Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19

Detalhes bibliográficos
Autor(a) principal: Henriques, Adriana
Data de Publicação: 2022
Outros Autores: Loura, David de Sousa, Nogueira, Paulo Jorge, Melo, Graça, Gomes, Idalina, Ferraz, Isabel, Viegas, Laura, Costa, Andreia
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/54759
Resumo: © 2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
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spelling Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19CommunityHealth profileInformal caregiversNursingSurvey© 2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).The increasing overload of chronic conditions raises challenges for the health system. Informal caregivers have a major role in ensuring the quality of life of the cared-for person, despite the reported lack of working resources which can lead to unmet needs. This article reports on the first part of a nurse-led research project entitled ''Informal caregiver' profiles in Lisbon county: a health community approach.' We aimed to support decision-making by developing an informal caregiver profile to promote tailored interventions. A survey addressing the dyad was developed and submitted to a convenient, network-based, stratified sample of carers aged 18 years or above. More than thirty community partners supported the identification of caregivers. Data were submitted to univariate descriptive analysis. A profile of the cared-for person and the informal caregiver was uncovered by identifying 639 caregivers, of whom the majority lived with the cared-for person. Only four percent planned the transition to a caregiver role, and no more than 10% had access to support programs. Approximately half of the respondents found that COVID-19 negatively impacted their performance in the caregiver role. Developing a local and tailored strategy with collaboration between healthcare professionals, academics, and community partners is key to ensuring that meaningful support is provided to caregivers.MDPIRepositório da Universidade de LisboaHenriques, AdrianaLoura, David de SousaNogueira, Paulo JorgeMelo, GraçaGomes, IdalinaFerraz, IsabelViegas, LauraCosta, Andreia2022-10-13T11:13:36Z20222022-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/54759engInt J Environ Res Public Health. 2022 Sep 10;19(18):113941661-782710.3390/ijerph1918113941660-4601info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-11-20T18:17:07Zoai:repositorio.ul.pt:10451/54759Portal AgregadorONGhttps://www.rcaap.pt/oai/openairemluisa.alvim@gmail.comopendoar:71602024-11-20T18:17:07Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
title Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
spellingShingle Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
Henriques, Adriana
Community
Health profile
Informal caregivers
Nursing
Survey
title_short Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
title_full Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
title_fullStr Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
title_full_unstemmed Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
title_sort Does reality overcome the expected? Survey on informal caregivers’ profile: a nurse-led study in times of COVID-19
author Henriques, Adriana
author_facet Henriques, Adriana
Loura, David de Sousa
Nogueira, Paulo Jorge
Melo, Graça
Gomes, Idalina
Ferraz, Isabel
Viegas, Laura
Costa, Andreia
author_role author
author2 Loura, David de Sousa
Nogueira, Paulo Jorge
Melo, Graça
Gomes, Idalina
Ferraz, Isabel
Viegas, Laura
Costa, Andreia
author2_role author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Henriques, Adriana
Loura, David de Sousa
Nogueira, Paulo Jorge
Melo, Graça
Gomes, Idalina
Ferraz, Isabel
Viegas, Laura
Costa, Andreia
dc.subject.por.fl_str_mv Community
Health profile
Informal caregivers
Nursing
Survey
topic Community
Health profile
Informal caregivers
Nursing
Survey
description © 2022 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
publishDate 2022
dc.date.none.fl_str_mv 2022-10-13T11:13:36Z
2022
2022-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/54759
url http://hdl.handle.net/10451/54759
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Int J Environ Res Public Health. 2022 Sep 10;19(18):11394
1661-7827
10.3390/ijerph191811394
1660-4601
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv mluisa.alvim@gmail.com
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