Contributions to the family's adaptation to the onset of a neurocognitive disorder

Detalhes bibliográficos
Autor(a) principal: Silva, Mafalda Sofia Gomes Oliveira da
Data de Publicação: 2022
Outros Autores: Sá, Luís Octávio de, Reis, Ana Catarina Rodrigues da Silva
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.14/39544
Resumo: Background: The family is the main resource of patients, and family members take on the role of family caregivers. Objective: To identify the variables influencing the impact of a neurocognitive disorder (NCD) on family members and characterize the caregivers of people living with a NCD. Methodology: Quantitative, descriptive, and correlational study with a sample of 262 family members of people living with a NCD. Results: Caregivers revealed an association between the emotional dimension (r = 0.526; n = 102; p < 0.01), economic dimension (r = 0.292; n = 102; p < 0.01), support-seeking (r = 0.279; n = 102; p < 0.01), the healthcare-seeking dimension (r = 0.375; n = 102; p < 0.01) and a higher perceived burden. Among family members, the greater the impact of perceived family relations, the greater the perceived social support (r = 0.219; n = 104; p < 0.05); the greater the emotional impact, the greater the need to seek support (r = 0.303; n = 104; p < 0.01); and the greater the perceived impact on the economic dimension, the greater the need to seek support (r = 0.319; n = 104; p < 0.01). Conclusion: The family’s functioning, the patient’s level of dependence, the education level, the gender, and the degree of kinship seem to influence family adaptation.
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spelling Contributions to the family's adaptation to the onset of a neurocognitive disorderContributos para a adaptação face ao surgimento de uma situação de perturbação neurocognitiva na famíliaContribuciones a la adaptación ante la aparición de una situación de trastorno neurocognitivo en la familiaFamily relationsFamilyDementiaNursingRelações familiaresFamíliaDemênciaEnfermagemRelaciones familiaresFamiliaDemenciaEnfermeríaBackground: The family is the main resource of patients, and family members take on the role of family caregivers. Objective: To identify the variables influencing the impact of a neurocognitive disorder (NCD) on family members and characterize the caregivers of people living with a NCD. Methodology: Quantitative, descriptive, and correlational study with a sample of 262 family members of people living with a NCD. Results: Caregivers revealed an association between the emotional dimension (r = 0.526; n = 102; p < 0.01), economic dimension (r = 0.292; n = 102; p < 0.01), support-seeking (r = 0.279; n = 102; p < 0.01), the healthcare-seeking dimension (r = 0.375; n = 102; p < 0.01) and a higher perceived burden. Among family members, the greater the impact of perceived family relations, the greater the perceived social support (r = 0.219; n = 104; p < 0.05); the greater the emotional impact, the greater the need to seek support (r = 0.303; n = 104; p < 0.01); and the greater the perceived impact on the economic dimension, the greater the need to seek support (r = 0.319; n = 104; p < 0.01). Conclusion: The family’s functioning, the patient’s level of dependence, the education level, the gender, and the degree of kinship seem to influence family adaptation.Enquadramento: A família é o principal recurso da pessoa que adoece, assumindo-se, os seus constituintes, como cuidadores familiares. Objetivo: Identificar as variáveis que influenciam o impacto da perturbação neurocognitiva nos familiares e caracterizar os cuidadores de pessoas com PNC. Metodologia: Estudo quantitativo, descritivo e correlacional, com 262 familiares de pessoas com perturbação neurocognitiva. Resultados: Os cuidadores evidenciam uma associação entre as dimensões impacto emocional (r = 0,526; n = 102; p < 0,01), económica (r = 0,292; n = 102; p < 0,01), procura de suporte (r = 0,279; n = 102; p < 0,01), prestação de cuidados (r = 0,375; n = 102; p < 0,01) com maior sobrecarga percecionada. Entre os membros da família, quanto maior o impacto das relações familiares percebidas, maior o suporte social percebido (r = 0,219; n = 104; p < 0,05); quanto maior o impacto emocional, maior a necessidade de procura de suporte (r = 0,303; n = 104; p < 0,01); e quanto maior o impacto percebido na dimensão económica, maior a necessidade de procura de suporte (r = 0,319; n = 104; p < 0,01). Conclusão: O grau de funcionalidade da família, a dependência da pessoa cuidada, a escolaridade, o género e o grau de parentesco parecem ter influência na adaptação das famílias.Marco contextual: La familia es el principal recurso de la persona que cae enferma y sus miembros se consideran cuidadores familiares. Objetivo: Identificar las variables que influyen en el impacto del trastorno neurocognitivo en los familiares y caracterizar a los cuidadores de personas con PNC. Metodología: Estudio cuantitativo, descriptivo y correlacional, con 262 familiares de personas con trastorno neurocognitivo. Resultados: