The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
Autor(a) principal: | |
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Data de Publicação: | 2018 |
Outros Autores: | , , |
Tipo de documento: | Artigo |
Idioma: | eng |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | http://hdl.handle.net/10316/80486 https://doi.org/10.5334/ijic.3301 |
Resumo: | Background: Improvements in asthma integrated care might be achieved through in-depth knowledge about how health literacy is dispersed through a group. This study intends to map out health literacy mediators (those who makes his/her literacy skills available to others for them to accomplish specific literacy purposes) and how they enable self-management skills in patients with asthma. Methods: Twenty interviews were conducted in a Primary Care Center of Porto using the McGill Illness Narrative Interview. Data were thematically analyzed as case-based and process-tracing-oriented. Results: Interviewees with a dense network of mediators revealed a low impact of asthma on their lives, dependence on primary care physician for instrumental support and dependence on family members to provide emotional/pragmatic support. Interviewees who relied on a restricted network of mediators (belonging to formal sources of health services and providing informational support) described episodes of crisis as disruptive and demonstrated a reactive approach to self-management skills. Conclusions: The roles performed by core health mediators (health professionals, family/friends, media) in support of asthma management varied according to patients’ narratives of minimization/disruption, connected to dense/restricted social networks. To clarify the boundaries of responsibility-shifting and to enrich support provided by formal sources of health services and peer education groups is needed. |
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The role of distributed health literacy in asthma integrated care: A public medical context from PortugalHealth mediatorsHealth literacyPeople-centred careIntegrated careAsthmaBackground: Improvements in asthma integrated care might be achieved through in-depth knowledge about how health literacy is dispersed through a group. This study intends to map out health literacy mediators (those who makes his/her literacy skills available to others for them to accomplish specific literacy purposes) and how they enable self-management skills in patients with asthma. Methods: Twenty interviews were conducted in a Primary Care Center of Porto using the McGill Illness Narrative Interview. Data were thematically analyzed as case-based and process-tracing-oriented. Results: Interviewees with a dense network of mediators revealed a low impact of asthma on their lives, dependence on primary care physician for instrumental support and dependence on family members to provide emotional/pragmatic support. Interviewees who relied on a restricted network of mediators (belonging to formal sources of health services and providing informational support) described episodes of crisis as disruptive and demonstrated a reactive approach to self-management skills. Conclusions: The roles performed by core health mediators (health professionals, family/friends, media) in support of asthma management varied according to patients’ narratives of minimization/disruption, connected to dense/restricted social networks. To clarify the boundaries of responsibility-shifting and to enrich support provided by formal sources of health services and peer education groups is needed.Ubiquity Press2018info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://hdl.handle.net/10316/80486http://hdl.handle.net/10316/80486https://doi.org/10.5334/ijic.3301eng1568-4156https://www.ijic.org/articles/10.5334/ijic.3301/Abreu, LilianaNunes, João ArriscadoTaylor, PeterSilva, Susanainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2019-11-05T14:38:02Zoai:estudogeral.uc.pt:10316/80486Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:02:55.229849Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal |
title |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal |
spellingShingle |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal Abreu, Liliana Health mediators Health literacy People-centred care Integrated care Asthma |
title_short |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal |
title_full |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal |
title_fullStr |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal |
title_full_unstemmed |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal |
title_sort |
The role of distributed health literacy in asthma integrated care: A public medical context from Portugal |
author |
Abreu, Liliana |
author_facet |
Abreu, Liliana Nunes, João Arriscado Taylor, Peter Silva, Susana |
author_role |
author |
author2 |
Nunes, João Arriscado Taylor, Peter Silva, Susana |
author2_role |
author author author |
dc.contributor.author.fl_str_mv |
Abreu, Liliana Nunes, João Arriscado Taylor, Peter Silva, Susana |
dc.subject.por.fl_str_mv |
Health mediators Health literacy People-centred care Integrated care Asthma |
topic |
Health mediators Health literacy People-centred care Integrated care Asthma |
description |
Background: Improvements in asthma integrated care might be achieved through in-depth knowledge about how health literacy is dispersed through a group. This study intends to map out health literacy mediators (those who makes his/her literacy skills available to others for them to accomplish specific literacy purposes) and how they enable self-management skills in patients with asthma. Methods: Twenty interviews were conducted in a Primary Care Center of Porto using the McGill Illness Narrative Interview. Data were thematically analyzed as case-based and process-tracing-oriented. Results: Interviewees with a dense network of mediators revealed a low impact of asthma on their lives, dependence on primary care physician for instrumental support and dependence on family members to provide emotional/pragmatic support. Interviewees who relied on a restricted network of mediators (belonging to formal sources of health services and providing informational support) described episodes of crisis as disruptive and demonstrated a reactive approach to self-management skills. Conclusions: The roles performed by core health mediators (health professionals, family/friends, media) in support of asthma management varied according to patients’ narratives of minimization/disruption, connected to dense/restricted social networks. To clarify the boundaries of responsibility-shifting and to enrich support provided by formal sources of health services and peer education groups is needed. |
publishDate |
2018 |
dc.date.none.fl_str_mv |
2018 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
http://hdl.handle.net/10316/80486 http://hdl.handle.net/10316/80486 https://doi.org/10.5334/ijic.3301 |
url |
http://hdl.handle.net/10316/80486 https://doi.org/10.5334/ijic.3301 |
dc.language.iso.fl_str_mv |
eng |
language |
eng |
dc.relation.none.fl_str_mv |
1568-4156 https://www.ijic.org/articles/10.5334/ijic.3301/ |
dc.rights.driver.fl_str_mv |
info:eu-repo/semantics/openAccess |
eu_rights_str_mv |
openAccess |
dc.publisher.none.fl_str_mv |
Ubiquity Press |
publisher.none.fl_str_mv |
Ubiquity Press |
dc.source.none.fl_str_mv |
reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
instname_str |
Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
instacron_str |
RCAAP |
institution |
RCAAP |
reponame_str |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
collection |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
repository.name.fl_str_mv |
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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1799133921950040064 |