Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma
Autor(a) principal: | |
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Data de Publicação: | 2015 |
Outros Autores: | , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10316/45412 https://doi.org/10.1111/cch.12147 |
Resumo: | Introduction. Children’s health-related quality of life (HrQoL) and psychological problems are important outcomes to consider in clinical decision making in pediatric asthma. However, children’s and parents’ reports often differ. The present study aimed to examine the levels of agreement/disagreement between children’s and parents’ reports of HrQoL and psychological problems and to identify socio-demographic, clinical and family variables associated with the extent and direction of (dis)agreement. Method. The sample comprised 279 dyads of Portuguese children with asthma who were between 8 and 18 years of age (M = 12.13; SD = 2.56) and one of their parents. The participants completed self- and proxy-reported questionnaires on pediatric generic HrQoL (KIDSCREEN-10), chronic-generic HrQoL (DISABKIDS-37) and psychological problems (Strengths and Difficulties Questionnaire). Children’s and parents’ perceptions of family relationships were measured with the Family Environment Scale and the caregiving burden was assessed using the Revised Burden Measure. Results. The child-parent agreement on reported HrQoL and psychological problems was poor to moderate (intraclass correlation coefficients between .32 and .47). The rates of child-parent discrepancies ranged between 52.7% (psychological problems) and 68.8% (generic HrQoL), with 50.5% and 31.5% of the parents reporting worse generic and chronic-generic HrQoL, respectively, and 33.3% reporting more psychological problems than their children. The extent and direction of disagreement were better explained by family factors than by socio-demographic and clinical variables: a greater caregiving burden was associated with increased discrepancies in both directions and children’s and parents’ perceptions of less positive family relationships were associated with discrepancies in different directions. Conclusion. Routine assessment of pediatric HrQoL and psychological problems in healthcare and research contexts should include self- and parent-reported data as complementary sources of information, and also consider the family context. The additional cost of conducting a more in-depth assessment of pediatric adaptation outcomes can be offset through more efficient allocation of health resources. |
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Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthmaCaregiving burdenChild-parent (dis)agreementFamily relationshipsHealth-related quality of lifePediatric asthmaPsychological problemsIntroduction. Children’s health-related quality of life (HrQoL) and psychological problems are important outcomes to consider in clinical decision making in pediatric asthma. However, children’s and parents’ reports often differ. The present study aimed to examine the levels of agreement/disagreement between children’s and parents’ reports of HrQoL and psychological problems and to identify socio-demographic, clinical and family variables associated with the extent and direction of (dis)agreement. Method. The sample comprised 279 dyads of Portuguese children with asthma who were between 8 and 18 years of age (M = 12.13; SD = 2.56) and one of their parents. The participants completed self- and proxy-reported questionnaires on pediatric generic HrQoL (KIDSCREEN-10), chronic-generic HrQoL (DISABKIDS-37) and psychological problems (Strengths and Difficulties Questionnaire). Children’s and parents’ perceptions of family relationships were measured with the Family Environment Scale and the caregiving burden was assessed using the Revised Burden Measure. Results. The child-parent agreement on reported HrQoL and psychological problems was poor to moderate (intraclass correlation coefficients between .32 and .47). The rates of child-parent discrepancies ranged between 52.7% (psychological problems) and 68.8% (generic HrQoL), with 50.5% and 31.5% of the parents reporting worse generic and chronic-generic HrQoL, respectively, and 33.3% reporting more psychological problems than their children. The extent and direction of disagreement were better explained by family factors than by socio-demographic and clinical variables: a greater caregiving burden was associated with increased discrepancies in both directions and children’s and parents’ perceptions of less positive family relationships were associated with discrepancies in different directions. Conclusion. Routine assessment of pediatric HrQoL and psychological problems in healthcare and research contexts should include self- and parent-reported data as complementary sources of information, and also consider the family context. The additional cost of conducting a more in-depth assessment of pediatric adaptation outcomes can be offset through more efficient allocation of health resources.This study was supported by the R&D Unit Institute of Cognitive Psychology, Vocational and Social Development of the University of Coimbra (PEst-OE/PSI/UI0192/2011); and by the Portuguese Foundation for Science and Technology (PhD Grant SFRH/BD/69885/2010).2015info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://hdl.handle.net/10316/45412http://hdl.handle.net/10316/45412https://doi.org/10.1111/cch.12147engSilva, N., Crespo, C., Carona, C., Bullinger, M., & Canavarro, M. C. (2015). Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in pediatric asthma. Child: Care, Health and Development, 41(1), 112-121. doi:10.1111/cch.12147http://onlinelibrary.wiley.com/doi/10.1111/cch.12147/abstractSilva, NeuzaCrespo, CarlaCarona, CarlosBullinger, MonikaCanavarro, Maria Cristinainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2021-06-29T10:03:16Zoai:estudogeral.uc.pt:10316/45412Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:48:31.170632Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma |
