Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies.
Autor(a) principal: | |
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Data de Publicação: | 2012 |
Outros Autores: | , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10316/45065 https://doi.org/10.1016/j.dhjo.2011.11.001 |
Resumo: | Background: Parental early adjustment to a pre- or postnatal diagnosis of congenital anomaly has been studied mainly within a pathological and deterministic perspective, giving us an inadequate view of the impact of the diagnosis. Objectives: Adopting a comprehensive approach on parental adjustment, we aimed to characterise the impact of the diagnosis on psychological distress and quality of life, in the early post-diagnosis stage. The effects of gender and the timing of the diagnosis were also examined. Methods: In this cross-section study, 42 couples with healthy babies and 42 couples whose babies were pre- or postnatally diagnosed with a congenital anomaly responded to the Brief Symptom Inventory-18 and to the World Health Organization Quality of Life-Bref instrument. Results: In the early post-diagnosis stage, parents whose babies were diagnosed with a congenital anomaly presented higher levels of psychological distress than the parents of healthy babies (F2,79= 6.23, p = .003), although they displayed similar levels of quality of life (F4,78= 0.62, p = .647). Mothers reported more adjustment difficulties than fathers in both groups. Receiving the diagnosis in the prenatal period was associated with higher maternal psychological quality of life (Z= -2.00, p = .045). Conclusion: The occurrence of a diagnosis of congenital anomaly during the transition to parenthood adds to an accumulation of stress-inducing events and manifests itself in psychopathological symptoms. Maintaining a positive evaluation of well-being may be understood as a parental resource to deal with the diagnosis. The importance of adopting a comprehensive perspective on parental adjustment is highlighted. |
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Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies.Congenital AnomalyPsychological DistressQuality of LifePrenatal DiagnosisPostnatal DiagnosisBackground: Parental early adjustment to a pre- or postnatal diagnosis of congenital anomaly has been studied mainly within a pathological and deterministic perspective, giving us an inadequate view of the impact of the diagnosis. Objectives: Adopting a comprehensive approach on parental adjustment, we aimed to characterise the impact of the diagnosis on psychological distress and quality of life, in the early post-diagnosis stage. The effects of gender and the timing of the diagnosis were also examined. Methods: In this cross-section study, 42 couples with healthy babies and 42 couples whose babies were pre- or postnatally diagnosed with a congenital anomaly responded to the Brief Symptom Inventory-18 and to the World Health Organization Quality of Life-Bref instrument. Results: In the early post-diagnosis stage, parents whose babies were diagnosed with a congenital anomaly presented higher levels of psychological distress than the parents of healthy babies (F2,79= 6.23, p = .003), although they displayed similar levels of quality of life (F4,78= 0.62, p = .647). Mothers reported more adjustment difficulties than fathers in both groups. Receiving the diagnosis in the prenatal period was associated with higher maternal psychological quality of life (Z= -2.00, p = .045). Conclusion: The occurrence of a diagnosis of congenital anomaly during the transition to parenthood adds to an accumulation of stress-inducing events and manifests itself in psychopathological symptoms. Maintaining a positive evaluation of well-being may be understood as a parental resource to deal with the diagnosis. The importance of adopting a comprehensive perspective on parental adjustment is highlighted.2012info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://hdl.handle.net/10316/45065http://hdl.handle.net/10316/45065https://doi.org/10.1016/j.dhjo.2011.11.001engFonseca, AnaNazaré, BárbaraCanavarro, Maria Cristinainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2020-05-25T11:58:28Zoai:estudogeral.uc.pt:10316/45065Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T20:48:30.431319Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. |
title |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. |
spellingShingle |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. Fonseca, Ana Congenital Anomaly Psychological Distress Quality of Life Prenatal Diagnosis Postnatal Diagnosis |
title_short |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. |
title_full |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. |
title_fullStr |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. |
title_full_unstemmed |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. |
title_sort |
Parental psychological distress and quality of life after a pre- or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy babies. |
author |
Fonseca, Ana |
author_facet |
Fonseca, Ana Nazaré, Bárbara Canavarro, Maria Cristina |
author_role |
author |
author2 |
Nazaré, Bárbara Canavarro, Maria Cristina |
author2_role |
author author |
dc.contributor.author.fl_str_mv |
Fonseca, Ana Nazaré, Bárbara Canavarro, Maria Cristina |
dc.subject.por.fl_str_mv |
Congenital Anomaly Psychological Distress Quality of Life Prenatal Diagnosis Postnatal Diagnosis |
topic |
Congenital Anomaly Psychological Distress Quality of Life Prenatal Diagnosis Postnatal Diagnosis |
description |
Background: Parental early adjustment to a pre- or postnatal diagnosis of congenital anomaly has been studied mainly within a pathological and deterministic perspective, giving us an inadequate view of the impact of the diagnosis. Objectives: Adopting a comprehensive approach on parental adjustment, we aimed to characterise the impact of the diagnosis on psychological distress and quality of life, in the early post-diagnosis stage. The effects of gender and the timing of the diagnosis were also examined. Methods: In this cross-section study, 42 couples with healthy babies and 42 couples whose babies were pre- or postnatally diagnosed with a congenital anomaly responded to the Brief Symptom Inventory-18 and to the World Health Organization Quality of Life-Bref instrument. Results: In the early post-diagnosis stage, parents whose babies were diagnosed with a congenital anomaly presented higher levels of psychological distress than the parents of healthy babies (F2,79= 6.23, p = .003), although they displayed similar levels of quality of life (F4,78= 0.62, p = .647). Mothers reported more adjustment difficulties than fathers in both groups. Receiving the diagnosis in the prenatal period was associated with higher maternal psychological quality of life (Z= -2.00, p = .045). Conclusion: The occurrence of a diagnosis of congenital anomaly during the transition to parenthood adds to an accumulation of stress-inducing events and manifests itself in psychopathological symptoms. Maintaining a positive evaluation of well-being may be understood as a parental resource to deal with the diagnosis. The importance of adopting a comprehensive perspective on parental adjustment is highlighted. |
publishDate |
2012 |
dc.date.none.fl_str_mv |
2012 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10316/45065 http://hdl.handle.net/10316/45065 https://doi.org/10.1016/j.dhjo.2011.11.001 |
url |
http://hdl.handle.net/10316/45065 https://doi.org/10.1016/j.dhjo.2011.11.001 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
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1799133763758718976 |