Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?

Detalhes bibliográficos
Autor(a) principal: Gaspar, Tania
Data de Publicação: 2019
Outros Autores: Tomé, Gina, Gaspar, Susana, Guedes, Fábio Botelho, Cerqueira, Ana, Matos, Margarida Gaspar de
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/38099
Resumo: The objective of this study was to analyze the quality of life of Portuguese adolescents and to verity the impact of having a chronic health condition, namely with impact on the participation on school, family and social life (peers and leisure). A total of 8215 Portuguese adolescents (53.9% girls) attending the 8th, 10th and 12th grades in Portugal were included in the Health Behavior in School aged Children (HBSC) study. Adolescents were asked about their quality of life and aspects related to the existence of physical and psychological symptoms, as well as if the chronic health condition has impact on the participation on school, family and social life (peers and leisure). Adolescents with chronic health conditions present significantly more physical and psychological symptoms and less perceived quality of life. Controlling gender and age, the existence of physical or psychological symptoms has a negative impact on the perception of quality of life. This relationship is stronger when adolescents report having a chronic health condition with an impact on participation and attendance at school, in the family or at leisure. The difficulty of participation in the family is the one that adds more explanatory value. These results suggest that, in relation to adolescents with chronic health conditions, intervention efforts should focus on ensuring their social and affective participation in the family, school and at leisure with the peer group.
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spelling Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?Quality of lifePhysical and psychological symptomsChronic health conditionsParticipationThe objective of this study was to analyze the quality of life of Portuguese adolescents and to verity the impact of having a chronic health condition, namely with impact on the participation on school, family and social life (peers and leisure). A total of 8215 Portuguese adolescents (53.9% girls) attending the 8th, 10th and 12th grades in Portugal were included in the Health Behavior in School aged Children (HBSC) study. Adolescents were asked about their quality of life and aspects related to the existence of physical and psychological symptoms, as well as if the chronic health condition has impact on the participation on school, family and social life (peers and leisure). Adolescents with chronic health conditions present significantly more physical and psychological symptoms and less perceived quality of life. Controlling gender and age, the existence of physical or psychological symptoms has a negative impact on the perception of quality of life. This relationship is stronger when adolescents report having a chronic health condition with an impact on participation and attendance at school, in the family or at leisure. The difficulty of participation in the family is the one that adds more explanatory value. These results suggest that, in relation to adolescents with chronic health conditions, intervention efforts should focus on ensuring their social and affective participation in the family, school and at leisure with the peer group.O objetivo do estudo foi analisar a qualidade de vida dos adolescentes portugueses e verificar o impacto de se ser portador de uma doença crónica, nomeadamente de uma doença crónica com impacto na participação na vida escolar, familiar e escolar. Participaram no estudo 8215 adolescentes portugueses (53,9% meninas), que frequentavam o 8º, 10º e 12º anos de escolaridade em Portugal continental, no âmbito do estudo do Health Behaviour in School aged Children (HBSC). Perguntou-se aos adolescentes sobre a sua qualidade de vida e aspetos relacionados com a existência de sintomas físicos e psicológicos bem como a existência doença crónica com impacto na participação na vida escolar, familiar e escolar. Os adolescentes com doença crónica apresentam significativamente mais sintomas físicos e psicológicos e menor perceção de qualidade de vida. Controlando o género e a idade, a existência de sintomas físicos ou psicológicos tem um impacto negativo na percepção de qualidade de vida, esta relação fica mais forte quando os adolescentes referem ser portadores de uma doença crónica com impacto na participação e na assiduidade na escola, na familia ou no lazer. A dificuldade de participação na família é a que maior valor explicativo adiciona. Estes resultados sugerem que em relação aos adolescentes portadores de doença crónica os esforços interventivos devem dirigir-se sobretudo em garantir a sua participação social e afetiva na familia, na escola e no grupo de pares.Gina Tomé é apoiada pela Bolsa FCT (SFRH/BPD/108637/2015). Susana Gaspar é apoiada pela Bolsa da ULisboa (BD2016/609).Universidade Lusíada EditoraRepositório da Universidade de LisboaGaspar, TaniaTomé, GinaGaspar, SusanaGuedes, Fábio BotelhoCerqueira, AnaMatos, Margarida Gaspar de2019-05-10T11:00:01Z20192019-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/38099porRPCA • 10:1 (2019) | JCAP • 10:1 (2019)1647-4120info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T16:35:41Zoai:repositorio.ul.pt:10451/38099Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:52:02.261238Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
title Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
spellingShingle Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
Gaspar, Tania
Quality of life
Physical and psychological symptoms
Chronic health conditions
Participation
title_short Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
title_full Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
title_fullStr Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
title_full_unstemmed Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
title_sort Como passam os adolescentes que vivem com doença crónica na escola, na família e com os amigos?
author Gaspar, Tania
author_facet Gaspar, Tania
Tomé, Gina
Gaspar, Susana
Guedes, Fábio Botelho
Cerqueira, Ana
Matos, Margarida Gaspar de
author_role author
author2 Tomé, Gina
Gaspar, Susana
Guedes, Fábio Botelho
Cerqueira, Ana
Matos, Margarida Gaspar de
author2_role author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Gaspar, Tania
Tomé, Gina
Gaspar, Susana
Guedes, Fábio Botelho
Cerqueira, Ana
Matos, Margarida Gaspar de
dc.subject.por.fl_str_mv Quality of life
Physical and psychological symptoms
Chronic health conditions
Participation
topic Quality of life
Physical and psychological symptoms
Chronic health conditions
Participation
description The objective of this study was to analyze the quality of life of Portuguese adolescents and to verity the impact of having a chronic health condition, namely with impact on the participation on school, family and social life (peers and leisure). A total of 8215 Portuguese adolescents (53.9% girls) attending the 8th, 10th and 12th grades in Portugal were included in the Health Behavior in School aged Children (HBSC) study. Adolescents were asked about their quality of life and aspects related to the existence of physical and psychological symptoms, as well as if the chronic health condition has impact on the participation on school, family and social life (peers and leisure). Adolescents with chronic health conditions present significantly more physical and psychological symptoms and less perceived quality of life. Controlling gender and age, the existence of physical or psychological symptoms has a negative impact on the perception of quality of life. This relationship is stronger when adolescents report having a chronic health condition with an impact on participation and attendance at school, in the family or at leisure. The difficulty of participation in the family is the one that adds more explanatory value. These results suggest that, in relation to adolescents with chronic health conditions, intervention efforts should focus on ensuring their social and affective participation in the family, school and at leisure with the peer group.
publishDate 2019
dc.date.none.fl_str_mv 2019-05-10T11:00:01Z
2019
2019-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
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dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/38099
url http://hdl.handle.net/10451/38099
dc.language.iso.fl_str_mv por
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dc.relation.none.fl_str_mv RPCA • 10:1 (2019) | JCAP • 10:1 (2019)
1647-4120
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dc.publisher.none.fl_str_mv Universidade Lusíada Editora
publisher.none.fl_str_mv Universidade Lusíada Editora
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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