Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study
| Autor(a) principal: | |
|---|---|
| Data de Publicação: | 2015 |
| Outros Autores: | , , , , , , , , , , , , |
| Tipo de documento: | Artigo |
| Idioma: | eng |
| Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
| Texto Completo: | http://hdl.handle.net/10451/51814 |
Resumo: | © 2015 – IOS Press and the authors. All rights reserved. This article is published online with Open Access and distributed under the terms of the Creative Commons Attribution Non-Commercial License. |
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Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi studyOutcomes assessmentParkinson’s diseaseDelphi techniquePatient-centered outcomes research© 2015 – IOS Press and the authors. All rights reserved. This article is published online with Open Access and distributed under the terms of the Creative Commons Attribution Non-Commercial License.Background: Parkinson's disease (PD) is a neurodegenerative disorder with fluctuating symptoms. To aid the development of a system to evaluate people with PD (PwP) at home (SENSE-PARK system) there was a need to define parameters and tools to be applied in the assessment of 6 domains: gait, bradykinesia/hypokinesia, tremor, sleep, balance and cognition. Objective: To identify relevant parameters and assessment tools of the 6 domains, from the perspective of PwP, caregivers and movement disorders specialists. Methods: A 2-round Delphi study was conducted to select a core of parameters and assessment tools to be applied. This process included PwP, caregivers and movement disorders specialists. Results: Two hundred and thirty-three PwP, caregivers and physicians completed the first round questionnaire, and 50 the second. Results allowed the identification of parameters and assessment tools to be added to the SENSE-PARK system. The most consensual parameters were: Falls and Near Falls; Capability to Perform Activities of Daily Living; Interference with Activities of Daily Living; Capability to Process Tasks; and Capability to Recall and Retrieve Information. The most cited assessment strategies included Walkers; the Evaluation of Performance Doing Fine Motor Movements; Capability to Eat; Assessment of Sleep Quality; Identification of Circumstances and Triggers for Loose of Balance and Memory Assessment. Conclusions: An agreed set of measuring parameters, tests, tools and devices was achieved to be part of a system to evaluate PwP at home. A pattern of different perspectives was identified for each stakeholder.IOS PressRepositório da Universidade de LisboaFerreira, Joaquim JSantos, Ana T.Domingos, Josefa M. M.Matthews, HelenIsaacs, TomDuffen, JoyAl-Jawad, AhmedLarsen, FrankSerrano, J. ArturWeber, PeterThoms, AndreaSollinger, StefanGraessner, HolmMaetzler, Walter2022-03-17T17:31:30Z20152015-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/51814engJournal of Parkinson’s Disease 5 (2015) 281–2901877-717110.3233/JPD-1404931877-718Xinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:56:45Zoai:repositorio.ul.pt:10451/51814Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:03:02.785365Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
| dc.title.none.fl_str_mv |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study |
| title |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study |
| spellingShingle |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study Ferreira, Joaquim J Outcomes assessment Parkinson’s disease Delphi technique Patient-centered outcomes research |
| title_short |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study |
| title_full |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study |
| title_fullStr |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study |
| title_full_unstemmed |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study |
| title_sort |
Clinical parameters and tools for home-based assessment of Parkinson’s disease: results from a Delphi study |
| author |
Ferreira, Joaquim J |
| author_facet |
Ferreira, Joaquim J Santos, Ana T. Domingos, Josefa M. M. Matthews, Helen Isaacs, Tom Duffen, Joy Al-Jawad, Ahmed Larsen, Frank Serrano, J. Artur Weber, Peter Thoms, Andrea Sollinger, Stefan Graessner, Holm Maetzler, Walter |
| author_role |
author |
| author2 |
Santos, Ana T. Domingos, Josefa M. M. Matthews, Helen Isaacs, Tom Duffen, Joy Al-Jawad, Ahmed Larsen, Frank Serrano, J. Artur Weber, Peter Thoms, Andrea Sollinger, Stefan Graessner, Holm Maetzler, Walter |
| author2_role |
author author author author author author author author author author author author author |
| dc.contributor.none.fl_str_mv |
Repositório da Universidade de Lisboa |
| dc.contributor.author.fl_str_mv |
Ferreira, Joaquim J Santos, Ana T. Domingos, Josefa M. M. Matthews, Helen Isaacs, Tom Duffen, Joy Al-Jawad, Ahmed Larsen, Frank Serrano, J. Artur Weber, Peter Thoms, Andrea Sollinger, Stefan Graessner, Holm Maetzler, Walter |
| dc.subject.por.fl_str_mv |
Outcomes assessment Parkinson’s disease Delphi technique Patient-centered outcomes research |
| topic |
Outcomes assessment Parkinson’s disease Delphi technique Patient-centered outcomes research |
| description |
© 2015 – IOS Press and the authors. All rights reserved. This article is published online with Open Access and distributed under the terms of the Creative Commons Attribution Non-Commercial License. |
| publishDate |
2015 |
| dc.date.none.fl_str_mv |
2015 2015-01-01T00:00:00Z 2022-03-17T17:31:30Z |
| dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
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info:eu-repo/semantics/article |
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article |
| status_str |
publishedVersion |
| dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10451/51814 |
| url |
http://hdl.handle.net/10451/51814 |
| dc.language.iso.fl_str_mv |
eng |
| language |
eng |
| dc.relation.none.fl_str_mv |
Journal of Parkinson’s Disease 5 (2015) 281–290 1877-7171 10.3233/JPD-140493 1877-718X |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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IOS Press |
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IOS Press |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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