A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://doi.org/10.17645/si.v6i2.1358 |
Resumo: | The Swedish system of disability support is often praised for its comparably well-developed Personal Assistance (PA) scheme. PA is formally prescribed as a social right for disabled people with comprehensive support needs in the Act Concerning Support and Services to Persons with Certain Functional Impairments (LSS). In the decade following the introduction of LSS in 1994, the PA-scheme expanded steadily to accommodate the support needs of more and more disabled people. It is commonly believed that the expansion of PA has substantially boosted the agency of both disabled people and their relatives. This article critically discusses in what direction the Swedish system of disability support has moved in the past decade. Is the common image of a system moving towards an ever increasing defamilialization of disability support still accurate? Or are there signs of stagnation, or even reversal towards refamilialization? What are the possible consequences of the more recent developments for disabled people and their relatives in terms of agency and equality? These questions will be discussed with the help of an analysis of the regulatory framework of disability support, statistical data and findings from public reports. |
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A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Swedenagency; assistance allowance; defamilialization; disability support; equality; familialism; personal assistance; SwedenThe Swedish system of disability support is often praised for its comparably well-developed Personal Assistance (PA) scheme. PA is formally prescribed as a social right for disabled people with comprehensive support needs in the Act Concerning Support and Services to Persons with Certain Functional Impairments (LSS). In the decade following the introduction of LSS in 1994, the PA-scheme expanded steadily to accommodate the support needs of more and more disabled people. It is commonly believed that the expansion of PA has substantially boosted the agency of both disabled people and their relatives. This article critically discusses in what direction the Swedish system of disability support has moved in the past decade. Is the common image of a system moving towards an ever increasing defamilialization of disability support still accurate? Or are there signs of stagnation, or even reversal towards refamilialization? What are the possible consequences of the more recent developments for disabled people and their relatives in terms of agency and equality? These questions will be discussed with the help of an analysis of the regulatory framework of disability support, statistical data and findings from public reports.Cogitatio2018-05-17info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.17645/si.v6i2.1358oai:ojs.cogitatiopress.com:article/1358Social Inclusion; Vol 6, No 2 (2018): Global Perspectives on Disability; 56-652183-2803reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPenghttps://www.cogitatiopress.com/socialinclusion/article/view/1358https://doi.org/10.17645/si.v6i2.1358https://www.cogitatiopress.com/socialinclusion/article/view/1358/1358Copyright (c) 2018 Dietmar Rauch, Elisabeth Olin, Anna Dunérhttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessRauch, DietmarOlin, ElisabethDunér, Anna2022-12-20T10:58:16Zoai:ojs.cogitatiopress.com:article/1358Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T16:21:10.789328Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
title |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
spellingShingle |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden Rauch, Dietmar agency; assistance allowance; defamilialization; disability support; equality; familialism; personal assistance; Sweden |
title_short |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
title_full |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
title_fullStr |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
title_full_unstemmed |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
title_sort |
A Refamilialized System? An Analysis of Recent Developments of Personal Assistance in Sweden |
author |
Rauch, Dietmar |
author_facet |
Rauch, Dietmar Olin, Elisabeth Dunér, Anna |
author_role |
author |
author2 |
Olin, Elisabeth Dunér, Anna |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Rauch, Dietmar Olin, Elisabeth Dunér, Anna |
dc.subject.por.fl_str_mv |
agency; assistance allowance; defamilialization; disability support; equality; familialism; personal assistance; Sweden |
topic |
agency; assistance allowance; defamilialization; disability support; equality; familialism; personal assistance; Sweden |
description |
The Swedish system of disability support is often praised for its comparably well-developed Personal Assistance (PA) scheme. PA is formally prescribed as a social right for disabled people with comprehensive support needs in the Act Concerning Support and Services to Persons with Certain Functional Impairments (LSS). In the decade following the introduction of LSS in 1994, the PA-scheme expanded steadily to accommodate the support needs of more and more disabled people. It is commonly believed that the expansion of PA has substantially boosted the agency of both disabled people and their relatives. This article critically discusses in what direction the Swedish system of disability support has moved in the past decade. Is the common image of a system moving towards an ever increasing defamilialization of disability support still accurate? Or are there signs of stagnation, or even reversal towards refamilialization? What are the possible consequences of the more recent developments for disabled people and their relatives in terms of agency and equality? These questions will be discussed with the help of an analysis of the regulatory framework of disability support, statistical data and findings from public reports. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-05-17 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://doi.org/10.17645/si.v6i2.1358 oai:ojs.cogitatiopress.com:article/1358 |
url |
https://doi.org/10.17645/si.v6i2.1358 |
identifier_str_mv |
oai:ojs.cogitatiopress.com:article/1358 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
https://www.cogitatiopress.com/socialinclusion/article/view/1358 https://doi.org/10.17645/si.v6i2.1358 https://www.cogitatiopress.com/socialinclusion/article/view/1358/1358 |
dc.rights.driver.fl_str_mv |
Copyright (c) 2018 Dietmar Rauch, Elisabeth Olin, Anna Dunér http://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Copyright (c) 2018 Dietmar Rauch, Elisabeth Olin, Anna Dunér http://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Cogitatio |
publisher.none.fl_str_mv |
Cogitatio |
dc.source.none.fl_str_mv |
Social Inclusion; Vol 6, No 2 (2018): Global Perspectives on Disability; 56-65 2183-2803 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
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1799130658780479488 |