Boundaries between Health and Disease for People Living with Chronic Disease

Detalhes bibliográficos
Autor(a) principal: Maria do Céu Sá
Data de Publicação: 2021
Outros Autores: Ana Sofia Nabais
Tipo de documento: Artigo
Idioma: por
Título da fonte: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Texto Completo: https://doi.org/10.36367/ntqr.8.2021.637-644
Resumo: Living with a chronic disease like osteoarthritis is a big challenge. This disease compromises functionality alters the body image, and its evolution can lead the person to feel pain and suffering. Understanding how these people live with their disease is a contribution to nursing practice. This research aims to understand the experiences of health and disease for people living with osteoarticular disease. A descriptive study was carried out with a qualitative methodology of phenomenological orientation. Semi-structured interviews were conducted with fifteen (15) participants with osteoarthritis. From their analysis, it emerged as a result that the experience of chronic illness has been considered in the structure of the human being as a way of life. The experience of health and illness represents a process of living in constant movement and is portrayed as a dialectic in which the suffering self is renewed to continue to exist. The experience of health and illness is an existential reality in which suffering, and well-being are not denied, but integrated by the Self. This study highlights how this chronic disease is experienced, highlighting the experience of being neither healthy nor sick, as a person living with a sick body. It highlights and explains the concepts: I as a human being; Me and suffering; the dialectic of renewal and the existential continuity where the understanding of pain and suffering makes sense to people living with chronic diseases, suggesting that hope is the catalyst for reconciling borders and human experiences of health and disease.
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spelling Boundaries between Health and Disease for People Living with Chronic DiseaseFronteiras entre saúde e doença para pessoas que vivem com Doença CrónicaDoença CrónicaOsteoartroseDoençaSaúdeFenomenologiaEnfermagemChronic DiseaseOsteoarthritisDiseaseHealthPhenomenologyNursingLiving with a chronic disease like osteoarthritis is a big challenge. This disease compromises functionality alters the body image, and its evolution can lead the person to feel pain and suffering. Understanding how these people live with their disease is a contribution to nursing practice. This research aims to understand the experiences of health and disease for people living with osteoarticular disease. A descriptive study was carried out with a qualitative methodology of phenomenological orientation. Semi-structured interviews were conducted with fifteen (15) participants with osteoarthritis. From their analysis, it emerged as a result that the experience of chronic illness has been considered in the structure of the human being as a way of life. The experience of health and illness represents a process of living in constant movement and is portrayed as a dialectic in which the suffering self is renewed to continue to exist. The experience of health and illness is an existential reality in which suffering, and well-being are not denied, but integrated by the Self. This study highlights how this chronic disease is experienced, highlighting the experience of being neither healthy nor sick, as a person living with a sick body. It highlights and explains the concepts: I as a human being; Me and suffering; the dialectic of renewal and the existential continuity where the understanding of pain and suffering makes sense to people living with chronic diseases, suggesting that hope is the catalyst for reconciling borders and human experiences of health and disease.Viver com uma doença crónica como a osteoartrose é um grande desafio. Esta doença manifesta-se especialmente através da dor, podendo surgir a deformação, a nível das articulações, altera a imagem corporal compromete a funcionalidade e a sua evolução pode causar na pessoa grande sofrimento. Compreender a forma como estas pessoas vivem a sua doença, constitui um contributo para a prática de enfermagem. Esta investigação tem como objetivo compreender as experiências de saúde e doença para pessoas que vivem com doença osteoarticular. Realizou-se um estudo descritivo com uma metodologia qualitativa de orientação fenomenológica. Realizou-se entrevistas semiestruturadas a quinze (15) participantes com osteoartrose. Da análise das mesmas, sobressaiu como resultado que a experiência da doença crónica tem sido considerada na estrutura do ser humano como um modo da vida. A experiência da saúde e da doença representa um processo de viver em constante movimento e é retratada como uma dialética em que o Eu sofredor se renova para continuar a existir. A experiência da saúde e da doença é uma realidade existencial em que o sofrimento e o bem-estar não são negados, mas integrados pelo Self. Este estudo destaca a forma como é experienciada esta doença crónica, salientando-se a experiência de não ser nem saudável nem doente, enquanto pessoa que vive com um corpo doente. Destaca e explica os conceitos: Eu como ser humano; Eu e o