The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients
Autor(a) principal: | |
---|---|
Data de Publicação: | 2019 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://doi.org/10.17645/mac.v7i1.1718 |
Resumo: | Sexual and/or gender minority populations (LGBQ/T) have particular cancer risks, lower involvement in cancer screening, and experience barriers in communication with healthcare providers. All of these factors increase the probability of health decisions linked with poor outcomes that include higher levels of cancer mortality. Persistent discrimination against, and stigmatization of, LGBQ/T people is reflected in sparse medical curriculum addressing LGBQ/T communities. Marginalization makes LGBQ/T persons particularly reliant on knowledge derived from online networks and mainstream media sources. In what is likely the first nationally-funded and nation-wide study of LGBQ/T experiences of cancer, the Cancer’s Margins project (www.lgbtcancer.ca) conducted face-to-face interviews with 81 sexual and/or gender minority patients diagnosed and treated for breast and/or gynecological cancer in five Canadian provinces and the San Francisco Bay area (US). With specific attention to knowledge access, sharing, and mobilization, our objective was to document and analyze complex intersectional relationships between marginalization, gender and sexuality, and cancer health decision-making and care experiences. Findings indicate that cancer care knowledge in online environments is shaped by cisnormative and heteronormative narratives. Cancer knowledge and support environments need, by contrast, to be designed by taking into account intersectionally diverse models of minority identities and communities. |
id |
RCAP_4fa04c39d5902b2dfe60db96322bd9ca |
---|---|
oai_identifier_str |
oai:ojs.cogitatiopress.com:article/1718 |
network_acronym_str |
RCAP |
network_name_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository_id_str |
7160 |
spelling |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patientsbiographical knowledge; biomedical knowledge; cancer; cancer care; gender; health disparities; health equity; information access; LGBT health; minority cancer patients; transgender; treatmentSexual and/or gender minority populations (LGBQ/T) have particular cancer risks, lower involvement in cancer screening, and experience barriers in communication with healthcare providers. All of these factors increase the probability of health decisions linked with poor outcomes that include higher levels of cancer mortality. Persistent discrimination against, and stigmatization of, LGBQ/T people is reflected in sparse medical curriculum addressing LGBQ/T communities. Marginalization makes LGBQ/T persons particularly reliant on knowledge derived from online networks and mainstream media sources. In what is likely the first nationally-funded and nation-wide study of LGBQ/T experiences of cancer, the Cancer’s Margins project (www.lgbtcancer.ca) conducted face-to-face interviews with 81 sexual and/or gender minority patients diagnosed and treated for breast and/or gynecological cancer in five Canadian provinces and the San Francisco Bay area (US). With specific attention to knowledge access, sharing, and mobilization, our objective was to document and analyze complex intersectional relationships between marginalization, gender and sexuality, and cancer health decision-making and care experiences. Findings indicate that cancer care knowledge in online environments is shaped by cisnormative and heteronormative narratives. Cancer knowledge and support environments need, by contrast, to be designed by taking into account intersectionally diverse models of minority identities and communities.Cogitatio2019-02-05info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.17645/mac.v7i1.1718oai:ojs.cogitatiopress.com:article/1718Media and Communication; Vol 7, No 1 (2019): Communicating on/with Minorities; 102-1132183-2439reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPenghttps://www.cogitatiopress.com/mediaandcommunication/article/view/1718https://doi.org/10.17645/mac.v7i1.1718https://www.cogitatiopress.com/mediaandcommunication/article/view/1718/1718https://www.cogitatiopress.com/mediaandcommunication/article/downloadSuppFile/1718/391Copyright (c) 2019 Evan T. Taylor, Mary K. Bryson, Lorna Boschman, Tae Hart, Jacqueline Gahagan, Genevieve Rail, Janice Ristockhttp://creativecommons.org/licenses/by/4.0info:eu-repo/semantics/openAccessTaylor, Evan T.Bryson, Mary K.Boschman, LornaHart, TaeGahagan, JacquelineRail, GenevieveRistock, Janice2022-12-20T10:57:36Zoai:ojs.cogitatiopress.com:article/1718Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T16:20:19.046176Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients |
