Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study

Detalhes bibliográficos
Autor(a) principal: Leite, Catarina da Silva Correia Pereira
Data de Publicação: 2011
Tipo de documento: Dissertação
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/1822/17852
Resumo: Dissertação de mestrado integrado em Psicologia (área de especialização em Psicologia da Saúde)
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spelling Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study616.5-004Dissertação de mestrado integrado em Psicologia (área de especialização em Psicologia da Saúde)Introduction: Scleroderma, also known as systemic sclerosis, is a rare, complex and autoimmune disease, with unknown origin and cause (Coelho, Oliveira, & Kroon, 2008). It affects the connective tissue and is characterized by vascular dysfunction, inflammatory and fibrotic of multiple organ systems (Nadashkevich, Davis, &Fritzer, 2004). The symptoms that suggest the existence of scleroderma include: Raynaud phenomenon, skin thickening, calcinosis and telangiectasia (Li, Sahhar, & Littlejohn, 2008). In addition to the swelling of the fingers and hands that may hinder mobility and become a very painful phenomenon (Li et al, 2008), the alterations in internal organs results in significant morbidity and mortality (Assassi, del Junco, Sutter, McNearney, Reveille, Karvanas, …,Gourh, 2009). Despite its severity, the disease remains unknown to many health professionals and may take several years before those affected are diagnosed. This disease is associated with pain, fatigue and progressive disability. Among the physical changes with more psychological impact are the changes in the skin (Malcarne, Hansdottir, Greenbergs, Clements & Weisman, 1999). Due to the disfigurement and physical changes that are typical of the disease, psychological morbidity is high and includes depression, body image problems. Method: The participants in this study are 563 scleroderma patients from 12 European countries and Brazil. These participants are mostly women. The instruments used in this study were the “Canadian Scleroderma Patient Survey of Health Concerns and Research Priorities” and “The Brief Illness Perception Questionnaire (Brief IPQ)”. Results: The most common symptoms and with more impact on the lives of the participants were joint pain, fatigue and Raynaud’s. Just under one fifth of the participants had a diagnosis of scleroderma with the first doctor consulted. Participants with more years of diagnosis revealed to be more satisfied with the medical care they receive. Participants reported a high degree of concern with scleroderma and 84% reported concerns with body image due scleroderma. Depression, anxiety and social phobia are common among scleroderma patients. Conclusion: Due to gravity, lack of knowledge, unpredictability and disfigurement of scleroderma, the existence of psychological disorders in these patients is common.Maia, ÂngelaUniversidade do MinhoLeite, Catarina da Silva Correia Pereira20112011-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/masterThesisapplication/pdfhttp://hdl.handle.net/1822/17852enginfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-07-21T12:02:42Zoai:repositorium.sdum.uminho.pt:1822/17852Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:52:45.018650Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
title Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
spellingShingle Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
Leite, Catarina da Silva Correia Pereira
616.5-004
title_short Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
title_full Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
title_fullStr Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
title_full_unstemmed Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
title_sort Psychosocial characterization, symptoms and illness perception in scleroderma patients: an international study
author Leite, Catarina da Silva Correia Pereira
author_facet Leite, Catarina da Silva Correia Pereira
author_role author
dc.contributor.none.fl_str_mv Maia, Ângela
Universidade do Minho
dc.contributor.author.fl_str_mv Leite, Catarina da Silva Correia Pereira
dc.subject.por.fl_str_mv 616.5-004
topic 616.5-004
description Dissertação de mestrado integrado em Psicologia (área de especialização em Psicologia da Saúde)
publishDate 2011
dc.date.none.fl_str_mv 2011
2011-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/masterThesis
format masterThesis
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/1822/17852
url http://hdl.handle.net/1822/17852
dc.language.iso.fl_str_mv eng
language eng
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
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