sofrimento; a dialética da renovação e a continuidade existencial onde a compreensão da dor, do sofrimento fazem sentido para as pessoas que vivem com doenças crónicas, sugerindo que a esperança é o catalisador para reconciliar fronteiras e as experiências humanas de saúde e doença.Ludomedia2021-07-08info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.36367/ntqr.8.2021.637-644https://doi.org/10.36367/ntqr.8.2021.637-644New Trends in Qualitative Research; Vol. 8 (2021): Qualitative Research in Health: Advances and Challenges; 637-644New Trends in Qualitative Research; Vol. 8 (2021): Investigación Cualitativa en Salud: avances y desafíos; 637-644New Trends in Qualitative Research; Vol. 8 (2021): Investigação Qualitativa em Saúde: avanços e desafios; 637-6442184-777010.36367/ntqr.8.2021reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://publi.ludomedia.org/index.php/ntqr/article/view/457https://publi.ludomedia.org/index.php/ntqr/article/view/457/452Maria do Céu SáAna Sofia Nabaisinfo:eu-repo/semantics/openAccess2023-08-13T09:13:22Zoai:ojs.publi.ludomedia.org:article/457Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T15:48:19.185392Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse
dc.title.none.fl_str_mv Boundaries between Health and Disease for People Living with Chronic Disease
Fronteiras entre saúde e doença para pessoas que vivem com Doença Crónica
title Boundaries between Health and Disease for People Living with Chronic Disease
spellingShingle Boundaries between Health and Disease for People Living with Chronic Disease
Maria do Céu Sá
Doença Crónica
Osteoartrose
Doença
Saúde
Fenomenologia
Enfermagem
Chronic Disease
Osteoarthritis
Disease
Health
Phenomenology
Nursing
title_short Boundaries between Health and Disease for People Living with Chronic Disease
title_full Boundaries between Health and Disease for People Living with Chronic Disease
title_fullStr Boundaries between Health and Disease for People Living with Chronic Disease
title_full_unstemmed Boundaries between Health and Disease for People Living with Chronic Disease
title_sort Boundaries between Health and Disease for People Living with Chronic Disease
author Maria do Céu Sá
author_facet Maria do Céu Sá
Ana Sofia Nabais
author_role author
author2 Ana Sofia Nabais
author2_role author
dc.contributor.author.fl_str_mv Maria do Céu Sá
Ana Sofia Nabais
dc.subject.por.fl_str_mv Doença Crónica
Osteoartrose
Doença
Saúde
Fenomenologia
Enfermagem
Chronic Disease
Osteoarthritis
Disease
Health
Phenomenology
Nursing
topic Doença Crónica
Osteoartrose
Doença
Saúde
Fenomenologia
Enfermagem
Chronic Disease
Osteoarthritis
Disease
Health
Phenomenology
Nursing
description Living with a chronic disease like osteoarthritis is a big challenge. This disease compromises functionality alters the body image, and its evolution can lead the person to feel pain and suffering. Understanding how these people live with their disease is a contribution to nursing practice. This research aims to understand the experiences of health and disease for people living with osteoarticular disease. A descriptive study was carried out with a qualitative methodology of phenomenological orientation. Semi-structured interviews were conducted with fifteen (15) participants with osteoarthritis. From their analysis, it emerged as a result that the experience of chronic illness has been considered in the structure of the human being as a way of life. The experience of health and illness represents a process of living in constant movement and is portrayed as a dialectic in which the suffering self is renewed to continue to exist. The experience of health and illness is an existential reality in which suffering, and well-being are not denied, but integrated by the Self. This study highlights how this chronic disease is experienced, highlighting the experience of being neither healthy nor sick, as a person living with a sick body. It highlights and explains the concepts: I as a human being; Me and suffering; the dialectic of renewal and the existential continuity where the understanding of pain and suffering makes sense to people living with chronic diseases, suggesting that hope is the catalyst for reconciling borders and human experiences of health and disease.
publishDate 2021
dc.date.none.fl_str_mv 2021-07-08
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dc.identifier.uri.fl_str_mv https://doi.org/10.36367/ntqr.8.2021.637-644
https://doi.org/10.36367/ntqr.8.2021.637-644
url https://doi.org/10.36367/ntqr.8.2021.637-644
dc.language.iso.fl_str_mv por
language por
dc.relation.none.fl_str_mv https://publi.ludomedia.org/index.php/ntqr/article/view/457
https://publi.ludomedia.org/index.php/ntqr/article/view/457/452
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dc.publisher.none.fl_str_mv Ludomedia
publisher.none.fl_str_mv Ludomedia
dc.source.none.fl_str_mv New Trends in Qualitative Research; Vol. 8 (2021): Qualitative Research in Health: Advances and Challenges; 637-644
New Trends in Qualitative Research; Vol. 8 (2021): Investigación Cualitativa en Salud: avances y desafíos; 637-644
New Trends in Qualitative Research; Vol. 8 (2021): Investigação Qualitativa em Saúde: avanços e desafios; 637-644
2184-7770
10.36367/ntqr.8.2021
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