Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases

Detalhes bibliográficos
Autor(a) principal: Jacinto, Maria João
Data de Publicação: 2021
Outros Autores: Oliveira, Pedro, Canhão, Helena
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10362/116011
Resumo: Funding: The authors are grateful for the funding provided by the Fundação para a Ciência e Tecnologia (FCT) through the project Revolutionizing Healthcare: Empowering patients by valuing innovation and promoting entrepreneurship (PTDC/EGEOGE/32573/2017).
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spelling Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseasesdisabilityhealthpatient innovationrheumatic diseasesuser innovationMedicine(all)Funding: The authors are grateful for the funding provided by the Fundação para a Ciência e Tecnologia (FCT) through the project Revolutionizing Healthcare: Empowering patients by valuing innovation and promoting entrepreneurship (PTDC/EGEOGE/32573/2017).Until recently, innovation in healthcare was mainly achieved through the development of new drugs, therapies, and medical devices by big pharma and medtech companies; however, the innovative potential for this field is much broader. The patients and caregivers' role in healthcare is often associated with disease management, demand for their own illness data, and its exchange with other patients. However, the patients and caregivers' capacity to innovate to cope with limitations associated with their health condition is a growing phenomenon and starting to be supported by healthcare stakeholders to achieve a truly patient-centric system. Our previous research has shown that these uncommon innovators can develop a wide range of solutions, from simple adaptations and products to highly technological biomedical devices. In this paper, we present novel solutions developed by rheumatic patients, their caregivers, and collaborators, published on the “Patient Innovation” platform (https://patient-innovation.com/), with a focus on the innovator profile, the need that triggers the innovative process, the type of motivation behind the product, and the products developed. The most significant needs that motivate innovation are the will to increase the level of independence (71%) and to be able to perform daily routine activities (65%). In over 80% of cases, the fact that the market does not fully fulfill the needs felt during daily activities is the main motivation to innovate. It is thus concluded that there is room for innovation in rheumatic diseases with solutions developed by patients and informal caregivers that intend to solve needs that the healthcare market is not covering.NOVA School of Business and Economics (NOVA SBE)NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)Escola Nacional de Saúde Pública (ENSP)Centro de Estudos de Doenças Crónicas (CEDOC)RUNJacinto, Maria JoãoOliveira, PedroCanhão, Helena2021-04-22T22:47:05Z2021-03-162021-03-16T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10362/116011eng2296-858XPURE: 29165501https://doi.org/10.3389/fmed.2021.647388info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-03-11T04:58:34Zoai:run.unl.pt:10362/116011Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:42:54.722023Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
title Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
spellingShingle Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
Jacinto, Maria João
disability
health
patient innovation
rheumatic diseases
user innovation
Medicine(all)
title_short Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
title_full Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
title_fullStr Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
title_full_unstemmed Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
title_sort Innovations Developed by Patients and Informal Caregivers for Needs Associated to Rheumatic Diseases
author Jacinto, Maria João
author_facet Jacinto, Maria João
Oliveira, Pedro
Canhão, Helena
author_role author
author2 Oliveira, Pedro
Canhão, Helena
author2_role author
author
dc.contributor.none.fl_str_mv NOVA School of Business and Economics (NOVA SBE)
NOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
Escola Nacional de Saúde Pública (ENSP)
Centro de Estudos de Doenças Crónicas (CEDOC)
RUN
dc.contributor.author.fl_str_mv Jacinto, Maria João
Oliveira, Pedro
Canhão, Helena
dc.subject.por.fl_str_mv disability
health
patient innovation
rheumatic diseases
user innovation
Medicine(all)
topic disability
health
patient innovation
rheumatic diseases
user innovation
Medicine(all)
description Funding: The authors are grateful for the funding provided by the Fundação para a Ciência e Tecnologia (FCT) through the project Revolutionizing Healthcare: Empowering patients by valuing innovation and promoting entrepreneurship (PTDC/EGEOGE/32573/2017).
publishDate 2021
dc.date.none.fl_str_mv 2021-04-22T22:47:05Z
2021-03-16
2021-03-16T00:00:00Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10362/116011
url http://hdl.handle.net/10362/116011
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 2296-858X
PURE: 29165501
https://doi.org/10.3389/fmed.2021.647388
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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