Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon

Detalhes bibliográficos
Autor(a) principal: Barbosa, António
Data de Publicação: 2016
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: https://doi.org/10.29352/mill0201.11.00045
Resumo: Introduction: Palliative care focus on the control of functional disorders and complex symptomatology and are assumed as an essential element of health care. Objectives and methods: The aim of this study is to provide an analysis of all the 108 dissertations of the master’s degree in palliative care which were discussed and approved at the Faculty of Medicine of the University of Lisbon, between the years of 2004 and 2016, according to their thematic characteristics, logistics, methodology, type and number of participants and researchers over the two sequential periods. There were no significant differences in all the analyzed variables when comparing these two periods. Results: It was verified, in the authorship of dissertations, a predominance of the nurses group when compared to other professional groups and the collaboration of nearly 8,000 participants, mostly patients with several diseases of severe oncological prevalence and that were evaluated in the hospital context all over the country. The main addressed themes are distinguished by a decreasing representation degree of the assessment of the general needs in palliative care, the quality of life and satisfaction of informal caregivers as well as their attitudes, experiences, knowledge and skills, especially those of the healthcare professionals. It also appears as a relevant thematic the general and specific symptomatic assessment of patients, the intervention studies in palliative care along with existential, spiritual and ethical problems, communication and grief, covering, this way, an entire spectrum of key areas that are essential to the practice of palliative care. Quantitative methods were the most used ones, with a strong component on the retrospective studies, using scales. According to the qualitative methods used, there is a focus on the content analysis, from semi-structured interviews. Conclusions: Analysing the limitations that were found, this study suggests four strategic lines for the development of research in palliative care in Portugal.
id RCAP_3de99a1684515257010a78d5c53b6064
oai_identifier_str oai:ojs.revistas.rcaap.pt:article/10312
network_acronym_str RCAP
network_name_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository_id_str 7160
spelling Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of LisbonDesafíos a la investigación en cuidados paliativos: aportación del máster en cuidados paliativos de la facultad de medicina de la Universidade de LisboaDesafios à investigação em cuidados paliativos: contributo do mestrado em cuidados paliativos da faculdade de medicina da Universidade de LisboaLife and Healthcare SciencesIntroduction: Palliative care focus on the control of functional disorders and complex symptomatology and are assumed as an essential element of health care. Objectives and methods: The aim of this study is to provide an analysis of all the 108 dissertations of the master’s degree in palliative care which were discussed and approved at the Faculty of Medicine of the University of Lisbon, between the years of 2004 and 2016, according to their thematic characteristics, logistics, methodology, type and number of participants and researchers over the two sequential periods. There were no significant differences in all the analyzed variables when comparing these two periods. Results: It was verified, in the authorship of dissertations, a predominance of the nurses group when compared to other professional groups and the collaboration of nearly 8,000 participants, mostly patients with several diseases of severe oncological prevalence and that were evaluated in the hospital context all over the country. The main addressed themes are distinguished by a decreasing representation degree of the assessment of the general needs in palliative care, the quality of life and satisfaction of informal caregivers as well as their attitudes, experiences, knowledge and skills, especially those of the healthcare professionals. It also appears as a relevant thematic the general and specific symptomatic assessment of patients, the intervention studies in palliative care along with existential, spiritual and ethical problems, communication and grief, covering, this way, an entire spectrum of key areas that are essential to the practice of palliative care. Quantitative methods were the most used ones, with a strong component on the retrospective studies, using scales. According to the qualitative methods used, there is a focus on the content analysis, from semi-structured interviews. Conclusions: Analysing the limitations that were found, this study suggests four strategic lines for the development of research in palliative care in Portugal.Introducción: Los cuidados paliativos se centra en lo controlo de los trastornos funcionales y la sintomatología compleja y se asume como un elemento esencial de la atención de la salud. Objetivos e métodos: El objetivo de este estudio es analizar la totalidad de las 108 disertaciones del máster en cuidados paliativos discutidas y aprobadas en la Facultad de Medicina de la Universidad de Lisboa entre 2004 y 2006 relativamente a las características temáticas, logísticas, metodológicas, tipo y número de participantes e investigadores a lo largo de dos periodos secuenciales. No se han observado diferencias significativas en todas las variables analizadas comparando esos dos periodos. Resultados: Se ha verificado, en la autoría de las disertaciones, una preponderancia del grupo de enfermeros respecto a otros grupos profesionales y la colaboración de cerca de 8.000 participantes, la mayoría de los cuales enfermos con patologías diversas de acentuado predominio oncológico y que han sido evaluados en contexto predominantemente hospitalario por todo el país. En las principales temáticas abordadas se distinguen en grado decreciente de representación la evaluación de las necessidades generales en cuidados paliativos, la calidad de vida y la satisfacción de cuidadores informales y actitudes, vivencias, conocimientos y competencias sobre todo de los profesionales de salud. Surgen también como temáticas relevantes la evaluación sintomática general y específica de enfermos, estudios de intervención en cuidados paliativos y de problemas existenciales, espirituales y éticos, incluso de comunicación y de luto, cubriendo todo el espectro