Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://onco.news/index.php/journal/article/view/77 |
Resumo: | Myeloproliferative neoplasms (PH-) – Myelofibrosis, Polycythemia Vera and Essential Thrombocythemia – represents a heterogeneous disorders of the hematopoietic system associated with debilitating symptoms with consequent reduction of the quality of life and negative impact on the daily activities of of patients. The National Comprehensive Cancer Network (NCCN) guidelines, based on the Myeloproliferative Neoplasm Symptom Assessment Form, Total Symptom Score (MPN-SAF TSS) tool, were initiated by some Portuguese hospitals and began monitoring and, systematically, evaluating the symptoms of these patients. This tool, validated for the Portuguese language, has been applied with the support of the nursing teams. In Nurses Focus Group model they discuss the main challenges in using the MPN-10 assessment tool, following which the present guide was developed. The most relevant aspects of the application of this tool were identified: 1) to take into account that it is a self-completion scale; 2) the tool aims to assess the impact of the symptom using numerical categories and 3) the healthcare professionals should not refer / induce the patient for comparison with previous evaluations. To facilitate the understanding of the MPN-10 and methodology of filling by the patient, additional information was developed on each of the symptoms for use by the health professional at the moment of information/clarification to the patient. |
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Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scaleGuia de apoio para avaliação de sintomalogia em doentes com síndromes mieloproliferativos através da aplicação da escala mpn-10Neoplasias MieloproliferativasSintomasMPN-10Myeloproliferative neoplasmsSymptomsMPN-10Myeloproliferative neoplasms (PH-) – Myelofibrosis, Polycythemia Vera and Essential Thrombocythemia – represents a heterogeneous disorders of the hematopoietic system associated with debilitating symptoms with consequent reduction of the quality of life and negative impact on the daily activities of of patients. The National Comprehensive Cancer Network (NCCN) guidelines, based on the Myeloproliferative Neoplasm Symptom Assessment Form, Total Symptom Score (MPN-SAF TSS) tool, were initiated by some Portuguese hospitals and began monitoring and, systematically, evaluating the symptoms of these patients. This tool, validated for the Portuguese language, has been applied with the support of the nursing teams. In Nurses Focus Group model they discuss the main challenges in using the MPN-10 assessment tool, following which the present guide was developed. The most relevant aspects of the application of this tool were identified: 1) to take into account that it is a self-completion scale; 2) the tool aims to assess the impact of the symptom using numerical categories and 3) the healthcare professionals should not refer / induce the patient for comparison with previous evaluations. To facilitate the understanding of the MPN-10 and methodology of filling by the patient, additional information was developed on each of the symptoms for use by the health professional at the moment of information/clarification to the patient.As neoplasias mieloproliferativas cromossoma Filadélfia negativo (PH-), em particular a Mielofibrose, Policitemia Vera e Trombocitemia Essencial, representam um grupo heterogéneo de distúrbios do sistema hematopoiético associado a sintomas debilitantes com consequente redução da qualidade de vida e impacto negativo nas atividades de vida diária dos doentes. Focados nestes aspectos, algumas unidades hospitalares portuguesas iniciaram a monitorização e avaliação sistemática dos sintomas destes doentes tomando por base a escala Myeloproliferative Neoplasm Symptom Assessment Form, Total Symptom Score (MPN-SAF TSS), conforme recomendado pelas guidelines da National Comprehensive Cancer Network (NCCN). A escala, validada para a língua portuguesa, tem sido aplicada com o apoio das equipas de enfermagem destes centros. Os profissionais de saúde envolvidos estiveram reunidos, em modelo de Focus Group, para debater os principais desafios inerentes à utilização da escala MPN-10, na sequência do qual foi desenvolvido o presente guia. Foram identificados como aspetos mais relevantes na aplicação da escala: 1) ter em consideração que se trata de uma escala de auto-preenchimento; 2) a escala visa a avaliação do impacto do sintoma recorrendo a categorias numéricas e, 3) o profissional não deve remeter / induzir o doente para comparação com avaliações anteriores. Para facilitar a compreensão da escala e metodologia de preenchimento pelo doente foi desenvolvida informação adicional sobre cada um dos sintomas para utilização pelo profissional de saúde no momento de informação / esclarecimentos ao doente.AEOP – Associação de Enfermagem Oncológica Portuguesa2018-06-20info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://onco.news/index.php/journal/article/view/77Onco.news; No. 36 (2018): Onco.News Journal (january-june); 41-44Onco.News; N.