Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal
Autor(a) principal: | |
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Data de Publicação: | 2022 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294 |
Resumo: | Introduction: Evidence shows most patients are not recognised by their attending healthcare professionals as having palliative needs. This feasibility study aimed to aid healthcare professionals identify hospital patients with palliative needs.Material and Methods: Mixed-methods, cross-sectional, observational study. The patient inclusion criteria comprised: age over 18 years old, being mentally capable to give consent judged as such by participating healthcare professionals, and if unable, having a legal substitute to consent, having a diagnosis of an incurable, potentially life-threatening illness. Field notes were taken for reflexive purposes. Outcome measures included: Integrated Palliative Care Outcome scale, surprise question, phase of illness, referral request status, The Eastern Cooperative Oncology Group Performance Status and social needs assessment. An interim data collection period meeting assessed implementation outcomes in each context. A web-based survey was sent to all participating healthcare professionals at the end of data collection period to explore overall experiences of participation and implementation outcomes.Results: Forty-two departments in four hospitals were contacted. The study was presented in nine departments. The field notes were vital to understand the recruitment process and difficulties experienced: time constraints, fear of additional work, department dynamics and organisation, relationships between departments and need of training in palliative care and research. One department agreed to participate. There were six participating healthcare professionals and only 45 patients included. Three participating healthcare professionals responded to the web-based survey.Conclusion: There is an urgent need to provide generalist palliative care training to clinicians. |
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Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in PortugalAvaliação de Processo de um Estudo de Viabilidade de Metodologia Mista para Identificar Doentes Hospitalares com Necessidades de Cuidados Paliativos em PortugalDecision MakingHealth Services ResearchImplementation ScienceMedical EducationPalliative CarePatient-centered CareAssistência Centrada no DoenteCiência da ImplementaçãoCuidados PaliativosEducação MédicaInvestigação sobre Serviços de SaúdeTomada de DecisãoIntroduction: Evidence shows most patients are not recognised by their attending healthcare professionals as having palliative needs. This feasibility study aimed to aid healthcare professionals identify hospital patients with palliative needs.Material and Methods: Mixed-methods, cross-sectional, observational study. The patient inclusion criteria comprised: age over 18 years old, being mentally capable to give consent judged as such by participating healthcare professionals, and if unable, having a legal substitute to consent, having a diagnosis of an incurable, potentially life-threatening illness. Field notes were taken for reflexive purposes. Outcome measures included: Integrated Palliative Care Outcome scale, surprise question, phase of illness, referral request status, The Eastern Cooperative Oncology Group Performance Status and social needs assessment. An interim data collection period meeting assessed implementation outcomes in each context. A web-based survey was sent to all participating healthcare professionals at the end of data collection period to explore overall experiences of participation and implementation outcomes.Results: Forty-two departments in four hospitals were contacted. The study was presented in nine departments. The field notes were vital to understand the recruitment process and difficulties experienced: time constraints, fear of additional work, department dynamics and organisation, relationships between departments and need of training in palliative care and research. One department agreed to participate. There were six participating healthcare professionals and only 45 patients included. Three participating healthcare professionals responded to the web-based survey.Conclusion: There is an urgent need to provide generalist palliative care training to clinicians.Introdução: A maioria dos pacientes não são reconhecidos pelos seus profissionais de saúde como tendo necessidades paliativas.Este estudo de viabilidade visou ajudar os profissionais de saúde a identificar doentes hospitalares com necessidades paliativas.Material e Métodos: Método misto, transversal e observacional. Os critérios de inclusão dos doentes compreenderam: idade igual ou superior a 18 anos; capacidade mental para dar consentimento informado, avaliado pelos profissionais de saúde participantes ou, caso não tenham essa capacidade, presença de um representante legal para consentir; ser portador de doença incurável, ameaçadora do tempo de vida. As notas de campo serviram fins reflexivos. As medidas de resultados utilizadas foram: escala integrada de cuidados paliativos, pergunta surpresa, fase da doença, estatuto de pedido de encaminhamento, Estado de Desempenho do Grupo de Oncologia Cooperativa Oriental (ECOG) e avaliação das necessidades sociais. A reunião intercalar no período de recolha de dados auxiliou-nos a avaliar os resultados da implementação em cada contexto. No final do período de recolha de dados enviámos um inquérito eletrónico aos profissionais de saúde participantes para explorar experiências globais de participação e resultados de implementação.Resultados: Contactámos 42 serviços em quatro hospitais. Apresentámos o estudo em nove serviços. As notas de campo foram vitais para compreender o processo de recrutamento e as dificuldades vividas: restrições de tempo, medo de trabalho acrescido, dinâmica de serviços e organização, relações entre serviços e necessidade de formação em cuidados paliativos e investigação. Contámos com a participação de um serviço, seis profissionais de saúde e 45 doentes. Três profissionais de saúde participantes responderam ao inquérito eletrónico.Conclusão: É urgente a formação em cuidados paliativos generalistas a médicos que trabalham em hospitais.Ordem dos Médicos2022-02-01info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfapplication/pdfapplication/pdfapplication/pdfhttps://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294Acta Médica Portuguesa; Vol. 35 No. 2 (2022): February; 94-104Acta Médica Portuguesa; Vol. 35 N.