Boundaries between Health and Disease for People Living with Chronic Disease
Autor(a) principal: | |
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Data de Publicação: | 2021 |
Outros Autores: | |
Tipo de documento: | Artigo |
Idioma: | por |
Título da fonte: | Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
Texto Completo: | https://doi.org/10.36367/ntqr.8.2021.637-644 |
Resumo: | Living with a chronic disease like osteoarthritis is a big challenge. This disease compromises functionality alters the body image, and its evolution can lead the person to feel pain and suffering. Understanding how these people live with their disease is a contribution to nursing practice. This research aims to understand the experiences of health and disease for people living with osteoarticular disease. A descriptive study was carried out with a qualitative methodology of phenomenological orientation. Semi-structured interviews were conducted with fifteen (15) participants with osteoarthritis. From their analysis, it emerged as a result that the experience of chronic illness has been considered in the structure of the human being as a way of life. The experience of health and illness represents a process of living in constant movement and is portrayed as a dialectic in which the suffering self is renewed to continue to exist. The experience of health and illness is an existential reality in which suffering, and well-being are not denied, but integrated by the Self. This study highlights how this chronic disease is experienced, highlighting the experience of being neither healthy nor sick, as a person living with a sick body. It highlights and explains the concepts: I as a human being; Me and suffering; the dialectic of renewal and the existential continuity where the understanding of pain and suffering makes sense to people living with chronic diseases, suggesting that hope is the catalyst for reconciling borders and human experiences of health and disease. |
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Boundaries between Health and Disease for People Living with Chronic DiseaseFronteiras entre saúde e doença para pessoas que vivem com Doença CrónicaDoença CrónicaOsteoartroseDoençaSaúdeFenomenologiaEnfermagemChronic DiseaseOsteoarthritisDiseaseHealthPhenomenologyNursingLiving with a chronic disease like osteoarthritis is a big challenge. This disease compromises functionality alters the body image, and its evolution can lead the person to feel pain and suffering. Understanding how these people live with their disease is a contribution to nursing practice. This research aims to understand the experiences of health and disease for people living with osteoarticular disease. A descriptive study was carried out with a qualitative methodology of phenomenological orientation. Semi-structured interviews were conducted with fifteen (15) participants with osteoarthritis. From their analysis, it emerged as a result that the experience of chronic illness has been considered in the structure of the human being as a way of life. The experience of health and illness represents a process of living in constant movement and is portrayed as a dialectic in which the suffering self is renewed to continue to exist. The experience of health and illness is an existential reality in which suffering, and well-being are not denied, but integrated by the Self. This study highlights how this chronic disease is experienced, highlighting the experience of being neither healthy nor sick, as a person living with a sick body. It highlights and explains the concepts: I as a human being; Me and suffering; the dialectic of renewal and the existential continuity where the understanding of pain and suffering makes sense to people living with chronic diseases, suggesting that hope is the catalyst for reconciling borders and human experiences of health and disease.Viver com uma doença crónica como a osteoartrose é um grande desafio. Esta doença manifesta-se especialmente através da dor, podendo surgir a deformação, a nível das articulações, altera a imagem corporal compromete a funcionalidade e a sua evolução pode causar na pessoa grande sofrimento. Compreender a forma como estas pessoas vivem a sua doença, constitui um contributo para a prática de enfermagem. Esta investigação tem como objetivo compreender as experiências de saúde e doença para pessoas que vivem com doença osteoarticular. Realizou-se um estudo descritivo com uma metodologia qualitativa de orientação fenomenológica. Realizou-se entrevistas semiestruturadas a quinze (15) participantes com osteoartrose. Da análise das mesmas, sobressaiu como resultado que a experiência da doença crónica tem sido considerada na estrutura do ser humano como um modo da vida. A experiência da saúde e da doença representa um processo de viver em constante movimento e é retratada como uma dialética em que o Eu sofredor se renova para continuar a existir. A experiência da saúde e da doença é uma realidade existencial em que o sofrimento e o bem-estar não são negados, mas integrados pelo Self. Este estudo destaca a forma como é experienciada esta doença crónica, salientando-se a experiência de não ser nem saudável nem doente, enquanto pessoa que vive com um corpo doente. Destaca e explica os conceitos: Eu como ser humano; Eu e o sofrimento; a dialética da renovação e a continuidade existencial onde a compreensão da dor, do sofrimento fazem sentido para as pessoas que vivem com doenças crónicas, sugerindo que a esperança é o catalisador para reconciliar fronteiras e as experiências humanas de saúde e doença.Ludomedia2021-07-08info:eu-repo/semantics/publishedVersioninfo:eu-repo/semantics/articleapplication/pdfhttps://doi.org/10.36367/ntqr.8.2021.637-644https://doi.org/10.36367/ntqr.8.2021.637-644New Trends in Qualitative Research; Vol. 8 (2021): Qualitative Research in Health: Advances and Challenges; 637-644New Trends in Qualitative Research; Vol. 8 (2021): Investigación Cualitativa en Salud: avances y desafíos; 637-644New Trends in Qualitative Research; Vol. 8 (2021): Investigação Qualitativa em Saúde: avanços e desafios; 637-6442184-777010.36367/ntqr.8.2021reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãoinstacron:RCAAPporhttps://publi.ludomedia.org/index.php/ntqr/article/view/457https://publi.ludomedia.org/index.php/ntqr/article/view/457/452Maria do Céu SáAna Sofia Nabaisinfo:eu-repo/semantics/openAccess2023-08-13T09:13:22Zoai:ojs.publi.ludomedia.org:article/457Portal AgregadorONGhttps://www.rcaap.pt/oai/openaireopendoar:71602024-03-19T15:48:19.185392Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informaçãofalse |