de las áreas esenciales de la práctica de los cuidados paliativos. Las metodologías cuantitativas han sido las más representadas, con una fuerte componente de estudios retrospectivos utilizado escalas, y de las cualitativas la más utilizada ha sido el análisis de contenido, a partir de entrevistas semiestructuradas. Conclusiones: Del análisis de las limitaciones encontradas se proponen cuatro líneas estratégicas para el desarrollo de la investigación en cuidados paliativos en Portugal.Introdução: Os cuidados paliativos centram-se no controlo de perturbações funcionais e sintomatologia complexa e assumem-se como um elemento essencial dos cuidados de saúde. Objectivos e métodos: O objetivo deste estudo é o de analisar a totalidade das 108 dissertações do mestrado em cuidados paliativos discutidas e aprovadas na Faculdade de Medicina da Universidade de Lisboa entre 2004 e 2016 quanto às caraterísticas temáticas, logísticas, metodológicas, tipo e número de participantes e investigadores ao longo de dois períodos sequenciais. Não se observaram diferenças significativas em todas as variáveis analisadas comparando esses dois períodos. Resultados: Verificou-se, na autoria das dissertações, um predomínio do grupo de enfermeiros em relação a outros grupos profissionais e a colaboração de cerca de 8.000 participantes, na sua maioria doentes com patologias diversas de acentuado predomínio oncológico e que foram avaliados em contexto predominantemente hospitalar por todo o País. Nas principais temáticas abordadas distinguem-se por grau decrescente de representação a avaliação das necessidades gerais em cuidados paliativos, a qualidade de vida e a satisfação de cuidadores informais e atitudes, vivências, conhecimentos e competências sobretudo dos profissionais de saúde. Surgem também como temáticas relevantes a avaliação sintomática geral e específica de doentes, estudos de intervenção em cuidados paliativos e de problemas existenciais, espirituais e éticos, mas também de comunicação e de luto, cobrindo todo o espectro das áreas essenciais da prática dos cuidados paliativos. As metodologias quantitativas foram as mais representadas, com uma forte componente de estudos retrospetivos, utilizando escalas, e das qualitativas, a mais utilizada foi a análise de conteúdo, a partir de entrevistas semiestruturadas. Conclusões: Da análise das limitações encontradas propõem-se quatro linhas estratégicas para o desenvolvimento da investigação em cuidados paliativos em Portugal.Polytechnic Institute of Viseu (IPV)2016-09-30info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttps://doi.org/10.29352/mill0201.11.00045eng1647-662X0873-3015Barbosa, Antónioinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-06-15T15:01:35Zoai:ojs.revistas.rcaap.pt:article/10312Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T15:29:18.485537Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
Desafíos a la investigación en cuidados paliativos: aportación del máster en cuidados paliativos de la facultad de medicina de la Universidade de Lisboa
Desafios à investigação em cuidados paliativos: contributo do mestrado em cuidados paliativos da faculdade de medicina da Universidade de Lisboa
title Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
spellingShingle Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
Barbosa, António
Life and Healthcare Sciences
title_short Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
title_full Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
title_fullStr Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
title_full_unstemmed Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
title_sort Challenges of conducting research in palliative care: contribution of the master’s degree in palliative care by the faculty of medicine, University of Lisbon
author Barbosa, António
author_facet Barbosa, António
author_role author
dc.contributor.author.fl_str_mv Barbosa, António
dc.subject.por.fl_str_mv Life and Healthcare Sciences
topic Life and Healthcare Sciences
description Introduction: Palliative care focus on the control of functional disorders and complex symptomatology and are assumed as an essential element of health care. Objectives and methods: The aim of this study is to provide an analysis of all the 108 dissertations of the master’s degree in palliative care which were discussed and approved at the Faculty of Medicine of the University of Lisbon, between the years of 2004 and 2016, according to their thematic characteristics, logistics, methodology, type and number of participants and researchers over the two sequential periods. There were no significant differences in all the analyzed variables when comparing these two periods. Results: It was verified, in the authorship of dissertations, a predominance of the nurses group when compared to other professional groups and the collaboration of nearly 8,000 participants, mostly patients with several diseases of severe oncological prevalence and that were evaluated in the hospital context all over the country. The main addressed themes are distinguished by a decreasing representation degree of the assessment of the general needs in palliative care, the quality of life and satisfaction of informal caregivers as well as their attitudes, experiences, knowledge and skills, especially those of the healthcare professionals. It also appears as a relevant thematic the general and specific symptomatic assessment of patients, the intervention studies in palliative care along with existential, spiritual and ethical problems, communication and grief, covering, this way, an entire spectrum of key areas that are essential to the practice of palliative care. Quantitative methods were the most used ones, with a strong component on the retrospective studies, using scales. According to the qualitative methods used, there is a focus on the content analysis, from semi-structured interviews. Conclusions: Analysing the limitations that were found, this study suggests four strategic lines for the development of research in palliative care in Portugal.
publishDate 2016
dc.date.none.fl_str_mv 2016-09-30
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv https://doi.org/10.29352/mill0201.11.00045
url https://doi.org/10.29352/mill0201.11.00045
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 1647-662X
0873-3015
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv Polytechnic Institute of Viseu (IPV)
publisher.none.fl_str_mv Polytechnic Institute of Viseu (IPV)
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
_version_ 1799130161975656448