º 2 (2022): Fevereiro; 94-1041646-07580870-399Xreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPenghttps://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6407https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6408https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6409https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6410Direitos de Autor (c) 2021 Acta Médica Portuguesainfo:eu-repo/semantics/openAccessAntunes, BárbaraPereira Rodrigues, PedroHigginson, Irene J.Lopes Ferreira, Pedro2023-01-22T03:00:47Zoai:ojs.www.actamedicaportuguesa.com:article/15294Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T16:20:37.998594Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal Avaliação de Processo de um Estudo de Viabilidade de Metodologia Mista para Identificar Doentes Hospitalares com Necessidades de Cuidados Paliativos em Portugal |
title |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal |
spellingShingle |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal Antunes, Bárbara Decision Making Health Services Research Implementation Science Medical Education Palliative Care Patient-centered Care Assistência Centrada no Doente Ciência da Implementação Cuidados Paliativos Educação Médica Investigação sobre Serviços de Saúde Tomada de Decisão |
title_short |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal |
title_full |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal |
title_fullStr |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal |
title_full_unstemmed |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal |
title_sort |
Process Evaluation of a Mixed Methods Feasibility Study to Identify Hospital Patients with Palliative Care Needs in Portugal |
author |
Antunes, Bárbara |
author_facet |
Antunes, Bárbara Pereira Rodrigues, Pedro Higginson, Irene J. Lopes Ferreira, Pedro |
author_role |
author |
author2 |
Pereira Rodrigues, Pedro Higginson, Irene J. Lopes Ferreira, Pedro |
author2_role |
author author author |
dc.contributor.author.fl_str_mv |
Antunes, Bárbara Pereira Rodrigues, Pedro Higginson, Irene J. Lopes Ferreira, Pedro |
dc.subject.por.fl_str_mv |
Decision Making Health Services Research Implementation Science Medical Education Palliative Care Patient-centered Care Assistência Centrada no Doente Ciência da Implementação Cuidados Paliativos Educação Médica Investigação sobre Serviços de Saúde Tomada de Decisão |
topic |
Decision Making Health Services Research Implementation Science Medical Education Palliative Care Patient-centered Care Assistência Centrada no Doente Ciência da Implementação Cuidados Paliativos Educação Médica Investigação sobre Serviços de Saúde Tomada de Decisão |
description |
Introduction: Evidence shows most patients are not recognised by their attending healthcare professionals as having palliative needs. This feasibility study aimed to aid healthcare professionals identify hospital patients with palliative needs.Material and Methods: Mixed-methods, cross-sectional, observational study. The patient inclusion criteria comprised: age over 18 years old, being mentally capable to give consent judged as such by participating healthcare professionals, and if unable, having a legal substitute to consent, having a diagnosis of an incurable, potentially life-threatening illness. Field notes were taken for reflexive purposes. Outcome measures included: Integrated Palliative Care Outcome scale, surprise question, phase of illness, referral request status, The Eastern Cooperative Oncology Group Performance Status and social needs assessment. An interim data collection period meeting assessed implementation outcomes in each context. A web-based survey was sent to all participating healthcare professionals at the end of data collection period to explore overall experiences of participation and implementation outcomes.Results: Forty-two departments in four hospitals were contacted. The study was presented in nine departments. The field notes were vital to understand the recruitment process and difficulties experienced: time constraints, fear of additional work, department dynamics and organisation, relationships between departments and need of training in palliative care and research. One department agreed to participate. There were six participating healthcare professionals and only 45 patients included. Three participating healthcare professionals responded to the web-based survey.Conclusion: There is an urgent need to provide generalist palliative care training to clinicians. |
publishDate |
2022 |
dc.date.none.fl_str_mv |
2022-02-01 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294 |
url |
https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6407 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6408 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6409 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/15294/6410 |
dc.rights.driver.fl_str_mv |
Direitos de Autor (c) 2021 Acta Médica Portuguesa info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
Direitos de Autor (c) 2021 Acta Médica Portuguesa |
eu_rights_str_mv |
openAccess |
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application/pdf application/pdf application/pdf application/pdf |
dc.publisher.none.fl_str_mv |
Ordem dos Médicos |
publisher.none.fl_str_mv |
Ordem dos Médicos |
dc.source.none.fl_str_mv |
Acta Médica Portuguesa; Vol. 35 No. 2 (2022): February; 94-104 Acta Médica Portuguesa; Vol. 35 N.º 2 (2022): Fevereiro; 94-104 1646-0758 0870-399X reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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