The mediator role of unmet needs on quality of life in myeloma patients

Detalhes bibliográficos
Autor(a) principal: Pereira, M. G.
Data de Publicação: 2020
Outros Autores: Vilaça, M., Pereira, M., Ferreira, G., Monteiro, S., Coelho, H., Geraldes, C., Gonçalves, C., da Costa, F. Leal, Marques, H., Bacalhau, R.
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.16/2705
Resumo: Purpose: The diagnosis of multiple myeloma (MM) has a significant impact on patients. This study analyzed the mediating role of patients' unmet needs in the relationship between psychological morbidity/social support and quality of life (QoL). Methods: This study included 213 patients with MM recruited from the outpatient medical oncology and clinical hematology services from five hospitals. Patients who meet the study criteria were referred by physicians and invited to participate in the study by the researcher. All participants answered the following questionnaires: Hospital Anxiety and Depression Scale, Satisfaction with Social Support Scale, Short-Form Survivor Unmet Needs Survey, and The European Organization for Research and Treatment of Cancer's Multiple Myeloma Module. Descriptive statistics, bivariate correlations, and structural equation modeling were performed to analyze the data. Results: The indirect effect of psychological morbidity on patients' future perspectives (MYFP) was partially mediated by information unmet needs (INF), while the indirect effect of psychological morbidity on treatment side effects (MYSE) was partially mediated by relationship and emotional unmet needs (REH). In turn, the indirect effect of psychological morbidity on disease symptoms (MYDS) was fully mediated by REH. Social support had an indirect effect on MYDS and MYSE fully mediated by REH. Conclusion: Intervention programs tailored to promote MM patients' QoL should specifically address information and emotional needs, raising awareness and training health professionals, caregivers, and family members to attend MM patients' unmet needs.
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spelling The mediator role of unmet needs on quality of life in myeloma patientsMultiple myelomaPatientsPsychological morbidityQuality of lifeSocial supportUnmet needsPurpose: The diagnosis of multiple myeloma (MM) has a significant impact on patients. This study analyzed the mediating role of patients' unmet needs in the relationship between psychological morbidity/social support and quality of life (QoL). Methods: This study included 213 patients with MM recruited from the outpatient medical oncology and clinical hematology services from five hospitals. Patients who meet the study criteria were referred by physicians and invited to participate in the study by the researcher. All participants answered the following questionnaires: Hospital Anxiety and Depression Scale, Satisfaction with Social Support Scale, Short-Form Survivor Unmet Needs Survey, and The European Organization for Research and Treatment of Cancer's Multiple Myeloma Module. Descriptive statistics, bivariate correlations, and structural equation modeling were performed to analyze the data. Results: The indirect effect of psychological morbidity on patients' future perspectives (MYFP) was partially mediated by information unmet needs (INF), while the indirect effect of psychological morbidity on treatment side effects (MYSE) was partially mediated by relationship and emotional unmet needs (REH). In turn, the indirect effect of psychological morbidity on disease symptoms (MYDS) was fully mediated by REH. Social support had an indirect effect on MYDS and MYSE fully mediated by REH. Conclusion: Intervention programs tailored to promote MM patients' QoL should specifically address information and emotional needs, raising awareness and training health professionals, caregivers, and family members to attend MM patients' unmet needs.SpringerRepositório Científico do Centro Hospitalar Universitário de Santo AntónioPereira, M. G.Vilaça, M.Pereira, M.Ferreira, G.Monteiro, S.Coelho, H.Geraldes, C.Gonçalves, C.da Costa, F. LealMarques, H.Bacalhau, R.2022-07-11T15:59:20Z20202020-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.16/2705engPereira MG, Vilaça M, Pereira M, et al. The mediator role of unmet needs on quality of life in myeloma patients. Qual Life Res. 2020;29(10):2641-2650. doi:10.1007/s11136-020-02511-80962-934310.1007/s11136-020-02511-8info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-10-20T11:01:49Zoai:repositorio.chporto.pt:10400.16/2705Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:38:53.933728Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv The mediator role of unmet needs on quality of life in myeloma patients
title The mediator role of unmet needs on quality of life in myeloma patients
spellingShingle The mediator role of unmet needs on quality of life in myeloma patients
Pereira, M. G.
