Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases
Autor(a) principal: | |
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Data de Publicação: | 2020 |
Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.14/32247 |
Resumo: | Non-communicable chronic diseases (NCCDs) are the main cause of morbidity and mortality globally. Demographic aging has resulted in older populations with more complex healthcare needs. This necessitates a multilevel rethinking of healthcare policies, health education and community support systems with digitalization of technologies playing a central role. The European Innovation Partnership on Active and Healthy Aging (A3) working group focuses on well-being for older adults, with an emphasis on quality of life and healthy aging. A subgroup of A3, including multidisciplinary stakeholders in health care across Europe, focuses on the palliative care (PC) model as a paradigm to be modified to meet the needs of older persons with NCCDs. This development paper delineates the key parameters we identified as critical in creating a public health model of PC directed to the needs of persons with NCCDs. This paradigm shift should affect horizontal components of public health models. Furthermore, our model includes vertical components often neglected, such as nutrition, resilience, well-being and leisure activities. The main enablers identified are information and communication technologies, education and training programs, communities of compassion, twinning activities, promoting research and increasing awareness amongst policymakers. We also identified key 'bottlenecks': inequity of access, insufficient research, inadequate development of advance care planning and a lack of co-creation of relevant technologies and shared decision-making. Rethinking PC within a public health context must focus on developing policies, training and technologies to enhance person-centered quality life for those with NCCD, while ensuring that they and those important to them experience death with dignity. |
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Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseasesIntegratedMultimorbidityNon-communicable chronic diseases (NCCDs)Palliative carePublic healthNon-communicable chronic diseases (NCCDs) are the main cause of morbidity and mortality globally. Demographic aging has resulted in older populations with more complex healthcare needs. This necessitates a multilevel rethinking of healthcare policies, health education and community support systems with digitalization of technologies playing a central role. The European Innovation Partnership on Active and Healthy Aging (A3) working group focuses on well-being for older adults, with an emphasis on quality of life and healthy aging. A subgroup of A3, including multidisciplinary stakeholders in health care across Europe, focuses on the palliative care (PC) model as a paradigm to be modified to meet the needs of older persons with NCCDs. This development paper delineates the key parameters we identified as critical in creating a public health model of PC directed to the needs of persons with NCCDs. This paradigm shift should affect horizontal components of public health models. Furthermore, our model includes vertical components often neglected, such as nutrition, resilience, well-being and leisure activities. The main enablers identified are information and communication technologies, education and training programs, communities of compassion, twinning activities, promoting research and increasing awareness amongst policymakers. We also identified key 'bottlenecks': inequity of access, insufficient research, inadequate development of advance care planning and a lack of co-creation of relevant technologies and shared decision-making. Rethinking PC within a public health context must focus on developing policies, training and technologies to enhance person-centered quality life for those with NCCD, while ensuring that they and those important to them experience death with dignity.Veritati - Repositório Institucional da Universidade Católica PortuguesaTziraki, CharikliaGrimes, CorrinaVentura, FilipaO'Caoimh, RónánSantana, SilvinaZavagli, VeronicaVarani, SilviaTramontano, DonatellaApóstolo, JoãoGeurden, BartLuca, Vincenzo deTramontano, GiovanniRomano, Maria RosariaAnastasaki, MarilenaLionis, ChristosRodríguez-Acuña, RafaelCapelas, Manuel LuísAfonso, Tânia dos SantosMolloy, David WilliamLiotta, GiuseppeIaccarino, GuidoTriassi, MariaEklund, PatrikRoller-Wirnsberger, ReginaIllario, Maddalena2021-03-17T13:53:57Z2020-09-152020-09-15T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.14/32247eng1463-423610.1017/S146342362000032885091053992PMC750318532928334000569071200001info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-12-05T01:37:00Zoai:repositorio.ucp.pt:10400.14/32247Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:26:01.601777Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases |
title |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases |
spellingShingle |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases Tziraki, Chariklia Integrated Multimorbidity Non-communicable chronic diseases (NCCDs) Palliative care Public health |
title_short |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases |
title_full |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases |
title_fullStr |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases |
title_full_unstemmed |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases |
title_sort |
Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases |
author |
Tziraki, Chariklia |
author_facet |
Tziraki, Chariklia Grimes, Corrina Ventura, Filipa O'Caoimh, Rónán Santana, Silvina Zavagli, Veronica Varani, Silvia Tramontano, Donatella Apóstolo, João Geurden, Bart Luca, Vincenzo de Tramontano, Giovanni Romano, Maria Rosaria Anastasaki, Marilena Lionis, Christos Rodríguez-Acuña, Rafael Capelas, Manuel Luís Afonso, Tânia dos Santos Molloy, David William Liotta, Giuseppe Iaccarino, Guido Triassi, Maria Eklund, Patrik Roller-Wirnsberger, Regina Illario, Maddalena |
author_role |
author |
author2 |
Grimes, Corrina Ventura, Filipa O'Caoimh, Rónán Santana, Silvina Zavagli, Veronica Varani, Silvia Tramontano, Donatella Apóstolo, João Geurden, Bart Luca, Vincenzo de Tramontano, Giovanni Romano, Maria Rosaria Anastasaki, Marilena Lionis, Christos Rodríguez-Acuña, Rafael Capelas, Manuel Luís Afonso, Tânia dos Santos Molloy, David William Liotta, Giuseppe Iaccarino, Guido Triassi, Maria Eklund, Patrik Roller-Wirnsberger, Regina Illario, Maddalena |
author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Veritati - Repositório Institucional da Universidade Católica Portuguesa |
dc.contributor.author.fl_str_mv |
Tziraki, Chariklia Grimes, Corrina Ventura, Filipa O'Caoimh, Rónán Santana, Silvina Zavagli, Veronica Varani, Silvia Tramontano, Donatella Apóstolo, João Geurden, Bart Luca, Vincenzo de Tramontano, Giovanni Romano, Maria Rosaria Anastasaki, Marilena Lionis, Christos Rodríguez-Acuña, Rafael Capelas, Manuel Luís Afonso, Tânia dos Santos Molloy, David William Liotta, Giuseppe Iaccarino, Guido Triassi, Maria Eklund, Patrik Roller-Wirnsberger, Regina Illario, Maddalena |
dc.subject.por.fl_str_mv |
Integrated Multimorbidity Non-communicable chronic diseases (NCCDs) Palliative care Public health |
topic |
Integrated Multimorbidity Non-communicable chronic diseases (NCCDs) Palliative care Public health |
description |
Non-communicable chronic diseases (NCCDs) are the main cause of morbidity and mortality globally. Demographic aging has resulted in older populations with more complex healthcare needs. This necessitates a multilevel rethinking of healthcare policies, health education and community support systems with digitalization of technologies playing a central role. The European Innovation Partnership on Active and Healthy Aging (A3) working group focuses on well-being for older adults, with an emphasis on quality of life and healthy aging. A subgroup of A3, including multidisciplinary stakeholders in health care across Europe, focuses on the palliative care (PC) model as a paradigm to be modified to meet the needs of older persons with NCCDs. This development paper delineates the key parameters we identified as critical in creating a public health model of PC directed to the needs of persons with NCCDs. This paradigm shift should affect horizontal components of public health models. Furthermore, our model includes vertical components often neglected, such as nutrition, resilience, well-being and leisure activities. The main enablers identified are information and communication technologies, education and training programs, communities of compassion, twinning activities, promoting research and increasing awareness amongst policymakers. We also identified key 'bottlenecks': inequity of access, insufficient research, inadequate development of advance care planning and a lack of co-creation of relevant technologies and shared decision-making. Rethinking PC within a public health context must focus on developing policies, training and technologies to enhance person-centered quality life for those with NCCD, while ensuring that they and those important to them experience death with dignity. |
publishDate |
2020 |
dc.date.none.fl_str_mv |
2020-09-15 2020-09-15T00:00:00Z 2021-03-17T13:53:57Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.14/32247 |
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http://hdl.handle.net/10400.14/32247 |
dc.language.iso.fl_str_mv |
eng |
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eng |
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1463-4236 10.1017/S1463423620000328 85091053992 PMC7503185 32928334 000569071200001 |
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openAccess |
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