Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study

Detalhes bibliográficos
Autor(a) principal: Coelho, Anabela
Data de Publicação: 2023
Outros Autores: Kendir, Candan, Barrenho, Eliana, Klazinga, Niek, Paiva, Cláudia, Abreu de Sousa, Joaquim, Gonçalves-Monteiro, Salomé, Redondo, Patrícia, Bastos, Ana, Nogueira, Armanda, Guedes, Fábio Botelho, Costa, Andreia, Gaspar, Tania
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10451/56860
Resumo: © 2023 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
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spelling Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case studyBreast cancerHealth systemPatient outcomesPatient reported experience measures (PREM)Patient-reported outcome measures (PROM)Public health© 2023 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).In 2020, female breast cancer was the most commonly diagnosed cancer worldwide, representing the type of cancer with the highest incidence among women and the second most common cause of cancer death among women in all OECD countries. The conventional measures addressing the burden of breast cancer by measuring mortality, incidence, and survival do not entirely reflect the quality of life and patients experience when receiving breast cancer care. The main objective of this study is to capture patient-reported outcomes and experiences in women with breast cancer in Portugal using methods developed for international benchmarking purposes, such as the OECD Patient-reported Indicators Surveys. The study included 378 women with breast cancer, with the age distribution being 19.8% aged 15 to 49 years and 80.2% aged 50 years and over. The data collection procedure and analysis followed the "OECD Breast Cancer Patient Reported Outcomes Working Group" protocol, allowing subsequent comparability with data from other OECD member countries. Most women were satisfied with the treatment outcome regarding the shape of their lumpectomy breast when wearing a bra (96.1%) and with the equal size of both breasts (78.3%). Findings on the WHO QOL-BREF showed that women manifest a lower score in well-being when compared with the general population or populations living with chronic diseases. This study shows the feasibility of implementing and using patient-reported metrics (PROM and PREM) in breast cancer services in Portugal. Measuring PROMs and PREMs from Portuguese women receiving breast cancer care provides insightful evidence into the quality and value of cancer care.MDPIRepositório da Universidade de LisboaCoelho, AnabelaKendir, CandanBarrenho, ElianaKlazinga, NiekPaiva, CláudiaAbreu de Sousa, JoaquimGonçalves-Monteiro, SaloméRedondo, PatríciaBastos, AnaNogueira, ArmandaGuedes, Fábio BotelhoCosta, AndreiaGaspar, Tania2023-03-28T13:10:10Z20232023-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10451/56860engInt J Environ Res Public Health. 2023 Feb 8;20(4):29311661-782710.3390/ijerph200429311660-4601info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-11-08T17:04:47Zoai:repositorio.ul.pt:10451/56860Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T22:07:21.889388Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
title Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
spellingShingle Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
Coelho, Anabela
Breast cancer
Health system
Patient outcomes
Patient reported experience measures (PREM)
Patient-reported outcome measures (PROM)
Public health
title_short Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
title_full Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
title_fullStr Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
title_full_unstemmed Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
title_sort Patient-reported outcomes and experiences assessment in women with breast cancer: portuguese case study
author Coelho, Anabela
author_facet Coelho, Anabela
Kendir, Candan
Barrenho, Eliana
Klazinga, Niek
Paiva, Cláudia
Abreu de Sousa, Joaquim
Gonçalves-Monteiro, Salomé
Redondo, Patrícia
Bastos, Ana
Nogueira, Armanda
Guedes, Fábio Botelho
Costa, Andreia
Gaspar, Tania
author_role author
author2 Kendir, Candan
Barrenho, Eliana
Klazinga, Niek
Paiva, Cláudia
Abreu de Sousa, Joaquim
Gonçalves-Monteiro, Salomé
Redondo, Patrícia
Bastos, Ana
Nogueira, Armanda
Guedes, Fábio Botelho
Costa, Andreia
Gaspar, Tania
author2_role author
author
author
author
author
author
author
author
author
author
author
author
dc.contributor.none.fl_str_mv Repositório da Universidade de Lisboa
dc.contributor.author.fl_str_mv Coelho, Anabela
Kendir, Candan
Barrenho, Eliana
Klazinga, Niek
Paiva, Cláudia
Abreu de Sousa, Joaquim
Gonçalves-Monteiro, Salomé
Redondo, Patrícia
Bastos, Ana
Nogueira, Armanda
Guedes, Fábio Botelho
Costa, Andreia
Gaspar, Tania
dc.subject.por.fl_str_mv Breast cancer
Health system
Patient outcomes
Patient reported experience measures (PREM)
Patient-reported outcome measures (PROM)
Public health
topic Breast cancer
Health system
Patient outcomes
Patient reported experience measures (PREM)
Patient-reported outcome measures (PROM)
Public health
description © 2023 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
publishDate 2023
dc.date.none.fl_str_mv 2023-03-28T13:10:10Z
2023
2023-01-01T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10451/56860
url http://hdl.handle.net/10451/56860
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv Int J Environ Res Public Health. 2023 Feb 8;20(4):2931
1661-7827
10.3390/ijerph20042931
1660-4601
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv MDPI
publisher.none.fl_str_mv MDPI
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
repository.mail.fl_str_mv
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