EpiReumaPt: how to perform a national population based study - a practical guide
Autor(a) principal: | |
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Data de Publicação: | 2015 |
Outros Autores: | , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://www.scopus.com/inward/record.url?scp=85014460039&partnerID=8YFLogxK |
Resumo: | BACKGROUND: The aim of this article was to describe and discuss several strategies and standard operating procedures undertaken in the EpiReumaPt study - which was the first Portuguese, national, cross-sectional population-based study of Rheumatic and Musculoskeletal Diseases (RMD). METHODS: The technical procedures, legal issues, management and practical questions were studied, analyzed and discussed with relevant stakeholders. During the 1st phase of EpiReumaPt the coordination team and Centro de Estudos de Sondagens e Opinião (CESOP) worked to recruit and interview 10,661 subjects. The 2nd phase involved the participation of a multidisciplinary team, several local authorities, a specialized vehicle ("mobile unit") and a specific software program for the clinical appointments. The development of specific recruitment strategies improved the participation rate. Blood samples were collected and sent to Biobanco-IMM and to a central lab for immediate measurements. In the 3rd phase the RMD diagnosis were validated by a team of three experienced rheumatologists - clinical data, imaging and lab test results were revised according to previously published classification criteria. CONCLUSION: EpiReumaPt was a nationwide project successfully conducted, which followed critical logistic/coordination and research strategies. EpiReumaPt methodology and coordination could be used as an example for other epidemiologic endeavors and public health policies. |
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EpiReumaPt: how to perform a national population based study - a practical guideEpidemiologic studiesPopulation-based studyRheumatic DiseasesEpidemiologyCross-sectional studyStudy managementRheumatologySDG 3 - Good Health and Well-beingBACKGROUND: The aim of this article was to describe and discuss several strategies and standard operating procedures undertaken in the EpiReumaPt study - which was the first Portuguese, national, cross-sectional population-based study of Rheumatic and Musculoskeletal Diseases (RMD). METHODS: The technical procedures, legal issues, management and practical questions were studied, analyzed and discussed with relevant stakeholders. During the 1st phase of EpiReumaPt the coordination team and Centro de Estudos de Sondagens e Opinião (CESOP) worked to recruit and interview 10,661 subjects. The 2nd phase involved the participation of a multidisciplinary team, several local authorities, a specialized vehicle ("mobile unit") and a specific software program for the clinical appointments. The development of specific recruitment strategies improved the participation rate. Blood samples were collected and sent to Biobanco-IMM and to a central lab for immediate measurements. In the 3rd phase the RMD diagnosis were validated by a team of three experienced rheumatologists - clinical data, imaging and lab test results were revised according to previously published classification criteria. CONCLUSION: EpiReumaPt was a nationwide project successfully conducted, which followed critical logistic/coordination and research strategies. EpiReumaPt methodology and coordination could be used as an example for other epidemiologic endeavors and public health policies.Centro de Estudos de Doenças Crónicas (CEDOC)NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)RUNGouveia, NéliaMaria Rodrigues, AnaRamiro, SofiaMachado, PedroDa Costa, Leonor PereiraMourão, Ana FilipaSilva, InêsRego, TâniaLaires, PedroAndré, RuiMauricio, LuísRomeu, José CarlosTavares, VivianaCerol, JorgeCanhão, HelenaBranco, Jaime2017-08-01T22:04:29Z2015-04-012015-04-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article9application/pdfhttp://www.scopus.com/inward/record.url?scp=85014460039&partnerID=8YFLogxKeng0303-464XPURE: 2985195http://www.scopus.com/inward/record.url?scp=85014460039&partnerID=8YFLogxKinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T04:09:51Zoai:run.unl.pt:10362/22383Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:27:15.775333Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
