Health data privacy and confidentiality rights

Detalhes bibliográficos
Autor(a) principal: Faria, Paula Lobato De
Data de Publicação: 2014
Outros Autores: Cordeiro, João Valente
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: https://doi.org/10.1016/j.rpsp.2014.10.001
Resumo: Scopus ID: 84919390245 SciELO: S0870-90252014000200002
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spelling Health data privacy and confidentiality rightsDireito à vida privada e à confidencialidade de dados de saúdecrise ou redenção?crisis or redemption?European data protection lawHealth dataHealth data protection and securityPatient's rightsRight to confidentialityRight to privacyHealth PolicyPublic Health, Environmental and Occupational HealthSDG 3 - Good Health and Well-beingScopus ID: 84919390245 SciELO: S0870-90252014000200002Although widely analyzed by authors and theoretically valued by the public, the right to health data confidentiality seems to be more of an academic figure than a real protected right. This happens due to intrinsic problems with the practical enforcement of some patient's rights, but is getting more notorious in contemporary society. This article describes the rights to health data privacy and confidentiality in their classical contours, focusing on areas of consensus and controversy and analyzing the recent transformations in society that are causing a crisis in these same rights. We agree that there are reasons to believe that there are no novel legal instruments in Health Law to redeem these rights, except for European Data Protection Law. Here, we briefly analyze the new European data protection draft regulation, which intends to bring reinforced tools on this domain. We conclude that the juridical aura that still embraces the right to medical and genetic data confidentiality in Health Law and Bioethics seems to no longer have a practical sense. However, despite this perception, the essential dimension of individual freedom relating to personal information and to the notion that the less is known about us the freer we all are is still very relevant and so Health Law needs to dedicate more attention to the transformations of privacy and confidentiality in the medical and genetic fields in order to maintain them protected and respected.Escola Nacional de Saúde Pública (ENSP)RUNFaria, Paula Lobato DeCordeiro, João Valente2018-03-08T23:04:04Z2014-07-012014-07-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article11application/pdfhttps://doi.org/10.1016/j.rpsp.2014.10.0010870-9025PURE: 1221027http://www.scopus.com/inward/record.url?scp=84919390245&partnerID=8YFLogxKhttps://doi.org/10.1016/j.rpsp.2014.10.001info:eu-repo/semantics/openAccessporreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T04:17:52Zoai:run.unl.pt:10362/32075Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:29:48.547013Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Health data privacy and confidentiality rights
Direito à vida privada e à confidencialidade de dados de saúdecrise ou redenção?
crisis or redemption?
title Health data privacy and confidentiality rights
spellingShingle Health data privacy and confidentiality rights
Faria, Paula Lobato De
European data protection law
Health data
Health data protection and security
Patient's rights
Right to confidentiality
Right to privacy
Health Policy
Public Health, Environmental and Occupational Health
SDG 3 - Good Health and Well-being
title_short Health data privacy and confidentiality rights
title_full Health data privacy and confidentiality rights
title_fullStr Health data privacy and confidentiality rights
title_full_unstemmed Health data privacy and confidentiality rights
title_sort Health data privacy and confidentiality rights
author Faria, Paula Lobato De
author_facet Faria, Paula Lobato De
Cordeiro, João Valente
author_role author
author2 Cordeiro, João Valente
author2_role author
dc.contributor.none.fl_str_mv Escola Nacional de Saúde Pública (ENSP)
RUN
dc.contributor.author.fl_str_mv Faria, Paula Lobato De
Cordeiro, João Valente
dc.subject.por.fl_str_mv European data protection law
Health data
Health data protection and security
Patient's rights
Right to confidentiality
Right to privacy
Health Policy
Public Health, Environmental and Occupational Health
SDG 3 - Good Health and Well-being
topic European data protection law
Health data
Health data protection and security
Patient's rights
Right to confidentiality
Right to privacy
Health Policy
Public Health, Environmental and Occupational Health
SDG 3 - Good Health and Well-being
description Scopus ID: 84919390245 SciELO: S0870-90252014000200002
publishDate 2014
dc.date.none.fl_str_mv 2014-07-01
2014-07-01T00:00:00Z
2018-03-08T23:04:04Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://doi.org/10.1016/j.rpsp.2014.10.001
url https://doi.org/10.1016/j.rpsp.2014.10.001
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv 0870-9025
PURE: 1221027
http://www.scopus.com/inward/record.url?scp=84919390245&partnerID=8YFLogxK
https://doi.org/10.1016/j.rpsp.2014.10.001
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv 11
application/pdf
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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