Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals
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Data de Publicação: | 2018 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997 |
Resumo: | Introduction: The lack of tools for quality assessment of genetic counselling is recognized in national and international studies. The correlation of quality of healthcare practice with greater satisfaction of patients and affected families is also well established. The present study describes the development and validation of the first Portuguese scale for quality assessment of genetic counselling practice. It encompasses a proposal of a new tool for the evaluation of the process by professionals.Material and Methods: The definition of an initial pool of items and their organization was based on a literature review and identification of the main genetic counselling dimensions as well as the theoretical dimensions of the Reciprocal Engagement Model. After a pre-test validation the scale was submitted to psychometric validation using a sample of 30 participants who evaluated 81 genetic counselling sessions.Results: Based on statistical and empirical criteria the best items were selected. The final 50 items- version comprises five dimensions: education, counselees’ characteristics and decision-making, therapeutic relationship, effects of the process on the counselees andservices organization.Discussion: Results showed consistent psychometric properties of the scale supported on theoretical and practice concepts of genetic counseling. The reduced number of participants involved in psychometric validation is a limitation of the study, which reflected thereduced number of professionals in genetic healthcare services.Conclusion: The scale proposed at this study is a novel and multidimensional instrument that aimed to contribute to the improvement of genetic counselling practice in Portugal. |
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Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare ProfessionalsProposta de Uma Escala Portuguesa para a Avaliação da Qualidade do Aconselhamento Genético: Uma Nova Ferramenta para os Profissionais da SaúdeGenetic CounselingGenetic ServicesOutcome Assessment (Health Care)PortugalPsychometricsAconselhamento GenéticoAvaliação de Resultados (Cuidados de Saúde)PortugalPsicometriaServiços de GenéticaIntroduction: The lack of tools for quality assessment of genetic counselling is recognized in national and international studies. The correlation of quality of healthcare practice with greater satisfaction of patients and affected families is also well established. The present study describes the development and validation of the first Portuguese scale for quality assessment of genetic counselling practice. It encompasses a proposal of a new tool for the evaluation of the process by professionals.Material and Methods: The definition of an initial pool of items and their organization was based on a literature review and identification of the main genetic counselling dimensions as well as the theoretical dimensions of the Reciprocal Engagement Model. After a pre-test validation the scale was submitted to psychometric validation using a sample of 30 participants who evaluated 81 genetic counselling sessions.Results: Based on statistical and empirical criteria the best items were selected. The final 50 items- version comprises five dimensions: education, counselees’ characteristics and decision-making, therapeutic relationship, effects of the process on the counselees andservices organization.Discussion: Results showed consistent psychometric properties of the scale supported on theoretical and practice concepts of genetic counseling. The reduced number of participants involved in psychometric validation is a limitation of the study, which reflected thereduced number of professionals in genetic healthcare services.Conclusion: The scale proposed at this study is a novel and multidimensional instrument that aimed to contribute to the improvement of genetic counselling practice in Portugal.Introdução: A falta de ferramentas para avaliar a qualidade do aconselhamento genético é uma limitação reconhecida em estudos nacionais e internacionais. É conhecida também a relação da qualidade da prática nos cuidados de saúde com uma maior satisfação dos doentes e das famílias afetadas. O seguinte estudo apresenta a construção e validação da primeira escala portuguesa para avaliação da qualidade da prática do aconselhamento genético. Engloba uma proposta de ferramenta para a avaliação do processopelos próprios profissionais.Material e Métodos: Iniciou-se este estudo pela revisão da literatura e identificação das principais dimensões do aconselhamento genético. De seguida, procedeu-se à elaboração dos itens e à sua organização mediante as dimensões teóricas do Modelo do Envolvimento Recíproco. Após um pré-teste alcançou-se a versão que foi proposta para validação a uma amostra de 30 participantes, que avaliaram 81 sessões de aconselhamento genético.Resultados: Através de critérios estatísticos e empíricos selecionaram-se os melhores itens, ficando a escala constituída por 50 itens. Esta versão da escala compreende cinco dimensões: educação, características do consultando e tomada de decisão, relação terapêutica, efeitos do processo no consultando e organização do serviço.Discussão: Os resultados mostraram que se trata de uma escala válida, com características psicométricas consistentes e fundamentada em simultâneo do ponto de vista teórico-prático do aconselhamento genético. O número reduzido de participantes envolvidos na validação da escala constitui uma limitação, que reflete o número reduzido de profissionais a exercer nesta área dos cuidados de saúde.Conclusão: A escala proposta neste estudo é um instrumento pioneiro, multidimensional que pretende contribuir para a qualidade da prática do aconselhamento genético em Portugal.Ordem dos Médicos2018-06-29info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfapplication/pdfapplication/pdfapplication/pdfapplication/pdfapplication/vnd.openxmlformats-officedocument.wordprocessingml.documentimage/jpegimage/jpegapplication/pdfimage/pngimage/jpegapplication/mswordapplication/mswordapplication/mswordapplication/pdfhttps://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997oai:ojs.www.actamedicaportuguesa.com:article/9997Acta Médica Portuguesa; Vol. 31 No. 6 (2018): June; 321-328Acta Médica Portuguesa; Vol. 31 N.