Mixed connective tissue disease : state of the art on clinical practice guidelines
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2019 |
| Outros Autores: | , , , , , , , , , , , , , , , , , , , , , , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10451/46799 |
Resumo: | © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. |
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Mixed connective tissue disease : state of the art on clinical practice guidelinesMixed connective tissue diseaseEuropean reference networksERN reconnetClinical practice guidelinesUnmet needs© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.Mixed connective tissue disease (MCTD) is a complex overlap disease with features of different autoimmune connective tissue diseases (CTDs) namely systemic sclerosis, poly/dermatomyositis and systemic lupus erythematous in patients with antibodies targeting the U1 small nuclear ribonucleoprotein particle. In this narrative review, we summarise the results of a systematic literature research which was performed as part of the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases project, aimed at evaluating existing clinical practice guidelines (CPGs) or recommendations. Since no specific CPGs on MCTD were found, other CPGs developed for other CTDs were taken into consideration in order to discuss what can be applied to MCTD even if designed for other diseases. Three major objectives were proposed for the future development of CPGs: MCTD diagnosis (diagnostic criteria), MCTD initial and follow-up evaluations, MCTD treatment. Early diagnosis, epidemiological data, assessment of burden of disease and QOL aspects are among the unmet needs identified by patients.This publication was funded by the European Union’s Health Programme (2014-2020)BMJ Publishing Group, Ltd.Repositório da Universidade de LisboaChaigne, BenjaminScirè, Carlo AlbertoTalarico, RosariaAlexander, TobiasAmoura, ZahirAvcin, TadejBeretta, LorenzoDoria, AndreaGuffroy, AurelienGuimarães, VeraHachulla, ÉricKrieg, ThomasLaunay, DavidLepri, GemmaMoinzadeh, PiaMüller-Ladner, UlfRednic, SimonaRodrigues, AnaTas, Sander WVan Vollenhoven, Ronald FVieira, AnaBombardieri, StefanoFonseca, João EuricoGaletti, IlariaSchneider, MatthiasSmith, VanessaCutolo, MaurizioMosca, MartaFischer-Betz, Rebecca2021-03-11T16:38:53Z20192019-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/46799engRMD Open. 2018 Oct 18;4(Suppl 1):e000783.10.1136/rmdopen-2018-0007832056-5933info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:49:16Zoai:repositorio.ul.pt:10451/46799Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:58:53.004729Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
Mixed connective tissue disease : state of the art on clinical practice guidelines |
| title |
Mixed connective tissue disease : state of the art on clinical practice guidelines |
| spellingShingle |
Mixed connective tissue disease : state of the art on clinical practice guidelines Chaigne, Benjamin Mixed connective tissue disease European reference networks ERN reconnet Clinical practice guidelines Unmet needs |
| title_short |
Mixed connective tissue disease : state of the art on clinical practice guidelines |
| title_full |
Mixed connective tissue disease : state of the art on clinical practice guidelines |
| title_fullStr |
Mixed connective tissue disease : state of the art on clinical practice guidelines |
| title_full_unstemmed |
Mixed connective tissue disease : state of the art on clinical practice guidelines |
| title_sort |
Mixed connective tissue disease : state of the art on clinical practice guidelines |
| author |
Chaigne, Benjamin |
| author_facet |
Chaigne, Benjamin Scirè, Carlo Alberto Talarico, Rosaria Alexander, Tobias Amoura, Zahir Avcin, Tadej Beretta, Lorenzo Doria, Andrea Guffroy, Aurelien Guimarães, Vera Hachulla, Éric Krieg, Thomas Launay, David Lepri, Gemma Moinzadeh, Pia Müller-Ladner, Ulf Rednic, Simona Rodrigues, Ana Tas, Sander W Van Vollenhoven, Ronald F Vieira, Ana Bombardieri, Stefano Fonseca, João Eurico Galetti, Ilaria Schneider, Matthias Smith, Vanessa Cutolo, Maurizio Mosca, Marta Fischer-Betz, Rebecca |
| author_role |
author |
| author2 |
Scirè, Carlo Alberto Talarico, Rosaria Alexander, Tobias Amoura, Zahir Avcin, Tadej Beretta, Lorenzo Doria, Andrea Guffroy, Aurelien Guimarães, Vera Hachulla, Éric Krieg, Thomas Launay, David Lepri, Gemma Moinzadeh, Pia Müller-Ladner, Ulf Rednic, Simona Rodrigues, Ana Tas, Sander W Van Vollenhoven, Ronald F Vieira, Ana Bombardieri, Stefano Fonseca, João Eurico Galetti, Ilaria Schneider, Matthias Smith, Vanessa Cutolo, Maurizio Mosca, Marta Fischer-Betz, Rebecca |
| author2_role |
author author author author author author author author author author author author author author author author author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
Repositório da Universidade de Lisboa |
| dc.contributor.author.fl_str_mv |
Chaigne, Benjamin Scirè, Carlo Alberto Talarico, Rosaria Alexander, Tobias Amoura, Zahir Avcin, Tadej Beretta, Lorenzo Doria, Andrea Guffroy, Aurelien Guimarães, Vera Hachulla, Éric Krieg, Thomas Launay, David Lepri, Gemma Moinzadeh, Pia Müller-Ladner, Ulf Rednic, Simona Rodrigues, Ana Tas, Sander W Van Vollenhoven, Ronald F Vieira, Ana Bombardieri, Stefano Fonseca, João Eurico Galetti, Ilaria Schneider, Matthias Smith, Vanessa Cutolo, Maurizio Mosca, Marta Fischer-Betz, Rebecca |
| dc.subject.por.fl_str_mv |
Mixed connective tissue disease European reference networks ERN reconnet Clinical practice guidelines Unmet needs |
| topic |
Mixed connective tissue disease European reference networks ERN reconnet Clinical practice guidelines Unmet needs |
| description |
© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. |
| publishDate |
2019 |
| dc.date.none.fl_str_mv |
2019 2019-01-01T00:00:00Z 2021-03-11T16:38:53Z |
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info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
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http://hdl.handle.net/10451/46799 |
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http://hdl.handle.net/10451/46799 |
| dc.language.iso.fl_str_mv |
eng |
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eng |
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RMD Open. 2018 Oct 18;4(Suppl 1):e000783. 10.1136/rmdopen-2018-000783 2056-5933 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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BMJ Publishing Group, Ltd. |
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BMJ Publishing Group, Ltd. |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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