Multiple myeloma
Patients
Psychological morbidity
Quality of life
Social support
Unmet needs
title_short The mediator role of unmet needs on quality of life in myeloma patients
title_full The mediator role of unmet needs on quality of life in myeloma patients
title_fullStr The mediator role of unmet needs on quality of life in myeloma patients
title_full_unstemmed The mediator role of unmet needs on quality of life in myeloma patients
title_sort The mediator role of unmet needs on quality of life in myeloma patients
author Pereira, M. G.
author_facet Pereira, M. G.
Vilaça, M.
Pereira, M.
Ferreira, G.
Monteiro, S.
Coelho, H.
Geraldes, C.
Gonçalves, C.
da Costa, F. Leal
Marques, H.
Bacalhau, R.
author_role author
author2 Vilaça, M.
Pereira, M.
Ferreira, G.
Monteiro, S.
Coelho, H.
Geraldes, C.
Gonçalves, C.
da Costa, F. Leal
Marques, H.
Bacalhau, R.
author2_role author
author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório Científico do Centro Hospitalar Universitário de Santo António
dc.contributor.author.fl_str_mv Pereira, M. G.
Vilaça, M.
Pereira, M.
Ferreira, G.
Monteiro, S.
Coelho, H.
Geraldes, C.
Gonçalves, C.
da Costa, F. Leal
Marques, H.
Bacalhau, R.
dc.subject.por.fl_str_mv Multiple myeloma
Patients
Psychological morbidity
Quality of life
Social support
Unmet needs
topic Multiple myeloma
Patients
Psychological morbidity
Quality of life
Social support
Unmet needs
description Purpose: The diagnosis of multiple myeloma (MM) has a significant impact on patients. This study analyzed the mediating role of patients' unmet needs in the relationship between psychological morbidity/social support and quality of life (QoL). Methods: This study included 213 patients with MM recruited from the outpatient medical oncology and clinical hematology services from five hospitals. Patients who meet the study criteria were referred by physicians and invited to participate in the study by the researcher. All participants answered the following questionnaires: Hospital Anxiety and Depression Scale, Satisfaction with Social Support Scale, Short-Form Survivor Unmet Needs Survey, and The European Organization for Research and Treatment of Cancer's Multiple Myeloma Module. Descriptive statistics, bivariate correlations, and structural equation modeling were performed to analyze the data. Results: The indirect effect of psychological morbidity on patients' future perspectives (MYFP) was partially mediated by information unmet needs (INF), while the indirect effect of psychological morbidity on treatment side effects (MYSE) was partially mediated by relationship and emotional unmet needs (REH). In turn, the indirect effect of psychological morbidity on disease symptoms (MYDS) was fully mediated by REH. Social support had an indirect effect on MYDS and MYSE fully mediated by REH. Conclusion: Intervention programs tailored to promote MM patients' QoL should specifically address information and emotional needs, raising awareness and training health professionals, caregivers, and family members to attend MM patients' unmet needs.
publishDate 2020
dc.date.none.fl_str_mv 2020
2020-01-01T00:00:00Z
2022-07-11T15:59:20Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10400.16/2705
url http://hdl.handle.net/10400.16/2705
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Pereira MG, Vilaça M, Pereira M, et al. The mediator role of unmet needs on quality of life in myeloma patients. Qual Life Res. 2020;29(10):2641-2650. doi:10.1007/s11136-020-02511-8
0962-9343
10.1007/s11136-020-02511-8
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
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dc.publisher.none.fl_str_mv Springer
publisher.none.fl_str_mv Springer
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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