Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10451/49063 |
Resumo: | © 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
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Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nursesParkinson nurseParkinson’s diseaseIntegrated careMultidisciplinary careNursing trainingPersonalized care© 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).Delivering healthcare to people living with Parkinson's disease (PD) may be challenging in face of differentiated care needs during a PD journey and a growing complexity. In this regard, integrative care models may foster flexible solutions on patients' care needs whereas Parkinson Nurses (PN) may be pivotal facilitators. However, at present hardly any training opportunities tailored to the care priorities of PD-patients are to be found for nurses. Following a conceptual approach, this article aims at setting a framework for training PN by reviewing existing literature on care priorities for PD. As a result, six prerequisites were formulated concerning a framework for training PN. The proposed training framework consist of three modules covering topics of PD: (i) comprehensive care, (ii) self-management support and (iii) health coaching. A fourth module on telemedicine may be added if applicable. The framework streamlines important theoretical concepts of professional PD management and may enable the development of novel, personalized care approaches.This research was funded by the Canadian Institutes of Health Research/EU Joint Programme - Neurodegenerative Disease Research, grant number 01789-000/HESOCARE-329-073.MDPIRepositório da Universidade de Lisboavan Munster, MarlenaStümpel, JohanneThieken, FranziskaPedrosa, DavidAntonini, AngeloCôté, DianeFabbri, MargheritaFerreira, Joaquim JRůžička, EvženGrimes, DavidMestre, Tiago2021-07-22T15:31:54Z2021-06-302021-06-30T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/49063engJ Pers Med. 2021 Jun 30;11(7):623.10.3390/jpm110706232075-4426info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:52:22Zoai:repositorio.ul.pt:10451/49063Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:00:37.383453Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses |
title |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses |
spellingShingle |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses van Munster, Marlena Parkinson nurse Parkinson’s disease Integrated care Multidisciplinary care Nursing training Personalized care |
title_short |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses |
title_full |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses |
title_fullStr |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses |
title_full_unstemmed |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses |
title_sort |
Moving towards integrated and personalized care in Parkinson's disease: a framework proposal for training Parkinson nurses |
author |
van Munster, Marlena |
author_facet |
van Munster, Marlena Stümpel, Johanne Thieken, Franziska Pedrosa, David Antonini, Angelo Côté, Diane Fabbri, Margherita Ferreira, Joaquim J Růžička, Evžen Grimes, David Mestre, Tiago |
author_role |
author |
author2 |
Stümpel, Johanne Thieken, Franziska Pedrosa, David Antonini, Angelo Côté, Diane Fabbri, Margherita Ferreira, Joaquim J Růžička, Evžen Grimes, David Mestre, Tiago |
author2_role |
author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Repositório da Universidade de Lisboa |
dc.contributor.author.fl_str_mv |
van Munster, Marlena Stümpel, Johanne Thieken, Franziska Pedrosa, David Antonini, Angelo Côté, Diane Fabbri, Margherita Ferreira, Joaquim J Růžička, Evžen Grimes, David Mestre, Tiago |
dc.subject.por.fl_str_mv |
Parkinson nurse Parkinson’s disease Integrated care Multidisciplinary care Nursing training Personalized care |
topic |
Parkinson nurse Parkinson’s disease Integrated care Multidisciplinary care Nursing training Personalized care |
description |
© 2021 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-07-22T15:31:54Z 2021-06-30 2021-06-30T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10451/49063 |
url |
http://hdl.handle.net/10451/49063 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
J Pers Med. 2021 Jun 30;11(7):623. 10.3390/jpm11070623 2075-4426 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
MDPI |
publisher.none.fl_str_mv |
MDPI |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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