title |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma |
spellingShingle |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma Silva, Neuza Caregiving burden Child-parent (dis)agreement Family relationships Health-related quality of life Pediatric asthma Psychological problems |
title_short |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma |
title_full |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma |
title_fullStr |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma |
title_full_unstemmed |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma |
title_sort |
Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in paediatric asthma |
author |
Silva, Neuza |
author_facet |
Silva, Neuza Crespo, Carla Carona, Carlos Bullinger, Monika Canavarro, Maria Cristina |
author_role |
author |
author2 |
Crespo, Carla Carona, Carlos Bullinger, Monika Canavarro, Maria Cristina |
author2_role |
author author author author |
dc.contributor.author.fl_str_mv |
Silva, Neuza Crespo, Carla Carona, Carlos Bullinger, Monika Canavarro, Maria Cristina |
dc.subject.por.fl_str_mv |
Caregiving burden Child-parent (dis)agreement Family relationships Health-related quality of life Pediatric asthma Psychological problems |
topic |
Caregiving burden Child-parent (dis)agreement Family relationships Health-related quality of life Pediatric asthma Psychological problems |
description |
Introduction. Children’s health-related quality of life (HrQoL) and psychological problems are important outcomes to consider in clinical decision making in pediatric asthma. However, children’s and parents’ reports often differ. The present study aimed to examine the levels of agreement/disagreement between children’s and parents’ reports of HrQoL and psychological problems and to identify socio-demographic, clinical and family variables associated with the extent and direction of (dis)agreement. Method. The sample comprised 279 dyads of Portuguese children with asthma who were between 8 and 18 years of age (M = 12.13; SD = 2.56) and one of their parents. The participants completed self- and proxy-reported questionnaires on pediatric generic HrQoL (KIDSCREEN-10), chronic-generic HrQoL (DISABKIDS-37) and psychological problems (Strengths and Difficulties Questionnaire). Children’s and parents’ perceptions of family relationships were measured with the Family Environment Scale and the caregiving burden was assessed using the Revised Burden Measure. Results. The child-parent agreement on reported HrQoL and psychological problems was poor to moderate (intraclass correlation coefficients between .32 and .47). The rates of child-parent discrepancies ranged between 52.7% (psychological problems) and 68.8% (generic HrQoL), with 50.5% and 31.5% of the parents reporting worse generic and chronic-generic HrQoL, respectively, and 33.3% reporting more psychological problems than their children. The extent and direction of disagreement were better explained by family factors than by socio-demographic and clinical variables: a greater caregiving burden was associated with increased discrepancies in both directions and children’s and parents’ perceptions of less positive family relationships were associated with discrepancies in different directions. Conclusion. Routine assessment of pediatric HrQoL and psychological problems in healthcare and research contexts should include self- and parent-reported data as complementary sources of information, and also consider the family context. The additional cost of conducting a more in-depth assessment of pediatric adaptation outcomes can be offset through more efficient allocation of health resources. |
publishDate |
2015 |
dc.date.none.fl_str_mv |
2015 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10316/45412 http://hdl.handle.net/10316/45412 https://doi.org/10.1111/cch.12147 |
url |
http://hdl.handle.net/10316/45412 https://doi.org/10.1111/cch.12147 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Silva, N., Crespo, C., Carona, C., Bullinger, M., & Canavarro, M. C. (2015). Why the (dis)agreement? Family context and child-parent perspectives on health-related quality of life and psychological problems in pediatric asthma. Child: Care, Health and Development, 41(1), 112-121. doi:10.1111/cch.12147 http://onlinelibrary.wiley.com/doi/10.1111/cch.12147/abstract |
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info:eu-repo/semantics/openAccess |
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openAccess |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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