The parental care partnership in the view of parents of children with special health needs

Detalhes bibliográficos
Autor(a) principal: Alves, João Manuel Nunes de Oliveira
Data de Publicação: 2017
Outros Autores: Amendoeira, José Joaquim Penedos, Charepe, Zaida Borges
Tipo de documento: Artigo
Idioma: eng
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: http://hdl.handle.net/10400.14/33599
Resumo: OBJECTIVE: To understand how the care partnership was experienced by parents of children with special healthcare needs. METHOD: Qualitative, descriptive and exploratory study, carried out from December 2013 to February 2014. The method used was the narrative. The population corresponded to parents of children admitted to a medical service of a Pediatric Hospital in Portugal. The sample consisted of 10 parents. The data collection included the sociodemographic characterization and the etnobiografic orientation interview. Once transcribed, the interviews yielded 10 narratives of partnership experiences between the parents and the nursing team. RESULTS: It was noted, as partnership opportunities, the training of parents and the collaborative decision-making, established in a dynamic, unique and ongoing relational process. CONCLUSION: The opportunities for partnership are key assumptions for the care delivery focusing on the child and on the parents as their resources.
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spelling The parental care partnership in the view of parents of children with special health needsA parceria de cuidados pelo olhar dos pais de crianças com necessidades especiais de saúdeChildNursingChronic diseaseParentsCaregiversCriançaEnfermagemDoença crônicaPaisCuidadoresOBJECTIVE: To understand how the care partnership was experienced by parents of children with special healthcare needs. METHOD: Qualitative, descriptive and exploratory study, carried out from December 2013 to February 2014. The method used was the narrative. The population corresponded to parents of children admitted to a medical service of a Pediatric Hospital in Portugal. The sample consisted of 10 parents. The data collection included the sociodemographic characterization and the etnobiografic orientation interview. Once transcribed, the interviews yielded 10 narratives of partnership experiences between the parents and the nursing team. RESULTS: It was noted, as partnership opportunities, the training of parents and the collaborative decision-making, established in a dynamic, unique and ongoing relational process. CONCLUSION: The opportunities for partnership are key assumptions for the care delivery focusing on the child and on the parents as their resources.OBJETIVO: Compreender como foi experienciada a parceria de cuidados pelos pais de crianças com necessidades especiais de saúde. MÉTODO: Estudo qualitativo, descritivo e exploratório, realizado no período de dezembro de 2013 a fevereiro de 2014. O método utilizado foi a narrativa. A população correspondeu aos pais de crianças internadas num serviço de medicina de um Hospital Pediátrico em Portugal. A amostra foi constituída por 10 pais. A coleta de dados contemplou a caracterização sociodemográfica e a entrevista de orientação etnobiográfica. Depois de transcritas, as entrevistas originaram 10 narrativas de experiências de parceria dos pais com a equipe de enfermagem. RESULTADOS: Constatou-se, enquanto oportunidades de parceria, a capacitação dos pais e a tomada de decisão em parceria, estabelecidas num processo relacional dinâmico, singular e contínuo. CONCLUSÃO: As oportunidades de parceria são pressupostos fundamentais para a prestação de cuidados com foco na criança e nos pais enquanto recursos da mesma.Veritati - Repositório Institucional da Universidade Católica PortuguesaAlves, João Manuel Nunes de OliveiraAmendoeira, José Joaquim PenedosCharepe, Zaida Borges2021-06-11T15:59:32Z2017-01-012017-01-01T00:00:00Zinfo:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfapplication/pdfhttp://hdl.handle.net/10400.14/33599eng0102-693310.1590/1983-1447.2017.04.2016-00708506304680429791536info:eu-repo/semantics/openAccessreponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAP2023-09-12T01:39:05Zoai:repositorio.ucp.pt:10400.14/33599Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T18:27:20.127678Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv The parental care partnership in the view of parents of children with special health needs
A parceria de cuidados pelo olhar dos pais de crianças com necessidades especiais de saúde
title The parental care partnership in the view of parents of children with special health needs
spellingShingle The parental care partnership in the view of parents of children with special health needs
Alves, João Manuel Nunes de Oliveira
Child
Nursing
Chronic disease
Parents
Caregivers
Criança
Enfermagem
Doença crônica
Pais
Cuidadores
title_short The parental care partnership in the view of parents of children with special health needs
title_full The parental care partnership in the view of parents of children with special health needs
title_fullStr The parental care partnership in the view of parents of children with special health needs
title_full_unstemmed The parental care partnership in the view of parents of children with special health needs
title_sort The parental care partnership in the view of parents of children with special health needs
author Alves, João Manuel Nunes de Oliveira
author_facet Alves, João Manuel Nunes de Oliveira
Amendoeira, José Joaquim Penedos
Charepe, Zaida Borges
author_role author
author2 Amendoeira, José Joaquim Penedos
Charepe, Zaida Borges
author2_role author
author
dc.contributor.none.fl_str_mv Veritati - Repositório Institucional da Universidade Católica Portuguesa
dc.contributor.author.fl_str_mv Alves, João Manuel Nunes de Oliveira
Amendoeira, José Joaquim Penedos
Charepe, Zaida Borges
dc.subject.por.fl_str_mv Child
Nursing
Chronic disease
Parents
Caregivers
Criança
Enfermagem
Doença crônica
Pais
Cuidadores
topic Child
Nursing
Chronic disease
Parents
Caregivers
Criança
Enfermagem
Doença crônica
Pais
Cuidadores
description OBJECTIVE: To understand how the care partnership was experienced by parents of children with special healthcare needs. METHOD: Qualitative, descriptive and exploratory study, carried out from December 2013 to February 2014. The method used was the narrative. The population corresponded to parents of children admitted to a medical service of a Pediatric Hospital in Portugal. The sample consisted of 10 parents. The data collection included the sociodemographic characterization and the etnobiografic orientation interview. Once transcribed, the interviews yielded 10 narratives of partnership experiences between the parents and the nursing team. RESULTS: It was noted, as partnership opportunities, the training of parents and the collaborative decision-making, established in a dynamic, unique and ongoing relational process. CONCLUSION: The opportunities for partnership are key assumptions for the care delivery focusing on the child and on the parents as their resources.
publishDate 2017
dc.date.none.fl_str_mv 2017-01-01
2017-01-01T00:00:00Z
2021-06-11T15:59:32Z
dc.type.status.fl_str_mv info:eu-repo/semantics/publishedVersion
dc.type.driver.fl_str_mv info:eu-repo/semantics/article
format article
status_str publishedVersion
dc.identifier.uri.fl_str_mv http://hdl.handle.net/10400.14/33599
url http://hdl.handle.net/10400.14/33599
dc.language.iso.fl_str_mv eng
language eng
dc.relation.none.fl_str_mv 0102-6933
10.1590/1983-1447.2017.04.2016-0070
85063046804
29791536
dc.rights.driver.fl_str_mv info:eu-repo/semantics/openAccess
eu_rights_str_mv openAccess
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instacron:RCAAP
instname_str Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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institution RCAAP
reponame_str Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
collection Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
repository.name.fl_str_mv Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação
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