º 6 (2018): Junho; 321-3281646-07580870-399Xreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporenghttps://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5445https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/6049https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5454https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5455https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5456https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/9841https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/9842https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/9843https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10048https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10210https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10211https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10212https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10213https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10214https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10319Direitos de Autor (c) 2018 Acta Médica Portuguesainfo:eu-repo/semantics/openAccessPaneque, MilenaCosta, CatarinaLemos, CarolinaAlves-Ferreira, MiguelSequeiros, JorgeLemos, Marina Serra2022-12-20T11:05:51Zoai:ojs.www.actamedicaportuguesa.com:article/9997Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T16:19:47.052643Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals Proposta de Uma Escala Portuguesa para a Avaliação da Qualidade do Aconselhamento Genético: Uma Nova Ferramenta para os Profissionais da Saúde |
title |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals |
spellingShingle |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals Paneque, Milena Genetic Counseling Genetic Services Outcome Assessment (Health Care) Portugal Psychometrics Aconselhamento Genético Avaliação de Resultados (Cuidados de Saúde) Portugal Psicometria Serviços de Genética |
title_short |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals |
title_full |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals |
title_fullStr |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals |
title_full_unstemmed |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals |
title_sort |
Proposal of a Portuguese Tool for Quality Assessment of Genetic Counselling: a New Tool for Healthcare Professionals |
author |
Paneque, Milena |
author_facet |
Paneque, Milena Costa, Catarina Lemos, Carolina Alves-Ferreira, Miguel Sequeiros, Jorge Lemos, Marina Serra |
author_role |
author |
author2 |
Costa, Catarina Lemos, Carolina Alves-Ferreira, Miguel Sequeiros, Jorge Lemos, Marina Serra |
author2_role |
author author author author author |
dc.contributor.author.fl_str_mv |
Paneque, Milena Costa, Catarina Lemos, Carolina Alves-Ferreira, Miguel Sequeiros, Jorge Lemos, Marina Serra |
dc.subject.por.fl_str_mv |
Genetic Counseling Genetic Services Outcome Assessment (Health Care) Portugal Psychometrics Aconselhamento Genético Avaliação de Resultados (Cuidados de Saúde) Portugal Psicometria Serviços de Genética |
topic |
Genetic Counseling Genetic Services Outcome Assessment (Health Care) Portugal Psychometrics Aconselhamento Genético Avaliação de Resultados (Cuidados de Saúde) Portugal Psicometria Serviços de Genética |
description |
Introduction: The lack of tools for quality assessment of genetic counselling is recognized in national and international studies. The correlation of quality of healthcare practice with greater satisfaction of patients and affected families is also well established. The present study describes the development and validation of the first Portuguese scale for quality assessment of genetic counselling practice. It encompasses a proposal of a new tool for the evaluation of the process by professionals.Material and Methods: The definition of an initial pool of items and their organization was based on a literature review and identification of the main genetic counselling dimensions as well as the theoretical dimensions of the Reciprocal Engagement Model. After a pre-test validation the scale was submitted to psychometric validation using a sample of 30 participants who evaluated 81 genetic counselling sessions.Results: Based on statistical and empirical criteria the best items were selected. The final 50 items- version comprises five dimensions: education, counselees’ characteristics and decision-making, therapeutic relationship, effects of the process on the counselees andservices organization.Discussion: Results showed consistent psychometric properties of the scale supported on theoretical and practice concepts of genetic counseling. The reduced number of participants involved in psychometric validation is a limitation of the study, which reflected thereduced number of professionals in genetic healthcare services.Conclusion: The scale proposed at this study is a novel and multidimensional instrument that aimed to contribute to the improvement of genetic counselling practice in Portugal. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-06-29 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997 oai:ojs.www.actamedicaportuguesa.com:article/9997 |
url |
https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997 |
identifier_str_mv |
oai:ojs.www.actamedicaportuguesa.com:article/9997 |
dc.language.iso.fl_str_mv |
por eng |
language |
por eng |
dc.relation.none.fl_str_mv |
https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5445 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/6049 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5454 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5455 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/5456 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/9841 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/9842 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/9843 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10048 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10210 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10211 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10212 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10213 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10214 https://www.actamedicaportuguesa.com/revista/index.php/amp/article/view/9997/10319 |
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Direitos de Autor (c) 2018 Acta Médica Portuguesa info:eu-repo/semantics/openAccess |
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Direitos de Autor (c) 2018 Acta Médica Portuguesa |
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Ordem dos Médicos |
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Ordem dos Médicos |
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Acta Médica Portuguesa; Vol. 31 No. 6 (2018): June; 321-328 Acta Médica Portuguesa; Vol. 31 N.º 6 (2018): Junho; 321-328 1646-0758 0870-399X reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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