Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
Autor(a) principal: | |
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Data de Publicação: | 2019 |
Outros Autores: | , , , , |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10451/38099 |
Resumo: | The objective of this study was to analyze the quality of life of Portuguese adolescents and to verity the impact of having a chronic health condition, namely with impact on the participation on school, family and social life (peers and leisure). A total of 8215 Portuguese adolescents (53.9% girls) attending the 8th, 10th and 12th grades in Portugal were included in the Health Behavior in School aged Children (HBSC) study. Adolescents were asked about their quality of life and aspects related to the existence of physical and psychological symptoms, as well as if the chronic health condition has impact on the participation on school, family and social life (peers and leisure). Adolescents with chronic health conditions present significantly more physical and psychological symptoms and less perceived quality of life. Controlling gender and age, the existence of physical or psychological symptoms has a negative impact on the perception of quality of life. This relationship is stronger when adolescents report having a chronic health condition with an impact on participation and attendance at school, in the family or at leisure. The difficulty of participation in the family is the one that adds more explanatory value. These results suggest that, in relation to adolescents with chronic health conditions, intervention efforts should focus on ensuring their social and affective participation in the family, school and at leisure with the peer group. |
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Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?Quality of lifePhysical and psychological symptomsChronic health conditionsParticipationThe objective of this study was to analyze the quality of life of Portuguese adolescents and to verity the impact of having a chronic health condition, namely with impact on the participation on school, family and social life (peers and leisure). A total of 8215 Portuguese adolescents (53.9% girls) attending the 8th, 10th and 12th grades in Portugal were included in the Health Behavior in School aged Children (HBSC) study. Adolescents were asked about their quality of life and aspects related to the existence of physical and psychological symptoms, as well as if the chronic health condition has impact on the participation on school, family and social life (peers and leisure). Adolescents with chronic health conditions present significantly more physical and psychological symptoms and less perceived quality of life. Controlling gender and age, the existence of physical or psychological symptoms has a negative impact on the perception of quality of life. This relationship is stronger when adolescents report having a chronic health condition with an impact on participation and attendance at school, in the family or at leisure. The difficulty of participation in the family is the one that adds more explanatory value. These results suggest that, in relation to adolescents with chronic health conditions, intervention efforts should focus on ensuring their social and affective participation in the family, school and at leisure with the peer group.O objetivo do estudo foi analisar a qualidade de vida dos adolescentes portugueses e verificar o impacto de se ser portador de uma doença crónica, nomeadamente de uma doença crónica com impacto na participação na vida escolar, familiar e escolar. Participaram no estudo 8215 adolescentes portugueses (53,9% meninas), que frequentavam o 8º, 10º e 12º anos de escolaridade em Portugal continental, no âmbito do estudo do Health Behaviour in School aged Children (HBSC). Perguntou-se aos adolescentes sobre a sua qualidade de vida e aspetos relacionados com a existência de sintomas físicos e psicológicos bem como a existência doença crónica com impacto na participação na vida escolar, familiar e escolar. Os adolescentes com doença crónica apresentam significativamente mais sintomas físicos e psicológicos e menor perceção de qualidade de vida. Controlando o género e a idade, a existência de sintomas físicos ou psicológicos tem um impacto negativo na percepção de qualidade de vida, esta relação fica mais forte quando os adolescentes referem ser portadores de uma doença crónica com impacto na participação e na assiduidade na escola, na familia ou no lazer. A dificuldade de participação na família é a que maior valor explicativo adiciona. Estes resultados sugerem que em relação aos adolescentes portadores de doença crónica os esforços interventivos devem dirigir-se sobretudo em garantir a sua participação social e afetiva na familia, na escola e no grupo de pares.Gina Tomé é apoiada pela Bolsa FCT (SFRH/BPD/108637/2015). Susana Gaspar é apoiada pela Bolsa da ULisboa (BD2016/609).Universidade Lusíada EditoraRepositório da Universidade de LisboaGaspar, TaniaTomé, GinaGaspar, SusanaGuedes, Fábio BotelhoCerqueira, AnaMatos, Margarida Gaspar de2019-05-10T11:00:01Z20192019-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/38099porRPCA • 10:1 (2019) | JCAP • 10:1 (2019)1647-4120info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:35:41Zoai:repositorio.ul.pt:10451/38099Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:52:02.261238Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? |
title |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? |
spellingShingle |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? Gaspar, Tania Quality of life Physical and psychological symptoms Chronic health conditions Participation |
title_short |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? |
title_full |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? |
title_fullStr |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? |
title_full_unstemmed |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? |
title_sort |
Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos? |
author |
Gaspar, Tania |
author_facet |
Gaspar, Tania Tomé, Gina Gaspar, Susana Guedes, Fábio Botelho Cerqueira, Ana Matos, Margarida Gaspar de |
author_role |
author |
author2 |
Tomé, Gina Gaspar, Susana Guedes, Fábio Botelho Cerqueira, Ana Matos, Margarida Gaspar de |
author2_role |
author author author author author |
dc.contributor.none.fl_str_mv |
Repositório da Universidade de Lisboa |
dc.contributor.author.fl_str_mv |
Gaspar, Tania Tomé, Gina Gaspar, Susana Guedes, Fábio Botelho Cerqueira, Ana Matos, Margarida Gaspar de |
dc.subject.por.fl_str_mv |
Quality of life Physical and psychological symptoms Chronic health conditions Participation |
topic |
Quality of life Physical and psychological symptoms Chronic health conditions Participation |
description |
The objective of this study was to analyze the quality of life of Portuguese adolescents and to verity the impact of having a chronic health condition, namely with impact on the participation on school, family and social life (peers and leisure). A total of 8215 Portuguese adolescents (53.9% girls) attending the 8th, 10th and 12th grades in Portugal were included in the Health Behavior in School aged Children (HBSC) study. Adolescents were asked about their quality of life and aspects related to the existence of physical and psychological symptoms, as well as if the chronic health condition has impact on the participation on school, family and social life (peers and leisure). Adolescents with chronic health conditions present significantly more physical and psychological symptoms and less perceived quality of life. Controlling gender and age, the existence of physical or psychological symptoms has a negative impact on the perception of quality of life. This relationship is stronger when adolescents report having a chronic health condition with an impact on participation and attendance at school, in the family or at leisure. The difficulty of participation in the family is the one that adds more explanatory value. These results suggest that, in relation to adolescents with chronic health conditions, intervention efforts should focus on ensuring their social and affective participation in the family, school and at leisure with the peer group. |
publishDate |
2019 |
dc.date.none.fl_str_mv |
2019-05-10T11:00:01Z 2019 2019-01-01T00:00:00Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10451/38099 |
url |
http://hdl.handle.net/10451/38099 |
dc.language.iso.fl_str_mv |
por |
language |
por |
dc.relation.none.fl_str_mv |
RPCA • 10:1 (2019) | JCAP • 10:1 (2019) 1647-4120 |
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info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
application/pdf |
dc.publisher.none.fl_str_mv |
Universidade Lusíada Editora |
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Universidade Lusíada Editora |
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reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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