Access to community care for people with dementia and their informal carers
Autor(a) principal: | |
---|---|
Data de Publicação: | 2018 |
Outros Autores: | , , , , , , , , , , , , , , , , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10362/149755 |
Resumo: | Background: People with dementia and their informal carers often do not receive appropriate professional support or it is not received at the right time. Objectives: Description and comparison of common pathways to formal community dementia care in eight European countries as a part of the transnational Actifcare project. Materials and methods: The German team was responsible for creating an individual case scenario as a starting point. The research teams in Ireland, Italy, the Netherlands, Norway, Portugal, Sweden, and the United Kingdom were then asked to describe a common pathway to formal dementia care by writing their own vignette using the provided individual case scenario. Results: A transnational qualitative content analysis was used to identify the following categories as being the most important: involved professionals, dementia-specific and team-based approaches, proactive roles, and financial aspects. General practitioners (GPs) are described as being the most important profession supporting the access to formal care in all the involved countries. In some countries other professionals take over responsibility for the access procedure. Dementia-specific approaches are rarely part of standard care; team-based approaches have differing significances in each of the countries. Informal carers are mainly proactive in seeking formal care. The Nordic countries demonstrate how financial support enhances access to the professional system. Conclusion: Enhanced cooperation between GPs and other professions might optimize access to formal dementia care. Team-based approaches focusing on dementia care should be developed further. Informal carers should be supported and relieved in their role. Financial barriers remain which should be further investigated and reduced. |
id |
RCAP_995f196e4307e91ae93859b2ee75037f |
---|---|
oai_identifier_str |
oai:run.unl.pt:10362/149755 |
network_acronym_str |
RCAP |
network_name_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository_id_str |
7160 |
spelling |
Access to community care for people with dementia and their informal carersCase vignettes for a European comparison of structures and common pathways to formal careCareComparative studyDementiaEuropeHealth services accessibilityHealth(social science)Issues, ethics and legal aspectsGerontologyGeriatrics and GerontologyBackground: People with dementia and their informal carers often do not receive appropriate professional support or it is not received at the right time. Objectives: Description and comparison of common pathways to formal community dementia care in eight European countries as a part of the transnational Actifcare project. Materials and methods: The German team was responsible for creating an individual case scenario as a starting point. The research teams in Ireland, Italy, the Netherlands, Norway, Portugal, Sweden, and the United Kingdom were then asked to describe a common pathway to formal dementia care by writing their own vignette using the provided individual case scenario. Results: A transnational qualitative content analysis was used to identify the following categories as being the most important: involved professionals, dementia-specific and team-based approaches, proactive roles, and financial aspects. General practitioners (GPs) are described as being the most important profession supporting the access to formal care in all the involved countries. In some countries other professionals take over responsibility for the access procedure. Dementia-specific approaches are rarely part of standard care; team-based approaches have differing significances in each of the countries. Informal carers are mainly proactive in seeking formal care. The Nordic countries demonstrate how financial support enhances access to the professional system. Conclusion: Enhanced cooperation between GPs and other professions might optimize access to formal dementia care. Team-based approaches focusing on dementia care should be developed further. Informal carers should be supported and relieved in their role. Financial barriers remain which should be further investigated and reduced.Centro de Estudos de Doenças Crónicas (CEDOC)NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)RUNBieber, A.Stephan, A.Verbeek, H.Verhey, F.Kerpershoek, L.Wolfs, C.de Vugt, M.Woods, R. T.Røsvik, J.Selbaek, G.Sjölund, B. M.Wimo, A.Hopper, L.Irving, K.Marques, M. J.Gonçalves-Pereira, M.Portolani, E.Zanetti, O.Meyer, G.2023-02-27T22:15:47Z2018-072018-07-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/article7application/pdfhttp://hdl.handle.net/10362/149755eng0948-6704PURE: 3145445https://doi.org/10.1007/s00391-017-1266-7info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T05:31:36Zoai:run.unl.pt:10362/149755Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:53:50.766752Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Access to community care for people with dementia and their informal carers Case vignettes for a European comparison of structures and common pathways to formal care |