title |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients |
spellingShingle |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients Taylor, Evan T. biographical knowledge; biomedical knowledge; cancer; cancer care; gender; health disparities; health equity; information access; LGBT health; minority cancer patients; transgender; treatment |
title_short |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients |
title_full |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients |
title_fullStr |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients |
title_full_unstemmed |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients |
title_sort |
The Cancer’s Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients |
author |
Taylor, Evan T. |
author_facet |
Taylor, Evan T. Bryson, Mary K. Boschman, Lorna Hart, Tae Gahagan, Jacqueline Rail, Genevieve Ristock, Janice |
author_role |
author |
author2 |
Bryson, Mary K. Boschman, Lorna Hart, Tae Gahagan, Jacqueline Rail, Genevieve Ristock, Janice |
author2_role |
author author author author author author |
dc.contributor.author.fl_str_mv |
Taylor, Evan T. Bryson, Mary K. Boschman, Lorna Hart, Tae Gahagan, Jacqueline Rail, Genevieve Ristock, Janice |
dc.subject.por.fl_str_mv |
biographical knowledge; biomedical knowledge; cancer; cancer care; gender; health disparities; health equity; information access; LGBT health; minority cancer patients; transgender; treatment |
topic |
biographical knowledge; biomedical knowledge; cancer; cancer care; gender; health disparities; health equity; information access; LGBT health; minority cancer patients; transgender; treatment |
description |
Sexual and/or gender minority populations (LGBQ/T) have particular cancer risks, lower involvement in cancer screening, and experience barriers in communication with healthcare providers. All of these factors increase the probability of health decisions linked with poor outcomes that include higher levels of cancer mortality. Persistent discrimination against, and stigmatization of, LGBQ/T people is reflected in sparse medical curriculum addressing LGBQ/T communities. Marginalization makes LGBQ/T persons particularly reliant on knowledge derived from online networks and mainstream media sources. In what is likely the first nationally-funded and nation-wide study of LGBQ/T experiences of cancer, the Cancer’s Margins project (www.lgbtcancer.ca) conducted face-to-face interviews with 81 sexual and/or gender minority patients diagnosed and treated for breast and/or gynecological cancer in five Canadian provinces and the San Francisco Bay area (US). With specific attention to knowledge access, sharing, and mobilization, our objective was to document and analyze complex intersectional relationships between marginalization, gender and sexuality, and cancer health decision-making and care experiences. Findings indicate that cancer care knowledge in online environments is shaped by cisnormative and heteronormative narratives. Cancer knowledge and support environments need, by contrast, to be designed by taking into account intersectionally diverse models of minority identities and communities. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-02-05 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://doi.org/10.17645/mac.v7i1.1718 oai:ojs.cogitatiopress.com:article/1718 |
url |
https://doi.org/10.17645/mac.v7i1.1718 |
identifier_str_mv |
oai:ojs.cogitatiopress.com:article/1718 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
https://www.cogitatiopress.com/mediaandcommunication/article/view/1718 https://doi.org/10.17645/mac.v7i1.1718 https://www.cogitatiopress.com/mediaandcommunication/article/view/1718/1718 https://www.cogitatiopress.com/mediaandcommunication/article/downloadSuppFile/1718/391 |
dc.rights.driver.fl_str_mv |
http://creativecommons.org/licenses/by/4.0 info:eu-repo/semantics/openAccess |
rights_invalid_str_mv |
http://creativecommons.org/licenses/by/4.0 |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Cogitatio |
publisher.none.fl_str_mv |
Cogitatio |
dc.source.none.fl_str_mv |
Media and Communication; Vol 7, No 1 (2019): Communicating on/with Minorities; 102-113 2183-2439 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
|
_version_ |
1799130651799060480 |