Holistic management of patients with progressive pulmonary fibrosis

Detalhes bibliográficos
Autor(a) principal: Oliveira, Ana
Data de Publicação: 2023
Outros Autores: Fabbri, Gaia, Gille, Thomas, Bargagli, Elena, Duchemann, Boris, Evans, Rachel, Pinnock, Hilary, Holland, Anne E, Renzoni, Elisabetta, Ekström, Magnus, Jones, Steve, Wijsenbeek, Marlies, Dinh-Xuan, Anh Tuan, Vagheggini, Guido
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10773/40394
Resumo: Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.
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spelling Holistic management of patients with progressive pulmonary fibrosisProgressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.European Respiratory Society2024-01-30T14:42:59Z2023-09-01T00:00:00Z2023-09info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttp://hdl.handle.net/10773/40394eng1810-683810.1183/20734735.0101-2023Oliveira, AnaFabbri, GaiaGille, ThomasBargagli, ElenaDuchemann, BorisEvans, RachelPinnock, HilaryHolland, Anne ERenzoni, ElisabettaEkström, MagnusJones, SteveWijsenbeek, MarliesDinh-Xuan, Anh TuanVagheggini, Guidoinfo:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2024-02-22T12:19:04Zoai:ria.ua.pt:10773/40394Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-20T03:10:24.477466Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Holistic management of patients with progressive pulmonary fibrosis
title Holistic management of patients with progressive pulmonary fibrosis
spellingShingle Holistic management of patients with progressive pulmonary fibrosis
Oliveira, Ana
title_short Holistic management of patients with progressive pulmonary fibrosis
title_full Holistic management of patients with progressive pulmonary fibrosis
title_fullStr Holistic management of patients with progressive pulmonary fibrosis
title_full_unstemmed Holistic management of patients with progressive pulmonary fibrosis
title_sort Holistic management of patients with progressive pulmonary fibrosis
author Oliveira, Ana
author_facet Oliveira, Ana
Fabbri, Gaia
Gille, Thomas
Bargagli, Elena
Duchemann, Boris
Evans, Rachel
Pinnock, Hilary
Holland, Anne E
Renzoni, Elisabetta
Ekström, Magnus
Jones, Steve
Wijsenbeek, Marlies
Dinh-Xuan, Anh Tuan
Vagheggini, Guido
author_role author
author2 Fabbri, Gaia
Gille, Thomas
Bargagli, Elena
Duchemann, Boris
Evans, Rachel
Pinnock, Hilary
Holland, Anne E
Renzoni, Elisabetta
Ekström, Magnus
Jones, Steve
Wijsenbeek, Marlies
Dinh-Xuan, Anh Tuan
Vagheggini, Guido
author2_role author
author
author
author
author
author
author
author
author
author
author
author
author
dc.contributor.author.fl_str_mv Oliveira, Ana
Fabbri, Gaia
Gille, Thomas
Bargagli, Elena
Duchemann, Boris
Evans, Rachel
Pinnock, Hilary
Holland, Anne E
Renzoni, Elisabetta
Ekström, Magnus
Jones, Steve
Wijsenbeek, Marlies
Dinh-Xuan, Anh Tuan
Vagheggini, Guido
description Progressive pulmonary fibrosis (PF) is a complex interstitial lung disease that impacts substantially on patients' daily lives, requiring personalised and integrated care. We summarise the main needs of patients with PF and their caregivers, and suggest a supportive care approach. Individualised care, education, emotional and psychological support, specialised treatments, and better access to information and resources are necessary. Management should start at diagnosis, be tailored to the patient's needs, and consider end-of-life care. Pharmacological and non-pharmacological interventions should be individualised, including oxygen therapy and pulmonary rehabilitation, with digital healthcare utilised as appropriate. Further research is needed to address technical issues related to oxygen delivery and digital healthcare.
publishDate 2023
dc.date.none.fl_str_mv 2023-09-01T00:00:00Z
2023-09
2024-01-30T14:42:59Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
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status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10773/40394
url http://hdl.handle.net/10773/40394
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 1810-6838
10.1183/20734735.0101-2023
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
dc.format.none.fl_str_mv application/pdf
dc.publisher.none.fl_str_mv European Respiratory Society
publisher.none.fl_str_mv European Respiratory Society
dc.source.none.fl_str_mv reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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