dc.title.none.fl_str_mv |
Boundaries between Health and Disease for People Living with Chronic Disease Fronteiras entre saúde e doença para pessoas que vivem com Doença Crónica |
title |
Boundaries between Health and Disease for People Living with Chronic Disease |
spellingShingle |
Boundaries between Health and Disease for People Living with Chronic Disease Maria do Céu Sá Doença Crónica Osteoartrose Doença Saúde Fenomenologia Enfermagem Chronic Disease Osteoarthritis Disease Health Phenomenology Nursing |
title_short |
Boundaries between Health and Disease for People Living with Chronic Disease |
title_full |
Boundaries between Health and Disease for People Living with Chronic Disease |
title_fullStr |
Boundaries between Health and Disease for People Living with Chronic Disease |
title_full_unstemmed |
Boundaries between Health and Disease for People Living with Chronic Disease |
title_sort |
Boundaries between Health and Disease for People Living with Chronic Disease |
author |
Maria do Céu Sá |
author_facet |
Maria do Céu Sá Ana Sofia Nabais |
author_role |
author |
author2 |
Ana Sofia Nabais |
author2_role |
author |
dc.contributor.author.fl_str_mv |
Maria do Céu Sá Ana Sofia Nabais |
dc.subject.por.fl_str_mv |
Doença Crónica Osteoartrose Doença Saúde Fenomenologia Enfermagem Chronic Disease Osteoarthritis Disease Health Phenomenology Nursing |
topic |
Doença Crónica Osteoartrose Doença Saúde Fenomenologia Enfermagem Chronic Disease Osteoarthritis Disease Health Phenomenology Nursing |
description |
Living with a chronic disease like osteoarthritis is a big challenge. This disease compromises functionality alters the body image, and its evolution can lead the person to feel pain and suffering. Understanding how these people live with their disease is a contribution to nursing practice. This research aims to understand the experiences of health and disease for people living with osteoarticular disease. A descriptive study was carried out with a qualitative methodology of phenomenological orientation. Semi-structured interviews were conducted with fifteen (15) participants with osteoarthritis. From their analysis, it emerged as a result that the experience of chronic illness has been considered in the structure of the human being as a way of life. The experience of health and illness represents a process of living in constant movement and is portrayed as a dialectic in which the suffering self is renewed to continue to exist. The experience of health and illness is an existential reality in which suffering, and well-being are not denied, but integrated by the Self. This study highlights how this chronic disease is experienced, highlighting the experience of being neither healthy nor sick, as a person living with a sick body. It highlights and explains the concepts: I as a human being; Me and suffering; the dialectic of renewal and the existential continuity where the understanding of pain and suffering makes sense to people living with chronic diseases, suggesting that hope is the catalyst for reconciling borders and human experiences of health and disease. |
publishDate |
2021 |
dc.date.none.fl_str_mv |
2021-07-08 |
dc.type.status.fl_str_mv |
info:eu-repo/semantics/publishedVersion |
dc.type.driver.fl_str_mv |
info:eu-repo/semantics/article |
format |
article |
status_str |
publishedVersion |
dc.identifier.uri.fl_str_mv |
https://doi.org/10.36367/ntqr.8.2021.637-644 https://doi.org/10.36367/ntqr.8.2021.637-644 |
url |
https://doi.org/10.36367/ntqr.8.2021.637-644 |
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por |
language |
por |
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https://publi.ludomedia.org/index.php/ntqr/article/view/457 https://publi.ludomedia.org/index.php/ntqr/article/view/457/452 |
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info:eu-repo/semantics/openAccess |
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openAccess |
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application/pdf |
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Ludomedia |
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Ludomedia |
dc.source.none.fl_str_mv |
New Trends in Qualitative Research; Vol. 8 (2021): Qualitative Research in Health: Advances and Challenges; 637-644 New Trends in Qualitative Research; Vol. 8 (2021): Investigación Cualitativa en Salud: avances y desafíos; 637-644 New Trends in Qualitative Research; Vol. 8 (2021): Investigação Qualitativa em Saúde: avanços e desafios; 637-644 2184-7770 10.36367/ntqr.8.2021 reponame:Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) instname:Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação instacron:RCAAP |
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Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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RCAAP |
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RCAAP |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) |
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Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos) - Agência para a Sociedade do Conhecimento (UMIC) - FCT - Sociedade da Informação |
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