados os testes qui-quadrado com pós-teste de Bonferroni para comparar a taxa de resposta entre as variáveis dependentes e o nível de sobrecarga. Para a correlação entre os grupos e a qualidade de vida, utilizou-se o teste t de Student não pareado, sendo significativo os achados com p ≤ 0,05. Resultados: Encontrou-se ausência de sobrecarga ou sobrecarga mínima em 33,3% e sobrecarga leve a moderada em 66,7% dos cuidadores em cada grupo, sem efeito significativo entre estes. Na qualidade de vida foi encontrado déficit em todos os domínios, com diferença significativa entre os grupos no domínio de aspectos sociais, tendo o G1 apresentado maiores déficits (G1: 70,00 ± 23,99%; G2: 86,66 ± 20,84%). Conclusão: Conclui-se que houve impacto de leve a moderado na sobrecarga física, com alteração na qualidade de vida dos cuidadores avaliados durante a pandemia de COVID-19, sendo os cuidadores de crianças com distúrbios psicomotores e síndromes os mais acometidos no aspecto social.Editora PUCPRESS2022-09-19info:eu-repo/semantics/articleinfo:eu-repo/semantics/publishedVersionapplication/pdfapplication/pdfhttps://periodicos.pucpr.br/fisio/article/view/2968010.1590/fm.2022.35145Fisioterapia em Movimento (Physical Therapy in Movement); Vol. 35 (2022): n. cont.Fisioterapia em Movimento; v. 35 (2022): n. cont.1980-5918reponame:Fisioterapia em Movimentoinstname:Pontifícia Universidade Católica do Paraná (PUC-PR)instacron:PUC_PRengporhttps://periodicos.pucpr.br/fisio/article/view/29680/25810https://periodicos.pucpr.br/fisio/article/view/29680/25811Estevam, Guilherme Augusto Pereira, Matheus Luz Rocha, Richard Gabriel Valério do Nascimentoda Silva, Larissa Araujo Tezza, Maria Helena Santos Fernani, Deborah Cristina Gonçalves Luiz Dantas, Maria Tereza Artero Pradoinfo:eu-repo/semantics/openAccess2022-10-18T14:33:53Zoai:ojs.periodicos.pucpr.br:article/29680Revistahttps://periodicos.pucpr.br/fisioPRIhttps://periodicos.pucpr.br/fisio/oairubia.farias@pucpr.br||revista.fisioterapia@pucpr.br1980-59180103-5150opendoar:2022-10-18T14:33:53Fisioterapia em Movimento - Pontifícia Universidade Católica do Paraná (PUC-PR)false |
dc.title.none.fl_str_mv |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders Efeitos da pandemia em cuidadores de indivíduos com alterações neuropsicomotoras |
title |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders |
spellingShingle |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders Estevam, Guilherme Augusto |
title_short |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders |
title_full |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders |
title_fullStr |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders |
title_full_unstemmed |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders |
title_sort |
Effects of the pandemic on caregivers of individuals with neuropsychomotor disorders |
author |
Estevam, Guilherme Augusto |
author_facet |
Estevam, Guilherme Augusto Pereira, Matheus Luz Rocha, Richard Gabriel Valério do Nascimento da Silva, Larissa Araujo Tezza, Maria Helena Santos Fernani, Deborah Cristina Gonçalves Luiz Dantas, Maria Tereza Artero Prado |
author_role |
author |
author2 |
Pereira, Matheus Luz Rocha, Richard Gabriel Valério do Nascimento da Silva, Larissa Araujo Tezza, Maria Helena Santos Fernani, Deborah Cristina Gonçalves Luiz Dantas, Maria Tereza Artero Prado |
author2_role |
author author author author author author |
dc.contributor.author.fl_str_mv |
Estevam, Guilherme Augusto Pereira, Matheus Luz Rocha, Richard Gabriel Valério do Nascimento da Silva, Larissa Araujo Tezza, Maria Helena Santos Fernani, Deborah Cristina Gonçalves Luiz Dantas, Maria Tereza Artero Prado |
description |
Introduction: Since social isolation during the COVID-19 pandemic can influence a patient’s and informal caregiver’s health, the present study was carried out to understand and improve the latter’s quality of life. Objective: To analyze the physical, mental and quality of life effects on caregivers of patients with neurological sequelae and developmental delay during the COVID-19 pandemic. Methods: Thirty informal caregivers divided into two groups (G1: Psychomotor disorders and syndromes; G2: Neurological sequelae) were evaluated using questionnaires on general data, burden and quality of life. Chi-square tests with Bonferroni post-hoc correction were performed to compare the response rate between the dependent variables and the level of burden. The student’s t-test was applied to determine the correlation between groups and quality of life, obtaining significant findings (p ≤ 0.05). Results: No or minimal burden was found in 33.3% of the caregivers, and mild to moderate in 66.7% of each group, with no significant effect between them. In terms of quality of life, a decline was found in all domains, with a significant intergroup difference in social aspects and G1 exhibiting the highest declines (G1: 70.00 ± 23.99%; G2: 86.66 ± 20.84%). Conclusion: There was a mild-to-moderate impact on physical burden, with a change in the quality of life of caregivers evaluated during the COVID-19 pandemic. Caregivers of children with psychomotor disorders and syndromes were the most affected in the social aspect domain. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-09-19 |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://periodicos.pucpr.br/fisio/article/view/29680 10.1590/fm.2022.35145 |
url |
https://periodicos.pucpr.br/fisio/article/view/29680 |
identifier_str_mv |
10.1590/fm.2022.35145 |
dc.language.iso.fl_str_mv |
eng por |
language |
eng por |
dc.relation.none.fl_str_mv |
https://periodicos.pucpr.br/fisio/article/view/29680/25810 https://periodicos.pucpr.br/fisio/article/view/29680/25811 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Editora PUCPRESS |
publisher.none.fl_str_mv |
Editora PUCPRESS |
dc.source.none.fl_str_mv |
Fisioterapia em Movimento (Physical Therapy in Movement); Vol. 35 (2022): n. cont. Fisioterapia em Movimento; v. 35 (2022): n. cont. 1980-5918 reponame:Fisioterapia em Movimento instname:Pontifícia Universidade Católica do Paraná (PUC-PR) instacron:PUC_PR |
instname_str |
Pontifícia Universidade Católica do Paraná (PUC-PR) |
instacron_str |
PUC_PR |
institution |
PUC_PR |
reponame_str |
Fisioterapia em Movimento |
collection |
Fisioterapia em Movimento |
repository.name.fl_str_mv |
Fisioterapia em Movimento - Pontifícia Universidade Católica do Paraná (PUC-PR) |
repository.mail.fl_str_mv |
rubia.farias@pucpr.br||revista.fisioterapia@pucpr.br |
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1799138749949411328 |