Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2022 |
| Outros Autores: | , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10400.8/8678 |
Resumo: | Funding: This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior—Brasil (CAPES)—Finance Code 001”. This work is also supported by FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020) and under the Scientific Employment Stimulus—Institutional Call—[CEECINST/00051/2018]. |
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Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory StudyEnd-of-lifePatientsFamily caregiversGrounded theoryPalliative careHome careTransitionsFunding: This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior—Brasil (CAPES)—Finance Code 001”. This work is also supported by FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020) and under the Scientific Employment Stimulus—Institutional Call—[CEECINST/00051/2018].This study explored the meanings and experiences of patients with terminal chronic diseases and their caregivers, who face the imminence of death in the home environment after hospital discharge. The qualitative study used constructivist grounded theory. The participants were individuals with a terminal chronic illness, discharged to home, and their family caregivers. Data were gathered from in-depth interviews and field notes, and a comparative analysis was conducted to identify categories and codes, according to Charmaz’s theory. The sample consisted of 21 participants. Three inter-related data categories emerged: “Floating between acceptance and resistance: Perceiving the proximity of death”, “Analysing the end from other perspectives: it is in the encounter with death that life is understood” and “Accepting the path: between the love of letting go and the love of wanting to stay”. The categories translate the reconstruction of those facing end-of-life occurring in the home environment. It is amid the imminence of death that life gains intensity and talking about the finitude of life configures an opportunity to see life from other perspectives. Giving voice to individuals facing the mishaps of a terminal illness fosters the path to a comfortable death. For health professionals, it is an opportunity to provide structured and humanized care with an ethical attitude, in defence of human dignity.International Journal of Environmental Research and Public HealthIC-OnlinePrado, EleandroMarcon, SoniaKalinke, Lucianada Silva, MarcelleBarreto, MayckelTakemoto, AngelicaBirolim, MarcelaLaranjeira, Carlos2023-07-20T14:36:13Z2022-10-112022-10-11T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.8/8678engPrado, E., Marcon, S., Kalinke, L., da Silva, M., Barreto, M., Takemoto, A., Birolim, M., et al. (2022). Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study. International Journal of Environmental Research and Public Health, 19(20), 12987. MDPI AG. Retrieved from http://dx.doi.org/10.3390/ijerph1920129871661-782712987https://doi.org/10.3390/ijerph1920129871660-4601PMC960212736293568info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-01-17T15:57:54Zoai:iconline.ipleiria.pt:10400.8/8678Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T01:51:21.043321Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study |
| title |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study |
| spellingShingle |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study Prado, Eleandro End-of-life Patients Family caregivers Grounded theory Palliative care Home care Transitions |
| title_short |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study |
| title_full |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study |
| title_fullStr |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study |
| title_full_unstemmed |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study |
| title_sort |
Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study |
| author |
Prado, Eleandro |
| author_facet |
Prado, Eleandro Marcon, Sonia Kalinke, Luciana da Silva, Marcelle Barreto, Mayckel Takemoto, Angelica Birolim, Marcela Laranjeira, Carlos |
| author_role |
author |
| author2 |
Marcon, Sonia Kalinke, Luciana da Silva, Marcelle Barreto, Mayckel Takemoto, Angelica Birolim, Marcela Laranjeira, Carlos |
| author2_role |
author author author author author author author |
| dc.contributor.none.fl_str_mv |
IC-Online |
| dc.contributor.author.fl_str_mv |
Prado, Eleandro Marcon, Sonia Kalinke, Luciana da Silva, Marcelle Barreto, Mayckel Takemoto, Angelica Birolim, Marcela Laranjeira, Carlos |
| dc.subject.por.fl_str_mv |
End-of-life Patients Family caregivers Grounded theory Palliative care Home care Transitions |
| topic |
End-of-life Patients Family caregivers Grounded theory Palliative care Home care Transitions |
| description |
Funding: This study was financed in part by the Coordenação de Aperfeiçoamento de Pessoal de Nível Superior—Brasil (CAPES)—Finance Code 001”. This work is also supported by FCT—Fundação para a Ciência e a Tecnologia, I.P. (UIDB/05704/2020 and UIDP/05704/2020) and under the Scientific Employment Stimulus—Institutional Call—[CEECINST/00051/2018]. |
| publishDate |
2022 |
| dc.date.none.fl_str_mv |
2022-10-11 2022-10-11T00:00:00Z 2023-07-20T14:36:13Z |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
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publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.8/8678 |
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http://hdl.handle.net/10400.8/8678 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
Prado, E., Marcon, S., Kalinke, L., da Silva, M., Barreto, M., Takemoto, A., Birolim, M., et al. (2022). Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study. International Journal of Environmental Research and Public Health, 19(20), 12987. MDPI AG. Retrieved from http://dx.doi.org/10.3390/ijerph192012987 1661-7827 12987 https://doi.org/10.3390/ijerph192012987 1660-4601 PMC9602127 36293568 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
| dc.publisher.none.fl_str_mv |
International Journal of Environmental Research and Public Health |
| publisher.none.fl_str_mv |
International Journal of Environmental Research and Public Health |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799137005089587200 |