Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.8/8601 |
Resumo: | Assessing quality of life (QoL) is important to provide personalized and individualized support plans with the purpose of improving personal outcomes. Based on the conceptual model of QoL, the aim of this study was to assess the congruence between the perceptions of institutionalized individuals with intellectual and developmental disabilities (IDD) and the perception of a third party, regarding QoL. Forty-two individuals participated in this study, including twenty-one with mild to severe IDD and their family members/caregiver/reference technician, who responded to the Personal Outcomes Scale (Portuguese version). Significant differences (p < 0.05) were found between reports in the personal development (t = −2.26; p = 0.024), emotional well-being (t = −2.263; p = 0.024), physical well-being (t = −2.491; p = 0.013) and total QoL (t = −2.331; p = 0.02). The results further show that most third-party reports tend to undervalue the QoL of the individual with IDD, and that there is no congruence in any of the QoL domains. The inclusion of self-reports in the QoL assessment is important. In addition to the assessment of third-party reports, the process of making decisions appropriate to the context and individual characteristics is equally important. On the other hand, the inclusion of third-party reports is an opportunity to promote communication among all stakeholders, recognize and discuss differences, and promote QoL, not only of individuals with IDD, but also of families. |
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Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between ReportsCaregivers/family membersIntellectual disabilityEscala Pessoal de ResultadosPersonal Outcomes ScaleSelf-reportsAssessing quality of life (QoL) is important to provide personalized and individualized support plans with the purpose of improving personal outcomes. Based on the conceptual model of QoL, the aim of this study was to assess the congruence between the perceptions of institutionalized individuals with intellectual and developmental disabilities (IDD) and the perception of a third party, regarding QoL. Forty-two individuals participated in this study, including twenty-one with mild to severe IDD and their family members/caregiver/reference technician, who responded to the Personal Outcomes Scale (Portuguese version). Significant differences (p < 0.05) were found between reports in the personal development (t = −2.26; p = 0.024), emotional well-being (t = −2.263; p = 0.024), physical well-being (t = −2.491; p = 0.013) and total QoL (t = −2.331; p = 0.02). The results further show that most third-party reports tend to undervalue the QoL of the individual with IDD, and that there is no congruence in any of the QoL domains. The inclusion of self-reports in the QoL assessment is important. In addition to the assessment of third-party reports, the process of making decisions appropriate to the context and individual characteristics is equally important. On the other hand, the inclusion of third-party reports is an opportunity to promote communication among all stakeholders, recognize and discuss differences, and promote QoL, not only of individuals with IDD, but also of families.MDPIIC-OnlineJacinto, MiguelRodrigues, FilipeMonteiro, DiogoAntunes, Raul de Sousa NogueiraFerreira, José PedroMatos, RuiCampos, Maria João2023-06-15T13:06:14Z2023-06-142023-06-14T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.8/8601engJacinto, M.; Rodrigues, F.; Monteiro, D.; Antunes, R.; Ferreira, J.P.; Matos, R.; Campos, M.J. Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports. Healthcare 2023, 11, 1748. https://doi.org/10.3390/ healthcare111217482227-903210.3390/healthcare11121748info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-01-17T15:57:42Zoai:iconline.ipleiria.pt:10400.8/8601Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T01:51:17.459239Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports |
title |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports |
spellingShingle |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports Jacinto, Miguel Caregivers/family members Intellectual disability Escala Pessoal de Resultados Personal Outcomes Scale Self-reports |
title_short |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports |
title_full |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports |
title_fullStr |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports |
title_full_unstemmed |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports |
title_sort |
Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports |
author |
Jacinto, Miguel |
author_facet |
Jacinto, Miguel Rodrigues, Filipe Monteiro, Diogo Antunes, Raul de Sousa Nogueira Ferreira, José Pedro Matos, Rui Campos, Maria João |
author_role |
author |
author2 |
Rodrigues, Filipe Monteiro, Diogo Antunes, Raul de Sousa Nogueira Ferreira, José Pedro Matos, Rui Campos, Maria João |
author2_role |
author author author author author author |
dc.contributor.none.fl_str_mv |
IC-Online |
dc.contributor.author.fl_str_mv |
Jacinto, Miguel Rodrigues, Filipe Monteiro, Diogo Antunes, Raul de Sousa Nogueira Ferreira, José Pedro Matos, Rui Campos, Maria João |
dc.subject.por.fl_str_mv |
Caregivers/family members Intellectual disability Escala Pessoal de Resultados Personal Outcomes Scale Self-reports |
topic |
Caregivers/family members Intellectual disability Escala Pessoal de Resultados Personal Outcomes Scale Self-reports |
description |
Assessing quality of life (QoL) is important to provide personalized and individualized support plans with the purpose of improving personal outcomes. Based on the conceptual model of QoL, the aim of this study was to assess the congruence between the perceptions of institutionalized individuals with intellectual and developmental disabilities (IDD) and the perception of a third party, regarding QoL. Forty-two individuals participated in this study, including twenty-one with mild to severe IDD and their family members/caregiver/reference technician, who responded to the Personal Outcomes Scale (Portuguese version). Significant differences (p < 0.05) were found between reports in the personal development (t = −2.26; p = 0.024), emotional well-being (t = −2.263; p = 0.024), physical well-being (t = −2.491; p = 0.013) and total QoL (t = −2.331; p = 0.02). The results further show that most third-party reports tend to undervalue the QoL of the individual with IDD, and that there is no congruence in any of the QoL domains. The inclusion of self-reports in the QoL assessment is important. In addition to the assessment of third-party reports, the process of making decisions appropriate to the context and individual characteristics is equally important. On the other hand, the inclusion of third-party reports is an opportunity to promote communication among all stakeholders, recognize and discuss differences, and promote QoL, not only of individuals with IDD, but also of families. |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-06-15T13:06:14Z 2023-06-14 2023-06-14T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.8/8601 |
url |
http://hdl.handle.net/10400.8/8601 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
Jacinto, M.; Rodrigues, F.; Monteiro, D.; Antunes, R.; Ferreira, J.P.; Matos, R.; Campos, M.J. Quality of Life in Individuals with Intellectual and Developmental Disabilities: The Congruency Effect between Reports. Healthcare 2023, 11, 1748. https://doi.org/10.3390/ healthcare11121748 2227-9032 10.3390/healthcare11121748 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
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application/pdf |
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MDPI |
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MDPI |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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