When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal

Detalhes bibliográficos
Autor(a) principal: Hilario, Ana Patricia
Data de Publicação: 2022
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/50826
Resumo: This study intends to provide insights into the lives of children who suffer from chronic pain and of their parents. A qualitative, multi-modal approach was employed, using the draw, write and tell technique with seven children, and semi-structured interviews with parents. By illustrating that children are active social agents in the management of chronic pain (even when they are understood by parents as vulnerable), the findings support recent sociological work in the field of childhood health. Indeed, the findings show that children with a chronic condition can take autonomous decisions in relation to disease management even when supervised by parents.
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spelling When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugalchildrenchronic painparentsriskuncertaintyThis study intends to provide insights into the lives of children who suffer from chronic pain and of their parents. A qualitative, multi-modal approach was employed, using the draw, write and tell technique with seven children, and semi-structured interviews with parents. By illustrating that children are active social agents in the management of chronic pain (even when they are understood by parents as vulnerable), the findings support recent sociological work in the field of childhood health. Indeed, the findings show that children with a chronic condition can take autonomous decisions in relation to disease management even when supervised by parents.Repositório da Universidade de LisboaHilario, Ana Patricia2022-01-14T15:39:24Z2022-012022-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/50826engHilário, A. P. (2022). When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal. Children and Society, vol. 36 (5), pp. 840-856. (First published 09 January 2022). DOI 10.1111/chso.125421099-086010.1111/chso.12542metadata only accessinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:55:06Zoai:repositorio.ul.pt:10451/50826Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:02:09.140846Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
title When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
spellingShingle When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
Hilario, Ana Patricia
children
chronic pain
parents
risk
uncertainty
title_short When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
title_full When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
title_fullStr When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
title_full_unstemmed When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
title_sort When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal
author Hilario, Ana Patricia
author_facet Hilario, Ana Patricia
author_role author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Hilario, Ana Patricia
dc.subject.por.fl_str_mv children
chronic pain
parents
risk
uncertainty
topic children
chronic pain
parents
risk
uncertainty
description This study intends to provide insights into the lives of children who suffer from chronic pain and of their parents. A qualitative, multi-modal approach was employed, using the draw, write and tell technique with seven children, and semi-structured interviews with parents. By illustrating that children are active social agents in the management of chronic pain (even when they are understood by parents as vulnerable), the findings support recent sociological work in the field of childhood health. Indeed, the findings show that children with a chronic condition can take autonomous decisions in relation to disease management even when supervised by parents.
publishDate 2022
dc.date.none.fl_str_mv 2022-01-14T15:39:24Z
2022-01
2022-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/50826
url http://hdl.handle.net/10451/50826
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Hilário, A. P. (2022). When pain never goes away: Understanding the lived experiences of children with chronic pain and their parents in Portugal. Children and Society, vol. 36 (5), pp. 840-856. (First published 09 January 2022). DOI 10.1111/chso.12542
1099-0860
10.1111/chso.12542
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rights_invalid_str_mv metadata only access
eu_rights_str_mv openAccess
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dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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