Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030

Detalhes bibliográficos
Autor(a) principal: Sá-Sousa, Ana
Data de Publicação: 2021
Outros Autores: Pereira, Ana M., Marques, João G., Neuparth, N, Fonseca, João A., Jácome, Cristina
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10362/130619
Resumo: Publisher Copyright: © 2021 Sociedade Portuguesa de Alergologia e Imunologia Clínica.
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spelling Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030Pasma 20-30 – online panel of patients for the surveillance of asthma control 2020-2030A prospective dynamic cohort studyUm estudo de coorte dinâmico prospetivoAsthmaDisease managementLongitudinal studyImmunology and AllergyImmunologyPublisher Copyright: © 2021 Sociedade Portuguesa de Alergologia e Imunologia Clínica.Background: Since the last Portuguese National Asthma Survey (2010), important developments on the knowledge of asthma, its classification, and therapeutic options have occurred. Also, the evolution of information and communication technologies promotes the use of new data collection methodologies and the existence of digital tools simplifies longitudinal data collection, namely by the establishment of an online panel of participants. Objectives: The main objective of this project is the establishment of a national panel of patients with asthma for the surveillance of variations on disease control in the next 10 years (2020-2030). With that purpose, we aim to develop and implement an online platform for the collection of data related to asthma in Portugal and to carry out an initial study to estimate the variation, between 2010 and 2021, of the proportion of patients with uncontrolled asthma in Portugal. Methods: This is an ongoing observational study based on the establishment of an open cohort of patients with asthma, using an online platform that will include an initial questionnaire and, in a second step, complementary questions for further characterization. The study population consists of adolescents (>14 years old) and adults with current asthma (previous diagnosis of asthma, or two or more positive answers to validated screening questionnaire, or who are currently taking asthma medication), living in Portugal. Asthma control will be based on the Control of Allergic Rhinitis and Asthma Test (CARAT) and defined by a total score > 24 or the lower airways score ≥ 16. Expected results: With this project, an open cohort of patients with asthma will be obtained through an online questionnaire. Also, the implementation of an online platform for an ongoing collection of data on asthma will gather up-to-date and robust information based on ‘real world’ data, collected using an easy-to-use, high-reach methodology. The data obtained in the initial study will improve the knowledge of the determinants of disease management and its impact on the use of health resources. Conclusion: The estab-lishment of an online panel of patients with asthma that, together with an online tool to support observational studies have the poten-tial to generate knowledge on the evolution of asthma management at the national level. This project will therefore contribute to inform health policies and improve the clinical outcomes of patients with asthma in Portugal.NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)Comprehensive Health Research Centre (CHRC) - pólo NMSRUNSá-Sousa, AnaPereira, Ana M.Marques, João G.Neuparth, NFonseca, João A.Jácome, Cristina2022-01-11T03:18:31Z20212021-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article10application/pdfhttp://hdl.handle.net/10362/130619por0871-9721PURE: 35939231https://doi.org/10.32932/rpia.2021.12.071info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T05:09:14Zoai:run.unl.pt:10362/130619Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:46:49.590722Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
Pasma 20-30 – online panel of patients for the surveillance of asthma control 2020-2030A prospective dynamic cohort study
Um estudo de coorte dinâmico prospetivo
title Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
spellingShingle Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
Sá-Sousa, Ana
Asthma
Disease management
Longitudinal study
Immunology and Allergy
Immunology
title_short Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
title_full Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
title_fullStr Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
title_full_unstemmed Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
title_sort Pasma 20-30 – painel online de doentes para monitorização do controlo da asma 2020-2030
author Sá-Sousa, Ana
author_facet Sá-Sousa, Ana
Pereira, Ana M.
Marques, João G.
Neuparth, N
Fonseca, João A.
Jácome, Cristina
author_role author
author2 Pereira, Ana M.
Marques, João G.
Neuparth, N
Fonseca, João A.
Jácome, Cristina
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
Comprehensive Health Research Centre (CHRC) - pólo NMS
RUN
dc.contributor.author.fl_str_mv Sá-Sousa, Ana
Pereira, Ana M.
Marques, João G.
Neuparth, N
Fonseca, João A.
Jácome, Cristina
dc.subject.por.fl_str_mv Asthma
Disease management
Longitudinal study
Immunology and Allergy
Immunology
topic Asthma
Disease management
Longitudinal study
Immunology and Allergy
Immunology
description Publisher Copyright: © 2021 Sociedade Portuguesa de Alergologia e Imunologia Clínica.
publishDate 2021
dc.date.none.fl_str_mv 2021
2021-01-01T00:00:00Z
2022-01-11T03:18:31Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10362/130619
url http://hdl.handle.net/10362/130619
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv 0871-9721
PURE: 35939231
https://doi.org/10.32932/rpia.2021.12.071
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv 10
application/pdf
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
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