The role of distributed health literacy in asthma integrated care: A public medical context from Portugal

Detalhes bibliográficos
Autor(a) principal: Abreu, Liliana
Data de Publicação: 2018
Outros Autores: Nunes, João Arriscado, Taylor, Peter, Silva, Susana
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10316/80486
https://doi.org/10.5334/ijic.3301
Resumo: Background: Improvements in asthma integrated care might be achieved through in-depth knowledge about how health literacy is dispersed through a group. This study intends to map out health literacy mediators (those who makes his/her literacy skills available to others for them to accomplish specific literacy purposes) and how they enable self-management skills in patients with asthma. Methods: Twenty interviews were conducted in a Primary Care Center of Porto using the McGill Illness Narrative Interview. Data were thematically analyzed as case-based and process-tracing-oriented. Results: Interviewees with a dense network of mediators revealed a low impact of asthma on their lives, dependence on primary care physician for instrumental support and dependence on family members to provide emotional/pragmatic support. Interviewees who relied on a restricted network of mediators (belonging to formal sources of health services and providing informational support) described episodes of crisis as disruptive and demonstrated a reactive approach to self-management skills. Conclusions: The roles performed by core health mediators (health professionals, family/friends, media) in support of asthma management varied according to patients’ narratives of minimization/disruption, connected to dense/restricted social networks. To clarify the boundaries of responsibility-shifting and to enrich support provided by formal sources of health services and peer education groups is needed.
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spelling The role of distributed health literacy in asthma integrated care: A public medical context from PortugalHealth mediatorsHealth literacyPeople-centred careIntegrated careAsthmaBackground: Improvements in asthma integrated care might be achieved through in-depth knowledge about how health literacy is dispersed through a group. This study intends to map out health literacy mediators (those who makes his/her literacy skills available to others for them to accomplish specific literacy purposes) and how they enable self-management skills in patients with asthma. Methods: Twenty interviews were conducted in a Primary Care Center of Porto using the McGill Illness Narrative Interview. Data were thematically analyzed as case-based and process-tracing-oriented. Results: Interviewees with a dense network of mediators revealed a low impact of asthma on their lives, dependence on primary care physician for instrumental support and dependence on family members to provide emotional/pragmatic support. Interviewees who relied on a restricted network of mediators (belonging to formal sources of health services and providing informational support) described episodes of crisis as disruptive and demonstrated a reactive approach to self-management skills. Conclusions: The roles performed by core health mediators (health professionals, family/friends, media) in support of asthma management varied according to patients’ narratives of minimization/disruption, connected to dense/restricted social networks. To clarify the boundaries of responsibility-shifting and to enrich support provided by formal sources of health services and peer education groups is needed.Ubiquity Press2018info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articlehttp://hdl.handle.net/10316/80486http://hdl.handle.net/10316/80486https://doi.org/10.5334/ijic.3301eng1568-4156https://www.ijic.org/articles/10.5334/ijic.3301/Abreu, LilianaNunes, João ArriscadoTaylor, PeterSilva, Susanainfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2019-11-05T14:38:02Zoai:estudogeral.uc.pt:10316/80486Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T21:02:55.229849Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
title The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
spellingShingle The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
Abreu, Liliana
Health mediators
Health literacy
People-centred care
Integrated care
Asthma
title_short The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
title_full The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
title_fullStr The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
title_full_unstemmed The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
title_sort The role of distributed health literacy in asthma integrated care: A public medical context from Portugal
author Abreu, Liliana
author_facet Abreu, Liliana
Nunes, João Arriscado
Taylor, Peter
Silva, Susana
author_role author
author2 Nunes, João Arriscado
Taylor, Peter
Silva, Susana
author2_role author
author
author
dc.contributor.author.fl_str_mv Abreu, Liliana
Nunes, João Arriscado
Taylor, Peter
Silva, Susana
dc.subject.por.fl_str_mv Health mediators
Health literacy
People-centred care
Integrated care
Asthma
topic Health mediators
Health literacy
People-centred care
Integrated care
Asthma
description Background: Improvements in asthma integrated care might be achieved through in-depth knowledge about how health literacy is dispersed through a group. This study intends to map out health literacy mediators (those who makes his/her literacy skills available to others for them to accomplish specific literacy purposes) and how they enable self-management skills in patients with asthma. Methods: Twenty interviews were conducted in a Primary Care Center of Porto using the McGill Illness Narrative Interview. Data were thematically analyzed as case-based and process-tracing-oriented. Results: Interviewees with a dense network of mediators revealed a low impact of asthma on their lives, dependence on primary care physician for instrumental support and dependence on family members to provide emotional/pragmatic support. Interviewees who relied on a restricted network of mediators (belonging to formal sources of health services and providing informational support) described episodes of crisis as disruptive and demonstrated a reactive approach to self-management skills. Conclusions: The roles performed by core health mediators (health professionals, family/friends, media) in support of asthma management varied according to patients’ narratives of minimization/disruption, connected to dense/restricted social networks. To clarify the boundaries of responsibility-shifting and to enrich support provided by formal sources of health services and peer education groups is needed.
publishDate 2018
dc.date.none.fl_str_mv 2018
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10316/80486
http://hdl.handle.net/10316/80486
https://doi.org/10.5334/ijic.3301
url http://hdl.handle.net/10316/80486
https://doi.org/10.5334/ijic.3301
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 1568-4156
https://www.ijic.org/articles/10.5334/ijic.3301/
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eu_rights_str_mv openAccess
dc.publisher.none.fl_str_mv Ubiquity Press
publisher.none.fl_str_mv Ubiquity Press
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
instacron_str RCAAP
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reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
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