Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment
Autor(a) principal: | |
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Data de Publicação: | 2014 |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://scielo.pt/scielo.php?script=sci_arttext&pid=S0870-90252014000200007 |
Resumo: | This article overviews the important ethical and legal challenges of different steps of the personalized medicine journey such as research, prevention, diagnosis and treatment by discussing paradigmatic examples including biobanks, genetic tests and gene therapy. Scientific progress in the area of genetics, the completion of the Human Genome Project and the ability to sequence genomes for competitive prices have offered the promise of revolutionizing healthcare and raised important challenges to classical paradigms in the biomedical law and ethics fields. Issues such as informed consent, privacy and confidentiality, and discrimination require particular analysis in this context. In the last years the concept of personalized medicine has been a source of considerable hype and hope. Law and ethics should be important allies to limit the former and potentiate the later. |
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Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatmentPersonalized medicineBiobanksGeneticsGenomicsGenetic testsGene therapyPublic health law and ethicsThis article overviews the important ethical and legal challenges of different steps of the personalized medicine journey such as research, prevention, diagnosis and treatment by discussing paradigmatic examples including biobanks, genetic tests and gene therapy. Scientific progress in the area of genetics, the completion of the Human Genome Project and the ability to sequence genomes for competitive prices have offered the promise of revolutionizing healthcare and raised important challenges to classical paradigms in the biomedical law and ethics fields. Issues such as informed consent, privacy and confidentiality, and discrimination require particular analysis in this context. In the last years the concept of personalized medicine has been a source of considerable hype and hope. Law and ethics should be important allies to limit the former and potentiate the later.Escola Nacional de Saúde Pública2014-12-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articletext/htmlhttp://scielo.pt/scielo.php?script=sci_arttext&pid=S0870-90252014000200007Revista Portuguesa de Saúde Pública v.32 n.2 2014reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPenghttp://scielo.pt/scielo.php?script=sci_arttext&pid=S0870-90252014000200007Cordeiro,João V.info:eu-repo/semantics/openAccess2024-02-06T17:01:19Zoai:scielo:S0870-90252014000200007Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T02:16:50.083264Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment |
title |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment |
spellingShingle |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment Cordeiro,João V. Personalized medicine Biobanks Genetics Genomics Genetic tests Gene therapy Public health law and ethics |
title_short |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment |
title_full |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment |
title_fullStr |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment |
title_full_unstemmed |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment |
title_sort |
Ethical and legal challenges of personalized medicine: Paradigmatic examples of research, prevention, diagnosis and treatment |
author |
Cordeiro,João V. |
author_facet |
Cordeiro,João V. |
author_role |
author |
dc.contributor.author.fl_str_mv |
Cordeiro,João V. |
dc.subject.por.fl_str_mv |
Personalized medicine Biobanks Genetics Genomics Genetic tests Gene therapy Public health law and ethics |
topic |
Personalized medicine Biobanks Genetics Genomics Genetic tests Gene therapy Public health law and ethics |
description |
This article overviews the important ethical and legal challenges of different steps of the personalized medicine journey such as research, prevention, diagnosis and treatment by discussing paradigmatic examples including biobanks, genetic tests and gene therapy. Scientific progress in the area of genetics, the completion of the Human Genome Project and the ability to sequence genomes for competitive prices have offered the promise of revolutionizing healthcare and raised important challenges to classical paradigms in the biomedical law and ethics fields. Issues such as informed consent, privacy and confidentiality, and discrimination require particular analysis in this context. In the last years the concept of personalized medicine has been a source of considerable hype and hope. Law and ethics should be important allies to limit the former and potentiate the later. |
publishDate |
2014 |
dc.date.none.fl_str_mv |
2014-12-01 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://scielo.pt/scielo.php?script=sci_arttext&pid=S0870-90252014000200007 |
url |
http://scielo.pt/scielo.php?script=sci_arttext&pid=S0870-90252014000200007 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
http://scielo.pt/scielo.php?script=sci_arttext&pid=S0870-90252014000200007 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
text/html |
dc.publisher.none.fl_str_mv |
Escola Nacional de Saúde Pública |
publisher.none.fl_str_mv |
Escola Nacional de Saúde Pública |
dc.source.none.fl_str_mv |
Revista Portuguesa de Saúde Pública v.32 n.2 2014 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
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1799137264020750336 |