Patients and health professional's perspective of functional mobility in Parkinson's Disease
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2020 |
| Outros Autores: | , , , , , , , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10451/47291 |
Resumo: | Copyright © 2020 Bouça-Machado, Gonçalves, Lousada, Patriarca, Costa, Nunes, Dias, Caldas, Valadas, Lobo, Guedes, Rosa, Coelho and Ferreira. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
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Patients and health professional's perspective of functional mobility in Parkinson's DiseaseFunctional mobilityParkinson’s diseaseFocus groupsConceptWalking aidsCopyright © 2020 Bouça-Machado, Gonçalves, Lousada, Patriarca, Costa, Nunes, Dias, Caldas, Valadas, Lobo, Guedes, Rosa, Coelho and Ferreira. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.Background: Functional mobility (FM) is the person's ability to move to accomplish daily living tasks and activities. FM limitations are common in Parkinson's disease, increase with disease progression, and can be highly disabling. Although several studies in Parkinson's disease (PD) field use this concept, only recently, a formal definition has been proposed. Objective: We aimed to explore patient's and health professional's perspectives of FM in PD. Methods: A focus group methodology has been used. Four focus groups, with a total of 10 patients and 10 health professionals, were performed. Six patients were early stage and four advanced stage. The health professional's group was composed of five neurologists and five physiotherapists. The suitability of the new concept, the impact of FM limitations in PD patient's daily routine, and the potential benefit of walking aids have been discussed. Results: All participants were able to provide a spontaneous definition of FM, matching with the proposed concept. All agreed that PD affects patient's FM, increasing the limitations with disease progression, and with the existence of a serious prejudice with walking aids that hinders its use. Early-stage patient's perspective seems to be more in line with neurologist's perspective, while the views of advanced-stage patients were closer to physiotherapist's views. Conclusion: FM concept was considered as intuitive and useful. FM limitations have an important physical and social impact in the advanced stage of the disease. Although patients and health professionals acknowledge walking aid's benefit improving patient's FM, the prejudice associated with this type of tools limits its recommendation and use.The authors would like to thank to the Fundação para a Ciência e a Tecnologia (FCT) (SFRH/BD/120773/2016 to RB-M).FrontiersRepositório da Universidade de LisboaBouça-Machado, RaquelGonçalves, NilzaLousada, InêsPatriarca, Maria A.Costa, PatríciaNunes, RaquelDias, SusanaCaldas, Ana CastroValadas, AnabelaLobo, Patrícia PitaCorreia Guedes, LeonorRosa, Mário MiguelCoelho, MiguelFerreira, Joaquim J2021-04-08T15:19:07Z20202020-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/47291engFront Neurol. 2020 Oct 27;11:575811.10.3389/fneur.2020.5758111664-2295info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:50:07Zoai:repositorio.ul.pt:10451/47291Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:59:22.430203Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
Patients and health professional's perspective of functional mobility in Parkinson's Disease |
| title |
Patients and health professional's perspective of functional mobility in Parkinson's Disease |
| spellingShingle |
Patients and health professional's perspective of functional mobility in Parkinson's Disease Bouça-Machado, Raquel Functional mobility Parkinson’s disease Focus groups Concept Walking aids |
| title_short |
Patients and health professional's perspective of functional mobility in Parkinson's Disease |
| title_full |
Patients and health professional's perspective of functional mobility in Parkinson's Disease |
| title_fullStr |
Patients and health professional's perspective of functional mobility in Parkinson's Disease |
| title_full_unstemmed |
Patients and health professional's perspective of functional mobility in Parkinson's Disease |
| title_sort |
Patients and health professional's perspective of functional mobility in Parkinson's Disease |
| author |
Bouça-Machado, Raquel |
| author_facet |
Bouça-Machado, Raquel Gonçalves, Nilza Lousada, Inês Patriarca, Maria A. Costa, Patrícia Nunes, Raquel Dias, Susana Caldas, Ana Castro Valadas, Anabela Lobo, Patrícia Pita Correia Guedes, Leonor Rosa, Mário Miguel Coelho, Miguel Ferreira, Joaquim J |
| author_role |
author |
| author2 |
Gonçalves, Nilza Lousada, Inês Patriarca, Maria A. Costa, Patrícia Nunes, Raquel Dias, Susana Caldas, Ana Castro Valadas, Anabela Lobo, Patrícia Pita Correia Guedes, Leonor Rosa, Mário Miguel Coelho, Miguel Ferreira, Joaquim J |
| author2_role |
author author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
Repositório da Universidade de Lisboa |
| dc.contributor.author.fl_str_mv |
Bouça-Machado, Raquel Gonçalves, Nilza Lousada, Inês Patriarca, Maria A. Costa, Patrícia Nunes, Raquel Dias, Susana Caldas, Ana Castro Valadas, Anabela Lobo, Patrícia Pita Correia Guedes, Leonor Rosa, Mário Miguel Coelho, Miguel Ferreira, Joaquim J |
| dc.subject.por.fl_str_mv |
Functional mobility Parkinson’s disease Focus groups Concept Walking aids |
| topic |
Functional mobility Parkinson’s disease Focus groups Concept Walking aids |
| description |
Copyright © 2020 Bouça-Machado, Gonçalves, Lousada, Patriarca, Costa, Nunes, Dias, Caldas, Valadas, Lobo, Guedes, Rosa, Coelho and Ferreira. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
| publishDate |
2020 |
| dc.date.none.fl_str_mv |
2020 2020-01-01T00:00:00Z 2021-04-08T15:19:07Z |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10451/47291 |
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http://hdl.handle.net/10451/47291 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
Front Neurol. 2020 Oct 27;11:575811. 10.3389/fneur.2020.575811 1664-2295 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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Frontiers |
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Frontiers |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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