CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal
Autor(a) principal: | |
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Data de Publicação: | 2023 |
Outros Autores: | , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10400.2/14566 |
Resumo: | Cognitive difficulties are highly prevalent and negatively impact cancer survivors' quality of life. The UCLA Cognitive Rehabilitation Intervention Program (in short, UCLA program) is an evidence-based intervention developed and tested in the US to address the cognitive complaints of cancer survivors. Since there are no cognitive rehabilitation programs available for Portuguese cancer-related settings, this study aimed to culturally adapt the UCLA program to Portugal. Nine steps were implemented for this cultural adaptation: needs assessment, initial contacts, translation, cultural adaptation, independent review by a panel of experts (n = 6), focus group discussions with cancer survivors (n = 11), systematization of inputs and improvement of the final materials, fidelity check, and preliminary acceptability assessment. The findings suggested that changes to the original materials were needed. A Portuguese name, "CanCOG®-Reabilitação Cognitiva no Cancro" (in English "CanCOG®-Cognitive Rehabilitation in Cancer"), and a logo were created to make it more memorable and appealing for the Portuguese population. The language was adjusted to ensure content accessibility and semantic and conceptual equivalence. Finally, references to several cultural aspects, such as habits, customs, and traditions, were adapted to fit the new cultural context. The UCLA program may be a promising tool to help alleviate the cognitive difficulties reported by cancer survivors in different cultural contexts. Future research is needed to confirm the feasibility, acceptability, and preliminary efficacy of its Portuguese version, "CanCOG®-Reabilitação Cognitiva no Cancro". |
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CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in PortugalCancerCancer survivorsCancer-related cognitive impairmentCognitive rehabilitationCultural adaptationCognitive difficulties are highly prevalent and negatively impact cancer survivors' quality of life. The UCLA Cognitive Rehabilitation Intervention Program (in short, UCLA program) is an evidence-based intervention developed and tested in the US to address the cognitive complaints of cancer survivors. Since there are no cognitive rehabilitation programs available for Portuguese cancer-related settings, this study aimed to culturally adapt the UCLA program to Portugal. Nine steps were implemented for this cultural adaptation: needs assessment, initial contacts, translation, cultural adaptation, independent review by a panel of experts (n = 6), focus group discussions with cancer survivors (n = 11), systematization of inputs and improvement of the final materials, fidelity check, and preliminary acceptability assessment. The findings suggested that changes to the original materials were needed. A Portuguese name, "CanCOG®-Reabilitação Cognitiva no Cancro" (in English "CanCOG®-Cognitive Rehabilitation in Cancer"), and a logo were created to make it more memorable and appealing for the Portuguese population. The language was adjusted to ensure content accessibility and semantic and conceptual equivalence. Finally, references to several cultural aspects, such as habits, customs, and traditions, were adapted to fit the new cultural context. The UCLA program may be a promising tool to help alleviate the cognitive difficulties reported by cancer survivors in different cultural contexts. Future research is needed to confirm the feasibility, acceptability, and preliminary efficacy of its Portuguese version, "CanCOG®-Reabilitação Cognitiva no Cancro".This research was supported by National Funds through FCT—Fundação para a Ciência e a Tecnologia, I.P. (http://www.fct.pt/ accessed on 21 October 2022), within CINTESIS R&D Unit (reference UIDB/4255/2020 and UIDP/4255/2020), WJCR R&D Unit (reference UIDB/04810/2020), and within the scope of the project RISE (LA/P/0053/2020). A.F.O. is supported by National Funds through the FCT, within a PhD fellowship (SFRH/BD/138785/2018).Repositório AbertoOliveira, Ana F.Sosa-Napolskij, MilaydisTorres, AnaQueiroz, Diâner FelipeBártolo, AnaSousa, HelenaMonteiro, SaraVan Dyk, KathleenErcoli, Linda M.Santos, Isabel M.2023-07-24T07:09:29Z20232023-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10400.2/14566eng10.3390/healthcare11010141info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-16T15:47:10Zoai:repositorioaberto.uab.pt:10400.2/14566Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:53:12.927992Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal |
title |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal |
spellingShingle |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal Oliveira, Ana F. Cancer Cancer survivors Cancer-related cognitive impairment Cognitive rehabilitation Cultural adaptation |
title_short |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal |
title_full |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal |
title_fullStr |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal |
title_full_unstemmed |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal |
title_sort |
CanCOG®: cultural adaptation of the evidence-based UCLA cognitive rehabilitation intervention program for cancer survivors in Portugal |
author |
Oliveira, Ana F. |
author_facet |
Oliveira, Ana F. Sosa-Napolskij, Milaydis Torres, Ana Queiroz, Diâner Felipe Bártolo, Ana Sousa, Helena Monteiro, Sara Van Dyk, Kathleen Ercoli, Linda M. Santos, Isabel M. |
author_role |
author |
author2 |
Sosa-Napolskij, Milaydis Torres, Ana Queiroz, Diâner Felipe Bártolo, Ana Sousa, Helena Monteiro, Sara Van Dyk, Kathleen Ercoli, Linda M. Santos, Isabel M. |
author2_role |
author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Repositório Aberto |
dc.contributor.author.fl_str_mv |
Oliveira, Ana F. Sosa-Napolskij, Milaydis Torres, Ana Queiroz, Diâner Felipe Bártolo, Ana Sousa, Helena Monteiro, Sara Van Dyk, Kathleen Ercoli, Linda M. Santos, Isabel M. |
dc.subject.por.fl_str_mv |
Cancer Cancer survivors Cancer-related cognitive impairment Cognitive rehabilitation Cultural adaptation |
topic |
Cancer Cancer survivors Cancer-related cognitive impairment Cognitive rehabilitation Cultural adaptation |
description |
Cognitive difficulties are highly prevalent and negatively impact cancer survivors' quality of life. The UCLA Cognitive Rehabilitation Intervention Program (in short, UCLA program) is an evidence-based intervention developed and tested in the US to address the cognitive complaints of cancer survivors. Since there are no cognitive rehabilitation programs available for Portuguese cancer-related settings, this study aimed to culturally adapt the UCLA program to Portugal. Nine steps were implemented for this cultural adaptation: needs assessment, initial contacts, translation, cultural adaptation, independent review by a panel of experts (n = 6), focus group discussions with cancer survivors (n = 11), systematization of inputs and improvement of the final materials, fidelity check, and preliminary acceptability assessment. The findings suggested that changes to the original materials were needed. A Portuguese name, "CanCOG®-Reabilitação Cognitiva no Cancro" (in English "CanCOG®-Cognitive Rehabilitation in Cancer"), and a logo were created to make it more memorable and appealing for the Portuguese population. The language was adjusted to ensure content accessibility and semantic and conceptual equivalence. Finally, references to several cultural aspects, such as habits, customs, and traditions, were adapted to fit the new cultural context. The UCLA program may be a promising tool to help alleviate the cognitive difficulties reported by cancer survivors in different cultural contexts. Future research is needed to confirm the feasibility, acceptability, and preliminary efficacy of its Portuguese version, "CanCOG®-Reabilitação Cognitiva no Cancro". |
publishDate |
2023 |
dc.date.none.fl_str_mv |
2023-07-24T07:09:29Z 2023 2023-01-01T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10400.2/14566 |
url |
http://hdl.handle.net/10400.2/14566 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
10.3390/healthcare11010141 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799135127338483712 |