Los cuidadores observan una asociación entre las dimensiones impacto emocional (r = 0,526, n = 102, p < 0,01), económica (r = 0,292, n = 102, p < 0,01), búsqueda de apoyo (r = 0,279, n = 102, p < 0,01), prestación de cuidados (r = 0,375, n = 102, p < 0,01) con una mayor carga percibida. Entre los miembros de la familia, cuanto mayor es el impacto de las relaciones familiares percibidas, mayor es el apoyo social percibido (r = 0,219, n = 104, p < 0,05); cuanto mayor es el impacto emocional, mayor es la necesidad de buscar apoyo (r = 0,303, n = 104, p < 0,01), y cuanto mayor es el impacto percibido en la dimensión económica, mayor es la necesidad de buscar apoyo (r = 0,319, n = 104, p < 0,01). Conclusión: El grado de funcionalidad de la familia, la dependencia de la persona cuidada, la educación, el género y el grado de parentesco parecen influir en la adaptación de las familias.Veritati - Repositório Institucional da Universidade Católica PortuguesaSilva, Mafalda Sofia Gomes Oliveira daSá, Luís Octávio deReis, Ana Catarina Rodrigues da Silva2022-12-13T12:59:53Z2022-09-082022-09-08T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfapplication/pdfhttp://hdl.handle.net/10400.14/39544eng0874-028310.12707/RV2112285147677980info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-07-12T17:45:04Zoai:repositorio.ucp.pt:10400.14/39544Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:32:22.156580Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Contributions to the family's adaptation to the onset of a neurocognitive disorder
Contributos para a adaptação face ao surgimento de uma situação de perturbação neurocognitiva na família
Contribuciones a la adaptación ante la aparición de una situación de trastorno neurocognitivo en la familia
title Contributions to the family's adaptation to the onset of a neurocognitive disorder
spellingShingle Contributions to the family's adaptation to the onset of a neurocognitive disorder
Silva, Mafalda Sofia Gomes Oliveira da
Family relations
Family
Dementia
Nursing
Relações familiares
Família
Demência
Enfermagem
Relaciones familiares
Familia
Demencia
Enfermería
title_short Contributions to the family's adaptation to the onset of a neurocognitive disorder
title_full Contributions to the family's adaptation to the onset of a neurocognitive disorder
title_fullStr Contributions to the family's adaptation to the onset of a neurocognitive disorder
title_full_unstemmed Contributions to the family's adaptation to the onset of a neurocognitive disorder
title_sort Contributions to the family's adaptation to the onset of a neurocognitive disorder
author Silva, Mafalda Sofia Gomes Oliveira da
author_facet Silva, Mafalda Sofia Gomes Oliveira da
Sá, Luís Octávio de
Reis, Ana Catarina Rodrigues da Silva
author_role author
author2 Sá, Luís Octávio de
Reis, Ana Catarina Rodrigues da Silva
author2_role author
author
dc.contributor.none.fl_str_mv Veritati - Repositório Institucional da Universidade Católica Portuguesa
dc.contributor.author.fl_str_mv Silva, Mafalda Sofia Gomes Oliveira da
Sá, Luís Octávio de
Reis, Ana Catarina Rodrigues da Silva
dc.subject.por.fl_str_mv Family relations
Family
Dementia
Nursing
Relações familiares
Família
Demência
Enfermagem
Relaciones familiares
Familia
Demencia
Enfermería
topic Family relations
Family
Dementia
Nursing
Relações familiares
Família
Demência
Enfermagem
Relaciones familiares
Familia
Demencia
Enfermería
description Background: The family is the main resource of patients, and family members take on the role of family caregivers. Objective: To identify the variables influencing the impact of a neurocognitive disorder (NCD) on family members and characterize the caregivers of people living with a NCD. Methodology: Quantitative, descriptive, and correlational study with a sample of 262 family members of people living with a NCD. Results: Caregivers revealed an association between the emotional dimension (r = 0.526; n = 102; p < 0.01), economic dimension (r = 0.292; n = 102; p < 0.01), support-seeking (r = 0.279; n = 102; p < 0.01), the healthcare-seeking dimension (r = 0.375; n = 102; p < 0.01) and a higher perceived burden. Among family members, the greater the impact of perceived family relations, the greater the perceived social support (r = 0.219; n = 104; p < 0.05); the greater the emotional impact, the greater the need to seek support (r = 0.303; n = 104; p < 0.01); and the greater the perceived impact on the economic dimension, the greater the need to seek support (r = 0.319; n = 104; p < 0.01). Conclusion: The family’s functioning, the patient’s level of dependence, the education level, the gender, and the degree of kinship seem to influence family adaptation.
publishDate 2022
dc.date.none.fl_str_mv 2022-12-13T12:59:53Z
2022-09-08
2022-09-08T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
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dc.language.iso.fl_str_mv eng
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10.12707/RV21122
85147677980
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