title |
Access to community care for people with dementia and their informal carers |
spellingShingle |
Access to community care for people with dementia and their informal carers Bieber, A. Care Comparative study Dementia Europe Health services accessibility Health(social science) Issues, ethics and legal aspects Gerontology Geriatrics and Gerontology |
title_short |
Access to community care for people with dementia and their informal carers |
title_full |
Access to community care for people with dementia and their informal carers |
title_fullStr |
Access to community care for people with dementia and their informal carers |
title_full_unstemmed |
Access to community care for people with dementia and their informal carers |
title_sort |
Access to community care for people with dementia and their informal carers |
author |
Bieber, A. |
author_facet |
Bieber, A. Stephan, A. Verbeek, H. Verhey, F. Kerpershoek, L. Wolfs, C. de Vugt, M. Woods, R. T. Røsvik, J. Selbaek, G. Sjölund, B. M. Wimo, A. Hopper, L. Irving, K. Marques, M. J. Gonçalves-Pereira, M. Portolani, E. Zanetti, O. Meyer, G. |
author_role |
author |
author2 |
Stephan, A. Verbeek, H. Verhey, F. Kerpershoek, L. Wolfs, C. de Vugt, M. Woods, R. T. Røsvik, J. Selbaek, G. Sjölund, B. M. Wimo, A. Hopper, L. Irving, K. Marques, M. J. Gonçalves-Pereira, M. Portolani, E. Zanetti, O. Meyer, G. |
author2_role |
author author author author author author author author author author author author author author author author author author |
dc.contributor.none.fl_str_mv |
Centro de Estudos de Doenças Crónicas (CEDOC) NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM) RUN |
dc.contributor.author.fl_str_mv |
Bieber, A. Stephan, A. Verbeek, H. Verhey, F. Kerpershoek, L. Wolfs, C. de Vugt, M. Woods, R. T. Røsvik, J. Selbaek, G. Sjölund, B. M. Wimo, A. Hopper, L. Irving, K. Marques, M. J. Gonçalves-Pereira, M. Portolani, E. Zanetti, O. Meyer, G. |
dc.subject.por.fl_str_mv |
Care Comparative study Dementia Europe Health services accessibility Health(social science) Issues, ethics and legal aspects Gerontology Geriatrics and Gerontology |
topic |
Care Comparative study Dementia Europe Health services accessibility Health(social science) Issues, ethics and legal aspects Gerontology Geriatrics and Gerontology |
description |
Background: People with dementia and their informal carers often do not receive appropriate professional support or it is not received at the right time. Objectives: Description and comparison of common pathways to formal community dementia care in eight European countries as a part of the transnational Actifcare project. Materials and methods: The German team was responsible for creating an individual case scenario as a starting point. The research teams in Ireland, Italy, the Netherlands, Norway, Portugal, Sweden, and the United Kingdom were then asked to describe a common pathway to formal dementia care by writing their own vignette using the provided individual case scenario. Results: A transnational qualitative content analysis was used to identify the following categories as being the most important: involved professionals, dementia-specific and team-based approaches, proactive roles, and financial aspects. General practitioners (GPs) are described as being the most important profession supporting the access to formal care in all the involved countries. In some countries other professionals take over responsibility for the access procedure. Dementia-specific approaches are rarely part of standard care; team-based approaches have differing significances in each of the countries. Informal carers are mainly proactive in seeking formal care. The Nordic countries demonstrate how financial support enhances access to the professional system. Conclusion: Enhanced cooperation between GPs and other professions might optimize access to formal dementia care. Team-based approaches focusing on dementia care should be developed further. Informal carers should be supported and relieved in their role. Financial barriers remain which should be further investigated and reduced. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018-07 2018-07-01T00:00:00Z 2023-02-27T22:15:47Z |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10362/149755 |
url |
http://hdl.handle.net/10362/149755 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
0948-6704 PURE: 3145445 https://doi.org/10.1007/s00391-017-1266-7 |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.format.none.fl_str_mv |
7 application/pdf |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
repository.mail.fl_str_mv |
|
_version_ |
1799138128142794752 |