Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study

Detalhes bibliográficos
Autor(a) principal: Santos, Teresa
Data de Publicação: 2016
Outros Autores: Matos, Margarida Gaspar de, Marques, Adilson, Simões, Celeste, Leal, Isabel, Machado, Maria do Céu
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/27389
Resumo: © The Author(s). 2016 Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
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spelling Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context studyAdolescentsChronic health conditionsHealth-related quality of lifePsychosocial factorsPsychosomatic healthResilience© The Author(s). 2016 Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.Background: Adolescents with chronic disease (CD) can be more vulnerable to adverse psychosocial outcomes. This study aims: 1) to identify differences in psychosocial variables (health-related quality of life, psychosomatic complaints, resilience, self-regulation and social support) among adolescents who feel that CD affects or does not affect school/peers connectedness (measured by self-reported participation in school and social activities); and 2) to assess the extent to which psychosocial variables are associated with connectedness in school and peer domains. Methods: A cross-sectional study was conducted in 135 adolescents with CD (51.9% boys), average age of 14 ± 1. 5 years old (SD = 1.5). Socio-demographic, clinical, and psychosocial variables were assessed, using a self-reported questionnaire, which included the Chronic Conditions Short Questionnaire, KIDSCREEN-10 Index, Symptoms Check-List, Healthy Kids Resilience Assessment Module Scale, Adolescent Self-Regulatory Inventory, and Satisfaction with Social Support Scale. Descriptive statistics, GLM-Univariate ANCOVA and Logistic Regression were performed using the IBM Statistical Package for Social Sciences (SPSS), version 22.0. The significance level was set at p < 0.05. Results: Thirteen to eighteen percent of the adolescents felt that CD affected participation at school (PSCH) and participation in leisure time with friends (PLTF). These adolescents presented lower results for all psychosocial study variables, when compared with adolescents who did not feel affected in both areas of participation. From the studied psychosocial variables, the most important ones associated with PSCH (after controlling for age, gender, diagnosis, and education level of father/mother) were self-regulation and psychosomatic health. Concerning the PLTF, social support was the sole variable explaining such association. Conclusions: The present study pointed out the association between psychosocial variables; and living with a CD and school/peers connectedness. The need to focus on the assessment of the effects of a CD on adolescents’ lives and contexts is suggested, as well as on the identification of vulnerable adolescents. Such identification could help to facilitate the maximization of social participation of adolescents with CD, and to plan interventions centered on providing support and opportunities for a healthy youth development. For that purpose, a complex and multifactorial approach that includes clinicians, schools, family, and peers may be proposed.Santos, T. was supported by a PhD grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: reference SFRH/BD/82066/2011). The William James Center for Research, ISPA - Instituto Universitário is supported by a grant from the Portuguese Foundation for Science and Technology (FCT) (Grant Number: UID/PSI/04810/2013).BioMed CentralRepositório da Universidade de LisboaSantos, TeresaMatos, Margarida Gaspar deMarques, AdilsonSimões, CelesteLeal, IsabelMachado, Maria do Céu2017-04-05T10:48:51Z20162016-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/27389engBMC Pediatr. 2016; 16: 2111471-243110.1186/s12887-016-0748-xinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:18:13Zoai:repositorio.ul.pt:10451/27389Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:43:48.804498Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
title Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
spellingShingle Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
Santos, Teresa
Adolescents
Chronic health conditions
Health-related quality of life
Psychosocial factors
Psychosomatic health
Resilience
title_short Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
title_full Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
title_fullStr Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
title_full_unstemmed Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
title_sort Adolescent’s subjective perceptions of chronic disease and related psychosocial factors : highlights from an outpatient context study
author Santos, Teresa
author_facet Santos, Teresa
Matos, Margarida Gaspar de
Marques, Adilson
Simões, Celeste
Leal, Isabel
Machado, Maria do Céu
author_role author
author2 Matos, Margarida Gaspar de
Marques, Adilson
Simões, Celeste
Leal, Isabel
Machado, Maria do Céu
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Santos, Teresa
Matos, Margarida Gaspar de
Marques, Adilson
Simões, Celeste
Leal, Isabel
Machado, Maria do Céu
dc.subject.por.fl_str_mv Adolescents
Chronic health conditions
Health-related quality of life
Psychosocial factors
Psychosomatic health
Resilience
topic Adolescents
Chronic health conditions
Health-related quality of life
Psychosocial factors
Psychosomatic health
Resilience
description © The Author(s). 2016 Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
publishDate 2016
dc.date.none.fl_str_mv 2016
2016-01-01T00:00:00Z
2017-04-05T10:48:51Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/27389
url http://hdl.handle.net/10451/27389
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv BMC Pediatr. 2016; 16: 211
1471-2431
10.1186/s12887-016-0748-x
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv BioMed Central
publisher.none.fl_str_mv BioMed Central
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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