EpiReumaPt: how to perform a national population based study - a practical guide |
title |
EpiReumaPt: how to perform a national population based study - a practical guide |
spellingShingle |
EpiReumaPt: how to perform a national population based study - a practical guide Gouveia, Nélia Epidemiologic studies Population-based study Rheumatic Diseases Epidemiology Cross-sectional study Study management Rheumatology SDG 3 - Good Health and Well-being |
title_short |
EpiReumaPt: how to perform a national population based study - a practical guide |
title_full |
EpiReumaPt: how to perform a national population based study - a practical guide |
title_fullStr |
EpiReumaPt: how to perform a national population based study - a practical guide |
title_full_unstemmed |
EpiReumaPt: how to perform a national population based study - a practical guide |
title_sort |
EpiReumaPt: how to perform a national population based study - a practical guide |
author |
Gouveia, Nélia |
author_facet |
Gouveia, Nélia Maria Rodrigues, Ana Ramiro, Sofia Machado, Pedro Da Costa, Leonor Pereira Mourão, Ana Filipa Silva, Inês Rego, Tânia Laires, Pedro André, Rui Mauricio, Luís Romeu, José Carlos Tavares, Viviana Cerol, Jorge Canhão, Helena Branco, Jaime |
author_role |
author |
author2 |
Maria Rodrigues, Ana Ramiro, Sofia Machado, Pedro Da Costa, Leonor Pereira Mourão, Ana Filipa Silva, Inês Rego, Tânia Laires, Pedro André, Rui Mauricio, Luís Romeu, José Carlos Tavares, Viviana Cerol, Jorge Canhão, Helena Branco, Jaime |
author2_role |
author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Centro de Estudos de Doenças Crónicas (CEDOC) NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM) RUN |
dc.contributor.author.fl_str_mv |
Gouveia, Nélia Maria Rodrigues, Ana Ramiro, Sofia Machado, Pedro Da Costa, Leonor Pereira Mourão, Ana Filipa Silva, Inês Rego, Tânia Laires, Pedro André, Rui Mauricio, Luís Romeu, José Carlos Tavares, Viviana Cerol, Jorge Canhão, Helena Branco, Jaime |
dc.subject.por.fl_str_mv |
Epidemiologic studies Population-based study Rheumatic Diseases Epidemiology Cross-sectional study Study management Rheumatology SDG 3 - Good Health and Well-being |
topic |
Epidemiologic studies Population-based study Rheumatic Diseases Epidemiology Cross-sectional study Study management Rheumatology SDG 3 - Good Health and Well-being |
description |
BACKGROUND: The aim of this article was to describe and discuss several strategies and standard operating procedures undertaken in the EpiReumaPt study - which was the first Portuguese, national, cross-sectional population-based study of Rheumatic and Musculoskeletal Diseases (RMD). METHODS: The technical procedures, legal issues, management and practical questions were studied, analyzed and discussed with relevant stakeholders. During the 1st phase of EpiReumaPt the coordination team and Centro de Estudos de Sondagens e Opinião (CESOP) worked to recruit and interview 10,661 subjects. The 2nd phase involved the participation of a multidisciplinary team, several local authorities, a specialized vehicle ("mobile unit") and a specific software program for the clinical appointments. The development of specific recruitment strategies improved the participation rate. Blood samples were collected and sent to Biobanco-IMM and to a central lab for immediate measurements. In the 3rd phase the RMD diagnosis were validated by a team of three experienced rheumatologists - clinical data, imaging and lab test results were revised according to previously published classification criteria. CONCLUSION: EpiReumaPt was a nationwide project successfully conducted, which followed critical logistic/coordination and research strategies. EpiReumaPt methodology and coordination could be used as an example for other epidemiologic endeavors and public health policies. |
publishDate |
2015 |
dc.date.none.fl_str_mv |
2015-04-01 2015-04-01T00:00:00Z 2017-08-01T22:04:29Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://www.scopus.com/inward/record.url?scp=85014460039&partnerID=8YFLogxK |
url |
http://www.scopus.com/inward/record.url?scp=85014460039&partnerID=8YFLogxK |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
0303-464X PURE: 2985195 http://www.scopus.com/inward/record.url?scp=85014460039&partnerID=8YFLogxK |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
9 application/pdf |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799137901592707072 |