º 36 (2018): Revista Onco.News (janeiro-junho); 41-442183-69141646-7868reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://onco.news/index.php/journal/article/view/77https://onco.news/index.php/journal/article/view/77/93Direitos de Autor (c) 2018 Andreia Rocha, Cláudia Ricou , Elisabete Pereira, Elisabete Valério , Júan Sanchez, M. Jorge Freitas, Márcia Caeiro, Maria Sarmento , Marta Duarte, Sandra Ponte , Sónia Friasinfo:eu-repo/semantics/openAccessRocha, AndreiaRicou , CláudiaPereira, ElisabeteValério , ElisabeteSanchez, JúanJorge Freitas, M.Caeiro, MárciaSarmento , MariaDuarte, MartaPonte , SandraFrias, Sónia2024-03-16T07:55:16Zoai:oai.onco.news:article/77Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T04:01:21.061662Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale Guia de apoio para avaliação de sintomalogia em doentes com síndromes mieloproliferativos através da aplicação da escala mpn-10 |
title |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale |
spellingShingle |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale Rocha, Andreia Neoplasias Mieloproliferativas Sintomas MPN-10 Myeloproliferative neoplasms Symptoms MPN-10 |
title_short |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale |
title_full |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale |
title_fullStr |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale |
title_full_unstemmed |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale |
title_sort |
Support guide for symptom assessment in patients with myeloproliferative syndromes using the mpn-10 scale |
author |
Rocha, Andreia |
author_facet |
Rocha, Andreia Ricou , Cláudia Pereira, Elisabete Valério , Elisabete Sanchez, Júan Jorge Freitas, M. Caeiro, Márcia Sarmento , Maria Duarte, Marta Ponte , Sandra Frias, Sónia |
author_role |
author |
author2 |
Ricou , Cláudia Pereira, Elisabete Valério , Elisabete Sanchez, Júan Jorge Freitas, M. Caeiro, Márcia Sarmento , Maria Duarte, Marta Ponte , Sandra Frias, Sónia |
author2_role |
author author author author author author author author author author |
dc.contributor.author.fl_str_mv |
Rocha, Andreia Ricou , Cláudia Pereira, Elisabete Valério , Elisabete Sanchez, Júan Jorge Freitas, M. Caeiro, Márcia Sarmento , Maria Duarte, Marta Ponte , Sandra Frias, Sónia |
dc.subject.por.fl_str_mv |
Neoplasias Mieloproliferativas Sintomas MPN-10 Myeloproliferative neoplasms Symptoms MPN-10 |
topic |
Neoplasias Mieloproliferativas Sintomas MPN-10 Myeloproliferative neoplasms Symptoms MPN-10 |
description |
Myeloproliferative neoplasms (PH-) – Myelofibrosis, Polycythemia Vera and Essential Thrombocythemia – represents a heterogeneous disorders of the hematopoietic system associated with debilitating symptoms with consequent reduction of the quality of life and negative impact on the daily activities of of patients. The National Comprehensive Cancer Network (NCCN) guidelines, based on the Myeloproliferative Neoplasm Symptom Assessment Form, Total Symptom Score (MPN-SAF TSS) tool, were initiated by some Portuguese hospitals and began monitoring and, systematically, evaluating the symptoms of these patients. This tool, validated for the Portuguese language, has been applied with the support of the nursing teams. In Nurses Focus Group model they discuss the main challenges in using the MPN-10 assessment tool, following which the present guide was developed. The most relevant aspects of the application of this tool were identified: 1) to take into account that it is a self-completion scale; 2) the tool aims to assess the impact of the symptom using numerical categories and 3) the healthcare professionals should not refer / induce the patient for comparison with previous evaluations. To facilitate the understanding of the MPN-10 and methodology of filling by the patient, additional information was developed on each of the symptoms for use by the health professional at the moment of information/clarification to the patient. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-06-20 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://onco.news/index.php/journal/article/view/77 |
url |
https://onco.news/index.php/journal/article/view/77 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
https://onco.news/index.php/journal/article/view/77 https://onco.news/index.php/journal/article/view/77/93 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
AEOP – Associação de Enfermagem Oncológica Portuguesa |
publisher.none.fl_str_mv |
AEOP – Associação de Enfermagem Oncológica Portuguesa |
dc.source.none.fl_str_mv |
Onco.news; No. 36 (2018): Onco.News Journal (january-june); 41-44 Onco.News; N.º 36 (2018): Revista Onco.News (janeiro-junho); 41-44 2183-6914 1646-7868 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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